CancerCompass message board discussion started by trooshors on 10/9/2007 http://www.cancercompass.com/message-board/message/all,16927,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hello Everyone,It's 12.15 (London time) and I can't sleep.Fortunately I've put my computer on and found this website! I believe I was led by God. Having read your messages to each other I feel so encouraged and finally not alone. This can be a lonely illness.I was diagnosed in 2000. The tumor ruptured. They removed my womb, ovaries, limph glands and spleen. I was told it would never return.Fot sevenyears I flitted in between feeling really unwell and feeling great. I even stopped going for check ups prior to August 2006. But I went for my check up in August 06 and everything appeared fine. By September I was in hospital being told I had IBS (Irritable Bowl Syndrome). After a week they sent me home with a course of medication. But ny health began to deteriate even more. I contacted The Royal Marsden, my treatment hospital and they did a long series of test. At the end they told us my ill health was not related to my disease. But said they would do one more test - a CT scan. It's only then that they saw the 2 1/2 inch tumor along with a mass around the belly button. I had surgery. I was told it was incurribale and would always return.A few months ago I began to get pain from the gland in my neck. I felt unwell. A few weeks ago I began to feel worse, I felt a tingling sensation in my tummy. Some numbness. Nausea. Hiccups (everyday). Pain down my leggs. A little feverish and gradual abdominal pain. This has increased. Again I went to hospital. They think it's IBS! Fortunately, I am due a CT scan on Tuesday.I think the symptoms to this disease should be shouted from the hill top. My doctors are nice but I suffer a lot because they don't always recognise the signs and leave me to suffer alone. Has anyone had a simular experience?Thanks for listening.God bless  trooshors Tue, 09 Oct 2007 00:00:00 GMT