CancerCompass message board discussion started by prakruti on 11/14/2007 http://www.cancercompass.com/message-board/message/all,17966,0.htm Thu, 24 Jul 2008 00:00:00 GMT Thu, 24 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ hi i am mom and my two year old son have some breating and swelling problem its long story so i strat with begining , my son was six month old and up to six month he was very healty and no problem and one day he was seek and on same day i want india and in filght his health going more and more worst and he had a lot of fever and i reached india and i want direct hospital and then he was serious over their he got bad infection and in his throut he got feringal absebs and his throut was swelling from outside and then doctor did all test and all test report came nagative means he had very low wbc in his blood, and his kidney was not working whole body was full by water and he was going puffy and puffy and his lever was not proper place and his heart rate was going high and high , his blood pressure was not in contral, blood pressure was high and some time low and heart rate also some time high and high and some time go low and low its was very hard situation it was challange for doctor also and just me and my whole family pray god and they give lots of high antibiatic and for kidney doctor give lesix and for heat reat they gave adrina and lots of other medicine and on that time my son was on vantilater for five days and doctor gave lots of blood and there is no blood in his body so doctor give blood and other yellow things i dont rememer the name and then slowly slowly his situation comes in control and after one week we shaw that some liquid comes from his ear, doctor try to treat but it was not success and than after three weeks he was ok and on that time doctor put ngtube for feeding and one day he pull out ngtube and doctor and nursh try to put back but it was hard than in india doctor did swello study and found that its hard for my sun to swellow , doctor can not find any thing beacuse in india there is not high technology so they don't have camera so doctor cloud not found what's problem in my son throut but in india dr put feeding tube on my son tummy like gtube,but india also lot of sectrition came from my son mouth and we have to do lot's of suction from his mouth and every time we did dip suctions then when my son was stable i came in usa with my son and we live in chicago in il and we came ohar airport at april 2006 and direct we want in luthern general hospital in park ridge in il, and then in hopsital they did all study and test and dr david walner is my son ent doctor and dr walnar did broncoscopy and they found its swelling in throut and dr told me when my son grove on that time swelling will go away and esofugus will open, on that time also lots of suction i have to do and lots of sectrition came but after one month dr walnar did another broncoscopy in may-17-2006 on that day on broncoscopy time dr found my son had hard time to breath and in immergency dr had to put trach in my son throut then he was ok to breat and than after every six month dr did broncoscopy and every time dr told me its same swelling nothing improvement, and for second opinon we want children memorial hospital chicago down town and the dr name is dr holinger he was also very good dr and he did also broncoscopy and he told same thing in my son throut too much swelling and once under anathesia give and when my son sleep then everything in throut is calps and below throut dr can not see any thing same dr walnar and dr holinger same thing told me both but when my son was wakeup and on that time dr put scope through my son nose on that time dr can see every thing good dr told me when my son is awake on that time its looks good but under anathesia dr can not look any thing so dr also confuse right now dr did my son throut mri,ct scan and dr walnar did some biaopcy and biaopcy report says only inflamation in throutright now my son have gtube and trach and his progress is going very good and he is trying to speak some words and he understad every thing and he know three language he know sign language and english and out native language and he is very smart main important thing is my son is eating by mouth like thick food like thick liqid and pure and juice and drinking water and milk and supplement food we give through gtube rightnow and another important thing is we put PMV on trach whole day and no problem in breating only nap time we put humidity nose on his trach and all other time we put PMV so we feel that he is breating by his natural nose and when we put our hand near his nose we feel some air comes out side and speach therapy is coming my house two time a week and we give our lots of time to my son so he get better fastand other thing three weeks ago dr did my son ct scan and ct scan report came and dr told me in ct scan like radiologist talked with dr and and dr told me in my son throut there is scar tissue and some scar tissue in my son tongue also back of the tongue and dr told me he can not do any thing for that scar tissue , dr told me if he remove that scar tissue than its risk to going tobe a more scar tissue so dr told me just let him grove and in future he will thing some thing but right now nothing can doso any one know any mediciine or any treatment for that scar tissue i am always thing for my son and i want my son get better fast and i want he eat regular food as fast as possible and i want my son breat by his natural nose 100 % if any one have any solutions for this problem please email me or call me but please saw me some way so my and my son life going nicemy email address is --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- thank you    prakruti Wed, 14 Nov 2007 00:00:00 GMT