CancerCompass message board discussion started by Cecea on 12/29/2007 http://www.cancercompass.com/message-board/message/all,19198,0.htm Wed, 23 Jul 2008 00:00:00 GMT Wed, 23 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My name is Linda.  I was diagnosed with liposarcoma of the stomach five years ago.  My tumor was quite huge.  I also lost my left kidney.  As a result of radiation I have had nerve damage and live with chronic pain every day of my life.  It has been a very difficult road.  I just recently had a reoccurrence of the same tumor in the same past radiated area which was a huge disappointment.  The tumor is also behind my stomach and is of a slow growing grade.  I am very discouraged as my surgeon can't resect it as he would have to take out my diaphragm and stomach.I hope someone will email me back and let me know your experience and where you went for help.  I need to stay within a sarcoma center.  I live in Seattle, WA.  God bless you.  Linda Cecea Sat, 29 Dec 2007 00:00:00 GMT  On 12/29/2007 Cecea wrote:My name is Linda.  I was diagnosed with liposarcoma of the stomach five years ago.  My tumor was quite huge.  I also lost my left kidney.  As a result of radiation I have had nerve damage and live with chronic pain every day of my life.  It has been a very difficult road.  I just recently had a reoccurrence of the same tumor in the same past radiated area which was a huge disappointment.  The tumor is also behind my stomach and is of a slow growing grade.  I am very discouraged as my surgeon can't resect it as he would have to take out my diaphragm and stomach.I hope someone will email me back and let me know your experience and where you went for help.  I need to stay within a sarcoma center.  I live in Seattle, WA.  God bless you.  Linda Hey Linda, I don't know if this message will get you... it has been awhile since you have been online I think. I am a 22 year old female.. with Myxoid Liposarcoma... I have never met anyone or even heard of anyone with Liposarcoma... my doctors act like I'm a weirdo for having it.. haha. I have had it since I was 14 years old. My first tumor was 22 pounds and took up my whole abdomen and pelvis.. Since then they have been coming back about a month after each surgery.. which I have had 4 surgeries... about to do my 5th very soon... They also had to remove my kidney for the same reason... I would love to hear what your prognosis was and get some details... I'm here to listen!!! Let me know!!  Sara SaraE318 Fri, 18 Jul 2008 00:00:00 GMT