CancerCompass message board discussion started by Marcie77 on 10/11/2007 http://www.cancercompass.com/message-board/message/all,16991,0.htm Mon, 13 Oct 2008 00:00:00 GMT Mon, 13 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Dear all,I have received many emails since my last posting,  i appreciate all the nice notes and encouraging words!!!!For those newly diagnosed, i hope you get to read this, I've said it before and i'll keep saying it.  Being diagnosed with a neuroendocrine tumor is not the end of the world.  This type of pancreatic cancer is fightable!!!!!!  But everyone must get treatment with the doctors that specialize with this cancer.  A regular oncologist will not do!!!  No offense, but our cancer is rare.  Your doing yourself a disfavor if you think they know all there is to know about your cancer, they don't.  I'm not saying they are not good docs, but our cancer is rare and must be treated in a special way.  It is a cancer that can be contained if you seek treatment from someone who deals with this type regularly!!!!"if you can't tell" i feel strongly about anyone diagnosed with a neuroendocrine type tumor, please see a specialist, if you don't know who they are, get in touch with me and i will help you!!!!  Remember, i'm 7 years post original diagnosis and doing great!!!!Take care,Marcie  Marcie77 Thu, 11 Oct 2007 00:00:00 GMT I, too, have been fighting this disease since January, 2002.  I have a wonderful oncologist, though not a specialist in this type of cancer.  If you have any info that could help me, I would greatly appreciate it.Best wishes to you.jagusta Janice A. Wed, 24 Oct 2007 00:00:00 GMT Hello: So  glad to hear you are doing well.My husband has non-functioning islet cell with liver mes. he has not had any progression for over a year, no symptoms, normal labs.What do you atribute your seven year survival to?Thanks.. coldcountry Wed, 21 Nov 2007 00:00:00 GMT  On 10/24/2007 Janice A. wrote:I, too, have been fighting this disease since January, 2002.  I have a wonderful oncologist, though not a specialist in this type of cancer.  If you have any info that could help me, I would greatly appreciate it.Best wishes to you.jagustaHello:So glad to hear you are doing well. What do you attribute your survival to?What type of treatments if any, have you had. My husband has non-functioning islet cell. Thanks, Mary coldcountry Wed, 21 Nov 2007 00:00:00 GMT