CancerCompass message board discussion started by duran on 12/31/2007 http://www.cancercompass.com/message-board/message/all,19264,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ has anyone had a limb perfusion to there leg  duran Mon, 31 Dec 2007 00:00:00 GMT  On 12/31/2007 duran wrote:has anyone had a limb perfusion to there leg Hi, Duran!  Yes!  I had a limb perfusion on 3/18/03.  It was a difficult surgery, but I truly believe that it saved my life!  Are you planning to have this surgery?  What stage is your melanoma?  Let me know if you have any questions.  Lynn Lynn R. Sat, 05 Jan 2008 00:00:00 GMT Hi Lynn,I am having the ILP surgery in June.  Can you tell me a little about your post op experience.  Did you experience a lot of pain and/or swelling?   How long before you were on your feet again?  How long before you went back to work?   How is your leg today?Thank you for any information you're willing to share.  Julie  jam99 Mon, 05 May 2008 00:00:00 GMT On 5/5/2008 jam99 wrote:Hi Lynn,I am having the ILP surgery in June.  Can you tell me a little about your post op experience.  Did you experience a lot of pain and/or swelling?   How long before you were on your feet again?  How long before you went back to work?   How is your leg today?Thank you for any information you're willing to share.  Julie  elleniac Mon, 30 Jun 2008 00:00:00 GMT On 5/5/2008 jam99 wrote:Hi Lynn,I am having the ILP surgery in June.  Can you tell me a little about your post op experience.  Did you experience a lot of pain and/or swelling?   How long before you were on your feet again?  How long before you went back to work?   How is your leg today?Thank you for any information you're willing to share.  Julie  elleniac Mon, 30 Jun 2008 00:00:00 GMT On 6/30/2008 elleniac wrote:On 5/5/2008 jam99 wrote:Hi Lynn,I am having the ILP surgery in June.  Can you tell me a little about your post op experience.  Did you experience a lot of pain and/or swelling?   How long before you were on your feet again?  How long before you went back to work?   How is your leg today?Thank you for any information you're willing to share.  Julie  Dear Julie, Have you had the ILP yet? How did it turn out? I am told that would be a good treatment for me but a newer and much less invasive version is the Isolated Limb Infusion ( ILI ). Unfortunately it is only done in NY or Texas in the US and I live on the west coast so my Doc. is starting me on Aldara 5% cream for the multiple lesion on my leg. I hope your treatment went well. Ellen elleniac Mon, 30 Jun 2008 00:00:00 GMT On 6/30/2008 elleniac wrote:On 5/5/2008 jam99 wrote:Hi Lynn,I am having the ILP surgery in June.  Can you tell me a little about your post op experience.  Did you experience a lot of pain and/or swelling?   How long before you were on your feet again?  How long before you went back to work?   How is your leg today?Thank you for any information you're willing to share.  Julie  Dear Julie, Have you had the ILP yet? How did it turn out? I am told that would be a good treatment for me but a newer and much less invasive version is the Isolated Limb Infusion ( ILI ). Unfortunately it is only done in NY or Texas in the US and I live on the west coast so my Doc. is starting me on Aldara 5% cream for the multiple lesion on my leg. I hope your treatment went well. Ellen elleniac Mon, 30 Jun 2008 00:00:00 GMT Ellen,I had the ILP on Jun 19 so still recovering.   I have not heard about the ILI.  It's too early to tell if my ILP was successful as far as kicking back the cancer, but the surgery went well.  I'm still very tired and my leg is really sore but it's bearable.   Did they tell you the ILI was only done in Texas?  Or the ILP?  I am on the east coast but know of someone else who had ILP in California.   I wish you good luck with your treatments, whatever route you take.  Julie jam99 Tue, 01 Jul 2008 00:00:00 GMT Julie, Happy to hear your ILP went well and hope the Melanoma responds as well. How long were you in the hospital? Are you under 60 years old? The ILI is the procedure done in New York and Texas. I am starting treatment today with the ALDARA 5% cream while I am waiting for ILI to be available in California. Wishing you a speedy recovery. Ellen elleniac Tue, 01 Jul 2008 00:00:00 GMT On 7/1/2008 jam99 wrote:Ellen,I had the ILP on Jun 19 so still recovering.   I have not heard about the ILI.  It's too early to tell if my ILP was successful as far as kicking back the cancer, but the surgery went well.  I'm still very tired and my leg is really sore but it's bearable.   Did they tell you the ILI was only done in Texas?  Or the ILP?  I am on the east coast but know of someone else who had ILP in California.   I wish you good luck with your treatments, whatever route you take.  Julie elleniac Thu, 28 Aug 2008 00:00:00 GMT On 8/28/2008 elleniac wrote:On 7/1/2008 jam99 wrote:Ellen,I had the ILP on Jun 19 so still recovering.   I have not heard about the ILI.  It's too early to tell if my ILP was successful as far as kicking back the cancer, but the surgery went well.  I'm still very tired and my leg is really sore but it's bearable.   Did they tell you the ILI was only done in Texas?  Or the ILP?  I am on the east coast but know of someone else who had ILP in California.   I wish you good luck with your treatments, whatever route you take.  Julie Hi Julie- How are you getting along after your ILP? I am going to NY in Sept. for a consultation for the ILI with Dr. Brady at Memorial Sloan Kettering Cancer Center. It is not done on the west coast so it is a big undertaking for me. Hope the ILP worked for you. Ellen elleniac Thu, 28 Aug 2008 00:00:00 GMT Ellen,I am doing well.  It's been just over 2 months since my ILP surgery.  I'm going to physical therapy to regain strength and range of motion in my leg, but I'm walking and driving.  Some swelling, but not too bad.   Best of all, a recent PET scan showed that the main tumor in my leg has disappeared, so hopefully all the microscopic cancer cells are gone too.   I hope your appointment in NY goes well and you find the right solution.   Best of luck.   Julie jam99 Thu, 28 Aug 2008 00:00:00 GMT