CancerCompass message board discussion started by Sarah Ann on 10/11/2007 http://www.cancercompass.com/message-board/message/all,16999,0.htm Fri, 05 Sep 2008 00:00:00 GMT Fri, 05 Sep 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My Mum has just been diognosed with T Cell LGL Leukemia. I'm looking for others with the same for help and advice on this condition. She has also been diognosed with severe Neutropenia and is currently taking 150mg of Cyclosporin and injections 3 times a week of Neupogen. Is this the recommended medication for this? Would really apreciate some one to talk to about this. Sarah Ann Thu, 11 Oct 2007 00:00:00 GMT I am a 36 yr. old mother of 2 and found out I have t cell LGL. I have been placed on Metotrexate and Prednisone and it seems that I am feeling worse. There is not much info I can find on this Leukemia either. mechelle Fri, 02 Nov 2007 00:00:00 GMT Olive leaf extract 1500 mg , vitamin c 3000 mg, CoQ10 200 mg, all daily. this is what I do,  longbow Mon, 03 Dec 2007 00:00:00 GMT I just saw your post to Cancer Coompass.  If you mean T-cell Large Granular Lymphocytic Leukemia, my husband has it.  His doctor told us two years ago that there are only about 300 cases of it in the U.S., so we can understand why there is not much information about it.My husband chose not to have chemo, but has gone the alternative and natural way of helping his body cope with the cancer.  He has been alive for 2 years and for the most part has done exceptionally well...working on our place, and helping the neighbors.  He had a cold a couple of months ago and is a bit fatigued from that, but still taking his list of vitamins and minerals and herbs and takes Essiac tea regularly. If you can find an alternative doctor to talk with about it, he/she may be able to give you some advice on how to build up your body's system and fight the disease.  May things go well with you. Witts Thu, 14 Feb 2008 00:00:00 GMT Hi, the olive leaf extract really made a big change for the better for me, it fights virus and just makes you feel good. I believe it stops LGL. It takes  a little time, but I felt better within a few weeks and I have been using it now for three years and am living life again. Longbow   longbow Mon, 25 Feb 2008 00:00:00 GMT