CancerCompass message board discussion started by soccergranny on 10/5/2007 http://www.cancercompass.com/message-board/message/all,16808,0.htm Sat, 30 Aug 2008 00:00:00 GMT Sat, 30 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi, anyone out there having problems with normal scans, feeling great, looking great and rising CA125's.  I had breast cancer 10 years ago, both removed and reconstructed then5 years ago had fallopian tube, not a metastases, a primary, got it early, encapsulated.  BUT have trouble with rising CA125's.  Have been through Femara, Tamoxifen, Arimidex, the Faslodex shots and still rises, so did a round of just carboplatin.  It dropped like a rock then went up during treatment, to only 31 which is still normal, but in three months it has risen to 48, which is not recommended for treatment, so they say "WAIT" another 3 months, if elevated slightly will still wait, and then if substantially elevated, since I am sensitive to the test (which is supposedly a good thing), then they will do another round of carboplatin and if it rises during treatment they will not add Taxol, thyat nasty thing, they will add a new medicine recommebnded by Dana Farber Cancer Center which you do not lose your hair, no neuropathy and no nausea. I have been blessed I have handled my 3, chemos good.. mostly fatigue and emotinal.  Still walking a lot and staying busy.  Anyhow a friend who had a friend whose CA125's were 15,000 and they couldn't find anything started drinking this all natural, no hormones, anything juice called Acai, berries from the amazon rain forest... her counts dropped to 7500...she is still on it.  Has anyone out there tried it.  it does not interfere with any of your chemo, chemo meds or meds in general...  I ordered a bottle and will try it...  Everytone telle ms I should go to Dana Farber but if I have to do chemo again I can handle it, don't want to but I can, just want to figure this out as I am sure the docs do.  Thanks for any input..... soccergranny  soccergranny Fri, 05 Oct 2007 00:00:00 GMT hi soccergranny, Someone just recommended Thai-Go it is a mangosteen again a rare fruit along will Paw-Paw cell regulator pills.  This woman is a ovarian ca survivor.  My mom has fallopian tube ca. This woman states she took it 4 time a day during chemo and now 2x's a day.  She swears by it.  My mom has not tried it yet.Good luck with your fight and stay strong you are in my prayers. rybar5 Sun, 14 Oct 2007 00:00:00 GMT Thanks for your input.  How is your mom with her fallopian tube CA?  soccergranny Mon, 15 Oct 2007 00:00:00 GMT