CancerCompass message board discussion started by Darkstar00231580 on 1/4/2008 http://www.cancercompass.com/message-board/message/all,19388,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi,I have a friend who,s husband is suffering from kidney cancer over here in England and has been unable to get Sutent treatment for him as it is still under going trials here she has lobbied her MP and written to her local newspaper and written several letter to medical institutions all to no avail time is now growing short would anyone out there be able to offer her any advice please? Yours Sincerely                       Darkstar Darkstar00231580 Fri, 04 Jan 2008 00:00:00 GMT hi i am on sutent and have been for five cycles (four weeks on two weeks off)  my right kidney was removed five years last september but on my last scan the cancer had returned to my liver ,,lungs and adreanal gland ,,the one on the liver was 12cm and the other two were four each ,,since being on sutent they have shrunk by half  by the third cycle,,my oncologist got me sutent on the nhs citing it was the only drug that was available to keep me alive for longer ,otherwise i would die in about two years plus!! If i was you get the oncologist to write to the special needs department of the nhs in your area, i think they meet once a month to see if they will pay the cost,,if someone else in your area is getting it they cannot refuse your friend ,,,,unless it boils down to age as i am 55 ,,,,i am lucky i have sutent but i think it boils down to age and where you live ,,,,if you have no joy then tell your friend to move to east sussex for the sake of their life ,,,,,,,,all the best  and i hope they relent...! Michael g Thu, 14 Feb 2008 00:00:00 GMT