CancerCompass message board discussion started by BubbaW on 11/11/2007 http://www.cancercompass.com/message-board/message/all,17885,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My husband's doctor & Mayo have been unable to diagnose his illness, and now are going to removed his extremely enlarged spleen, telling us that he may have lymphoma. I am confused because I am not seeing this as a symptom of lymphoma anywhere.  Is there anyone out there who has lymphoma, that is not affecting any of the other lymph glands except the spleen?  Is this possible?  They have ruled out T-cell granular lymphocytic leukemia, and the doctor says he doesn't think that Felty's syndrome would cause the spleen to be this enlarged and the white cell count to be down to 800.  I'm just wondering if anyone out there has seen this diagnosed as lymphona?  Thanks so much for any information. We are just so confused. BubbaW Sun, 11 Nov 2007 00:00:00 GMT Yes, my husband has Mantle cell lymphoma, diagnosed this past labor day weekend. His enlarged spleen is what took us to the hospital, no other lymph gland was involved at the time. Our white cell counts are huge, multiplying by 15-18,000 daily. We are at Mayo also.Blessings to you as you search.tacamodon tacamodon Sun, 11 Nov 2007 00:00:00 GMT I think you will find this website very informative. It has helped me understand my condition and how to deal with it since my diagnosis in 2004 with marginal zone lymphoma. http://www.lymphomation.org/type-mz.htm Please feel free to contact me if you are interested in the success I have had using only alternative treatments. Blessings Shemay On 11/11/2007 BubbaW wrote:My husband's doctor & Mayo have been unable to diagnose his illness, and now are going to removed his extremely enlarged spleen, telling us that he may have lymphoma. I am confused because I am not seeing this as a symptom of lymphoma anywhere.  Is there anyone out there who has lymphoma, that is not affecting any of the other lymph glands except the spleen?  Is this possible?  They have ruled out T-cell granular lymphocytic leukemia, and the doctor says he doesn't think that Felty's syndrome would cause the spleen to be this enlarged and the white cell count to be down to 800.  I'm just wondering if anyone out there has seen this diagnosed as lymphona?  Thanks so much for any information. We are just so confused. Shemay Mon, 12 Nov 2007 00:00:00 GMT  Shemay, I am interested in hearing what success you have had in alternative treatments. On 11/12/2007 Shemay wrote:I think you will find this website very informative. It has helped me understand my condition and how to deal with it since my diagnosis in 2004 with marginal zone lymphoma.http://www.lymphomation.org/type-mz.htm Please feel free to contact me if you are interested in the success I have had using only alternative treatments.Blessings Shemay On 11/11/2007 BubbaW wrote:My husband's doctor & Mayo have been unable to diagnose his illness, and now are going to removed his extremely enlarged spleen, telling us that he may have lymphoma. I am confused because I am not seeing this as a symptom of lymphoma anywhere.  Is there anyone out there who has lymphoma, that is not affecting any of the other lymph glands except the spleen?  Is this possible?  They have ruled out T-cell granular lymphocytic leukemia, and the doctor says he doesn't think that Felty's syndrome would cause the spleen to be this enlarged and the white cell count to be down to 800.  I'm just wondering if anyone out there has seen this diagnosed as lymphona?  Thanks so much for any information. We are just so confused.   Follicularm Wed, 26 Mar 2008 00:00:00 GMT