CancerCompass message board discussion started by points00 on 10/31/2007 http://www.cancercompass.com/message-board/message/all,17568,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I was diagnosed with a Hepatacellular Carcinoma primary liver tumor in early March of this year. On March 9th, the tumor was removed at Mayo in Rochester, MN. I was told that they got it all and I did not need radiation or chemotherapy. I had a follow up blood test and CT scan in June and all was okay. I just completed another three month Blood test and CT Scan and am waiting for the results. My advice to anyone with this type of cancer is to seek medical help from a hospital that specializes in liver cancer and has a hepatology dept. They did say that my liver was healthy otherwise. I also understand that the reoccurance rate for this type of cancer is fairly large. I am thankful to our lord and saviour that they were able to diagnose my cancer while it was still operable. I will post the results of my latest testing as soon as I hear. points00 Wed, 31 Oct 2007 00:00:00 GMT I wish you all the best, My dad had his liver tumor in the portal vein removed in Feb. He also went every three months for testing. The cancer has returned and is presently awaiting sirt radiation and on Nexavar. Has anyone exepierenced both and what were the results. He really is very depressed. lolomike Sun, 04 Nov 2007 00:00:00 GMT My husband was also diagnosed with Hepatacelluar Carcinoma. His is out side the liver in the portal vein. They could not give him a liver transplant because it was outside. His tumor markers were at 7500 when he was first diagnosed in May. He has been on Nexavr for about 2 months and his tumor marker levels are steadily dropping. About 3 months ago I think they were 700, then last month they were 400 and now last week they were down to 270. The doctor at Ochsner said the nexavar was doing what it was suppose to. They will be doing a ct scan next month to see if anything esle is going on. MOOLOU Mon, 12 Nov 2007 00:00:00 GMT I can only give you hope about Nexavar.   My husband has 4 tumours which are curently being controlled by Nexavar.   It's been a tough road he reacted badly to the full dosage but on have dosage he is very slowly becoming his old self.   I wish you well graceway Thu, 22 Nov 2007 00:00:00 GMT My husband was on Nexavar for about 3 or 4 months, which I wrote on this sight last month and it was doing great.  Tumor Marker levels were coming  down and Cancer was shrinking.  Well, we went back this month and they told us that the drug was not working anymore.  His tumor markers are going back up and the cancer is growing again.  Now we do not know what to do.   He feels better and has none of the swelling that other people talk about.  They  tell us that they cannot tell us how much longet he has because liver cancer is not like colon cancer.  If any one has anything they can share with me I would greatly appreciate it.Thanks,Deb  MOOLOU Tue, 18 Dec 2007 00:00:00 GMT Hi, This is the first message I've found that is similar to my cancer and would love to know how you're doing and any info you have.  I had  2 tumors removed from the liver January, 2008 - stage II - at Westchester Medical Center.  The remaining liver is healthy.  Have followed up with oncologists from the Mayo Clinic and Memorial Sloan Kettering.  Both said not to take Nexavar at this time.  My 3 month check is April 1.  We'll see what happens.Hope all is well,Nancy   galhjerte Thu, 27 Mar 2008 00:00:00 GMT