CancerCompass message board discussion started by Chicago on 1/31/2008 http://www.cancercompass.com/message-board/message/all,20509,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My boyfriend is 57 and in great health.  He had the HIFU procedure done in December 2007 in Japan with TURP.  It has been about 7 weeks since the procedure.  He has no problems with urinating or incontinence.  The only issue is that his penis still gives him pain inside.  Is that normal? We are awaiting a response from the doctor.He is also having problems with an erection, sometimes he gets a small one but when it does happen, it hurts.  Again it has been 7 weeks, will it get better? How long does it take to heal? And should he try ED medications?Eventhough we have researched a lot on the HIFU procedure, we really didn't think about the after effects so much. Anyone experience these symptoms?  Chicago Thu, 31 Jan 2008 00:00:00 GMT Chicago,I am doing some research on HIFU. Did your boyfriend use the Sonoblate 500 or the Ablatherm HIFU?  And why did he choose one over the other? Thanks.kiltimagh11 kiltimagh11 Mon, 04 Feb 2008 00:00:00 GMT  I ubnderwent a focal therapy / Hemi Ablation by Dr. Emberyon in teh UK.My cancer was focal, in the right hand side only (veried through MRI and saturated biposy - 55 samples). I could uninate the day after with no need for catheter and had sex with no pills after 10 days. I feel great. Still need to make sure I am claen, and it will take at least 6 months.  no pains at all at any stage. I am back at work now. MoniStar Sat, 09 Feb 2008 00:00:00 GMT Dr. Emberton uses SB500.He pioneedred the visually directed HIFU that had great results and now he pioneers teh focal teraphy/ Hemiabalation. MoniStar Sat, 09 Feb 2008 00:00:00 GMT  On 1/31/2008 Chicago wrote:My boyfriend is 57 and in great health.  He had the HIFU procedure done in December 2007 in Japan with TURP.  It has been about 7 weeks since the procedure.  He has no problems with urinating or incontinence.  The only issue is that his penis still gives him pain inside.  Is that normal? We are awaiting a response from the doctor.He is also having problems with an erection, sometimes he gets a small one but when it does happen, it hurts.  Again it has been 7 weeks, will it get better? How long does it take to heal? And should he try ED medications?Eventhough we have researched a lot on the HIFU procedure, we really didn't think about the after effects so much. Anyone experience these symptoms? here's my hifu /dr wheeler story:   I'm 55years old,married, diagnosed with a 3+3 Gleason and 6.1 psa in1998. Watchful waited til 2000 then began more active surveilance withintermittent hormone therapy--casodex and later casodex+tamoxofin.--and guided by Dr Wheeler and his chronic diseasemanagement protocol. This continued til April/May 2006. I was thentreated(HIFU) by Drs Wheeler and Suarez in PV Mexico in July 2006.After the procedure and hours later while back in my hotel with mywife,the suprapubic cathetar had somehow become dislodged during thenight and I went into urinary retention. I had to be rushed to the ERto re-insert the cathetar; this time a Foley.This cathetar stayed infor about 6 weeks.In November 2006, 90 day post procedure PSA was 0.7, all seemed to begoing well; obviously, no erections but hope prevailed. In January2007, after several trips to the ER for bladder retention, I underwenta laser surgical procedure to relieve the strictures by anotherurologist, though not schooled with HIFU. Then in March/April 2007 PSAbegan to rise again. Dr Wheeler performed a MRIS and determinedcancerous cells remained in the apex of the prostate; however,capsuleand neurovascular bundles intact. We returned to PV in July 2007 torepeat the HIFU, and months later PSA continue to rise. In November2007 another MRIS, and this time also a PETSCAN, both essentiallyunremarkable.Prior to HIFU I was completely POTENT with little to no urinarysymptoms. Prior to HIFU I occasionally took 100mg of viagra for thatextra assurance. Since HIFU, I take all 3 of the ED meds, exercisewith VED, and ran the course of bimix, trimx, quadmix penileinjections, with little success, and many issues, ie, penile damagefrom the injections and my internist telling me stories of reportedvision loss from normal dose ED meds, and no data yet for guys takingsuch high doses.I remain hopeful, despite 2 other medical doctors, with no dog in thisfight, telling me my nerves were irreparablly fried during both HIFUs.Today, my last PSA was 6.3 and though low in number, significant thatit is rising again. I'm back on casodex+tamoxofin, impotent andleaking urine.On the one hand,Dr Wheeler assures me potency willreturn. On the other hand, Dr Wheeler also assured me 2 years ago HIFUwould CURE my cancer without potency and urinary complications. I'mnot at all happy with my HIFU results. For me HIFU has been a lifealtering disaster. However, I'm not prepared to condemn the technologybecause of my bad result. new hifu support group: http://groups.yahoo.com/group/hifu_survivers/join " target="_blank" rel="nofollow">http://groups.yahoo.com/group/hifu_survivers/join hifu group member stat summary:When was your initial diagnosis? 1998What was your PSA going in? going in to 1st HIFU 1.1What was your Gleeson going in? 3+3 =6Any other treatments? intermittent hormonal casodex+tamoxofinHow much did it cost you (USD) (my initial treatment was 20K and the2nd treatment 10K)Did they use the Sonoblate? yesDo you know/have any idea how long the probe was in (and/or otherdata)? no idea   http://groups.yahoo.com/group/hifu_survivers/join " target="_blank" rel="nofollow">http://groups.yahoo.com/group/hifu_survivers/join     raynj Mon, 14 Apr 2008 00:00:00 GMT