CancerCompass message board discussion started by williamt on 11/30/2007 http://www.cancercompass.com/message-board/message/all,18517,0.htm Fri, 05 Sep 2008 00:00:00 GMT Fri, 05 Sep 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/   I was diagnosed four years ago with prostate cancer...gleason 7-8...Had operation and found outide in seminal vesicles, but no further...Had radiation followed by two years of hormone treatments...I go every three months for PSA and interview, etc...Psa has been ok til the last visit in Nov ant test went up to .2...It has been over two years since I finished the hormone treatments...They are recommending I come back in Jan for another test and if it moves up again, then go back on hormone treatments...Does anyone have had similiar experience ???...VERY CONCERNED williamt Fri, 30 Nov 2007 00:00:00 GMT I can understand your concern and by the way, you can't be Gleason 7-8. It was either 7=3+4, 7=4+3 or 8=4+4. Depending on which one it was is truly a significant fact to know and understand. Regarding your specific question, I can't tell you that I have had that specific experience but if it's any comfort to you I know a well known prostate cancer doctor who has been on intermittent ADT for more than 25 years. Check out the charts in Strum's book showing the results of patients on ADT. They should be comforting to you. I think that you are doing the right thing to be aggressive in pursuing this. 0.2 isn't extremely high and doubling time is an important measure to determine (have you done that?). As I suggest to everyone who is at a decision point, I'd suggest that you contact one of the handful of prostate cancer experts who I've suggested over and over on these boards. Doctors like Strum, Scholz, Myers, Small, Logothetis, and Raghavan (and a few others) can discuss the absolute state of the art tests / therapies with you. You'll need to provide them with a detailed digest. My best wishes to you. Orionskye Fri, 30 Nov 2007 00:00:00 GMT   Thank you very much for your response... williamt Fri, 30 Nov 2007 00:00:00 GMT My father was in similar situation.  His surgery was in 1999 had it removed but back then they did not offer radiation.  Slowly is began to rise and they put him on hormone therapy every 3 months.  Which helped for about 6 years.  Then one day it was 22 and found out it had spread to the bones.  Now my father is doing an all organic diet and taking many supplements... (do a lot of research please..) PC is very dependent on a healthy diet - organic, no meat, mostly raw food etc.  DO research and do not ever do chemo or more radiation.  Just do a lot of research on alternative treatments for PC so you can be a step ahead and so it does not happen to you what happened to my dad.  Also, vitamin C IV therapy is very good. Sophia Smpal Thu, 06 Dec 2007 00:00:00 GMT   Thank you for that information... williamt Wed, 12 Dec 2007 00:00:00 GMT  On 11/30/2007 Orionskye wrote:I can understand your concern and by the way, you can't be Gleason 7-8. It was either 7=3+4, 7=4+3 or 8=4+4. Depending on which one it was is truly a significant fact to know and understand. Regarding your specific question, I can't tell you that I have had that specific experience but if it's any comfort to you I know a well known prostate cancer doctor who has been on intermittent ADT for more than 25 years. Check out the charts in Strum's book showing the results of patients on ADT. They should be comforting to you. I think that you are doing the right thing to be aggressive in pursuing this. 0.2 isn't extremely high and doubling time is an important measure to determine (have you done that?). As I suggest to everyone who is at a decision point, I'd suggest that you contact one of the handful of prostate cancer experts who I've suggested over and over on these boards. Doctors like Strum, Scholz, Myers, Small, Logothetis, and Raghavan (and a few others) can discuss the absolute state of the art tests / therapies with you. You'll need to provide them with a detailed digest. My best wishes to you.  williamt Mon, 14 Apr 2008 00:00:00 GMT  On 4/14/2008 williamt wrote: On 11/30/2007 Orionskye wrote:I can understand your concern and by the way, you can't be Gleason 7-8. It was either 7=3+4, 7=4+3 or 8=4+4. Depending on which one it was is truly a significant fact to know and understand. Regarding your specific question, I can't tell you that I have had that specific experience but if it's any comfort to you I know a well known prostate cancer doctor who has been on intermittent ADT for more than 25 years. Check out the charts in Strum's book showing the results of patients on ADT. They should be comforting to you. I think that you are doing the right thing to be aggressive in pursuing this. 0.2 isn't extremely high and doubling time is an important measure to determine (have you done that?). As I suggest to everyone who is at a decision point, I'd suggest that you contact one of the handful of prostate cancer experts who I've suggested over and over on these boards. Doctors like Strum, Scholz, Myers, Small, Logothetis, and Raghavan (and a few others) can discuss the absolute state of the art tests / therapies with you. You'll need to provide them with a detailed digest. My best wishes to you.    Since the Nov. result of .3, I have a series of .3 results and the last one was .23 here in April...They want to hold off on hormone treatments til there is some increase in the PSA....I have had a bone scan that was ok...  williamt Mon, 14 Apr 2008 00:00:00 GMT