CancerCompass message board discussion started by Evalyn m on 3/15/2005 http://www.cancercompass.com/message-board/message/all,1714,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I was diagnosed with stage 3C fallopian tube cancer in sept 2004. I've had a complete hystorectomy,and 6 treatments of taxol and carboplatin. My doctor feel that this cancer I genetic, due to the fact, that my father had male breat cancer, and his sister also died of breast cancer @ the age of 38. My paternal grandmother died of ovarian cancer @ 47 year of age. I am presently awating the results of my genetic blood test. I would like to correspond with any one who was recently diagnosed with primary site fallopian cancer. Evalyn m Tue, 15 Mar 2005 00:00:00 GMT Evalyn, I too was diagnosed with FTC in September of 2004. I had a complete hysterectomy, debulking and 8 rounds of chemo. I just had a CT scan and PT scan done and I am clean. I am no struggling with the decision of whether or not to get involved with the Ovarex clinical trial. Do you know anything about that and how are you doing now? Pambsky Tue, 26 Apr 2005 00:00:00 GMT I was recently diagnosed with FTC stage 3c after 5 years of carrying around a 10cm mass. All the docs thought it was endometriosis. Because they waited so long to biopsy, i now have metastis. Did your mother take DES? Mine did and I'm trying to find the cause. I can't take chemo or radiation due to a rare bone marrow disorder. So I forced to find something natural or some kind of targeted therapy. Any suggestions? What treatment is working for you and who is your doctor? Thanks a bunch jonie Jonie Tue, 11 Oct 2005 00:00:00 GMT HI,I'm sorry that I'm a little late with my reply,but I changed my e-mail address to --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---.You can reply to me directly,at this address. Regarding my cancer status, I'm still in remission (ca125 is 6,howeverI have tested for the BRCA1 gene mutation,and I'm @ higher risk for breast cancer. I have been taking Tamoxifen for the last 6 months. My anxiety level is very high,due to the fact that I don't know if breast cancer will strike, or fallopian cancer will return. Evalyn Evalyn m Tue, 11 Oct 2005 00:00:00 GMT Hi Joanie,to reply to your message,as far as I know,my mother did not takeDES,but my father died of male breast cancer,his sister died of breast cancer@ age 38,and his mother died of ovarian cancer @ age 47.My genetic test results came back positive for the BRCA1gene mutation.I've been told I'm @ even higher risk for breast cancer. regarding the fallopian cancer,I'mstill in remission with a ca125 0f 6.Presently,I'mon Tamoxifen,as a prevention for breast cancer I can't tell you how high my anxiety level is wondering if it will be breast cancer,or a return of fallopian tube cancer.You can e-mail me directly --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---.Evalyn Evalyn m Tue, 11 Oct 2005 00:00:00 GMT My sister has just been diagnosed with fallopian cancer and had a complete histo at the Mayo clinic.  She is in stage 2 #4 and is startoing her 1st round of chemo in 4 weeks. What can I exspect? Regards,  Patrick47 Mon, 28 Jan 2008 00:00:00 GMT How is your sister doing now?  My mom was diagnosed with stage 3c Fallopian tube cancer in August of 2005.  My mom is 73 years old and today was just told her CA 125 test is now at 80 so the cancer might be back.   Anna Fallopiantubes Wed, 19 Mar 2008 00:00:00 GMT