CancerCompass message board discussion started by distraught-bile duct canc on 10/31/2007 http://www.cancercompass.com/message-board/message/all,17557,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ hi, im from staffordshire in the uk,my mum was diagnosed with bile duct cancer 1 month ago, doctors have given her 8-18 months,have  and have said its inopreble,we feel they dont want to tell us much it seems like mums left to die,so why bother is the attitude,i would love to hear off any one who is @stage 3,and anyone in uk,i ve heard of dr canady a remarkable man, i would love my mum to see,has anyone @stage 3 who is haveing the op or has had it,and if it is costly  i would be so gratfull for the info,we re all desperate. x distraught-bile duct canc Wed, 31 Oct 2007 00:00:00 GMT My cousin is 32 and has Stage 4 Bile duct cancer that has spread everywhere.  The most effective treatment we have found so far are the platinum based therapies. They are Cisplatin or Carboplatin (chemo) but they are hard on a person physically.  For us they did not knock out all the cancer.  We started in Stage 4 so maybe you will have better luck because your in stage 3. Also if your family have a significant history of female breast or ovarian cancer your family may be like mine and carry a defective gene titled BRCA1 or 2. Currently research is being conducted in the UK for breast cancer patients that have this BRCA2 mutation to determine if they can kill the cancer using this genetic weakness. Because Bile duct cancer is rare they are not treating it yet with these new inhibitors but over the next couple of years if may be helpful to keep track of their results. Good Luck and God BlessCarl Baronc Thu, 01 Nov 2007 00:00:00 GMT  1-724-483-3639Fax: 1-412-664-6748Work Address:100 STOOPS DRIVESPARTEN MEDICAL CENTERMONONGAHELA, PA 15603Map It! with MapQuest®This is dr. Canady's info,  i would you to quickly  get all your info, test and scans together and request his evaluation.  Unfortuatly i did and it was to far into the cholangiocarcenoma for my husband.  God bless maxamillion Fri, 02 Nov 2007 00:00:00 GMT hi,thank you for the info,it was v. helpfull,my mums not well enough to fly,we live in newcastle under lyme staffordshire uk,but were currently under a great doctor at st, christies manchester uk,who is carrying out an m,r,i scan tom as our local hospital would not carry this out,and have not been botherd to help .so sory,stage 4 is serious i no,keep in touch x distraught-bile duct canc Wed, 07 Nov 2007 00:00:00 GMT hi,thank you for the info,it was v. helpfull,my mums not well enough to fly,we live in newcastle under lyme staffordshire uk,but were currently under a great doctor at st, christies manchester uk,who is carrying out an m,r,i scan tom as our local hospital would not carry this out,and have not been botherd to help .so sory,stage 4 is serious i no,keep in touch x distraught-bile duct canc Wed, 07 Nov 2007 00:00:00 GMT got stage 4 part mixed up with other reply, distraught-bile duct canc Wed, 07 Nov 2007 00:00:00 GMT really sory. im still confused as the doctors here have said its inoperable,but the doctor in manchester rang y.day and said,it does look promosing bit we need an m,r,i, scan first so tom ewre going,keep u updated.thank you for reply from zie. distraught-bile duct canc Wed, 07 Nov 2007 00:00:00 GMT My mom is dx with same and is having surgery tomorrow with Dr. Canady. She was scheduled for the 15th of Nov. but was moved to the 12th because of high bilirubin levels. Don't know about the cost; she has health insurance. I will let you know how she is doing after surgery.There are docs that perform this surgery in Germany; Doc Canady trained there. Check it out online. melody539 Sun, 11 Nov 2007 00:00:00 GMT good luck please keep me updated i really want her to have the surgery but not sure how much it would cost and if she can have it,currently waiting for the doctor to get back to us from the m.r.i scan look forward in hearing of you,all the best. distraught-bile duct canc Tue, 13 Nov 2007 00:00:00 GMT