CancerCompass message board discussion started by quickdraw on 2/7/2008 http://www.cancercompass.com/message-board/message/all,20722,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Has anyone here dealt with chondrosarcoma. My sister in law was diagnosed yesterday.  There is not much information on the internet and little or no info on nutrition or alternative or complimentary therapies.  She was so shocked at the word cancer, she is not quite sure all that her doctor told her.  She did understand that she will have a short round of chemo and then surgery and that it looks contained to one area of her shoulder.  Any information will be greatly appreciated.  I joined this board back in mid 2007 when my husband was diagnosed with stage IV colorectal cancer and everyone has helped so very much.  Just as he is entering remission, his sister is hit with this news.  Please help if you can.  We are just starting to research this particular cancer and there just doesn't seem to be as much information as other cancers.Please pray for my sister in law (Tammy).Thank youMelinda quickdraw Thu, 07 Feb 2008 00:00:00 GMT  On 2/7/2008 quickdraw wrote:Has anyone here dealt with chondrosarcoma. My sister in law was diagnosed yesterday.  There is not much information on the internet and little or no info on nutrition or alternative or complimentary therapies.  She was so shocked at the word cancer, she is not quite sure all that her doctor told her.  She did understand that she will have a short round of chemo and then surgery and that it looks contained to one area of her shoulder.  Any information will be greatly appreciated.  I joined this board back in mid 2007 when my husband was diagnosed with stage IV colorectal cancer and everyone has helped so very much.  Just as he is entering remission, his sister is hit with this news.  Please help if you can.  We are just starting to research this particular cancer and there just doesn't seem to be as much information as other cancers.Please pray for my sister in law (Tammy).Thank youMelindaMelinda, My husband, 61, was diagnosed with chondrosarcoma on his upper right arm in September 2007.  He has been treated at University Hospita, Indianapolis, In.  His surgeon was Dr Daniel Wurtz, orthopaedic/oncology.  He was great.  He saved Dennis' arm and inserted a metal prosthesis.  He saved his use of his hand and fingers even though he probably will never have use of his right shoulder.  His cancer metastesized to his lungs and he has been undergoing chemo therapy.  So far, nothing has really worked like they want but he is strong and his oncologist, Dr Daniel Rushing, University Hosp, is not giving up.  He has been on Adryomyacin & Platinol, Gemcitibide, Taxatere and Adryomyacin, and Platinol with Rapamune (anti-rejection med) but none of these have given the results they are hoping for.   If you have any other info, please let me know.  We are trusting God but searching the medical field too.  Sandy tootsie1947 Fri, 29 Feb 2008 00:00:00 GMT  On 2/7/2008 quickdraw wrote:Has anyone here dealt with chondrosarcoma. My sister in law was diagnosed yesterday.  There is not much information on the internet and little or no info on nutrition or alternative or complimentary therapies.  She was so shocked at the word cancer, she is not quite sure all that her doctor told her.  She did understand that she will have a short round of chemo and then surgery and that it looks contained to one area of her shoulder.  Any information will be greatly appreciated.  I joined this board back in mid 2007 when my husband was diagnosed with stage IV colorectal cancer and everyone has helped so very much.  Just as he is entering remission, his sister is hit with this news.  Please help if you can.  We are just starting to research this particular cancer and there just doesn't seem to be as much information as other cancers.Please pray for my sister in law (Tammy).Thank youMelindaMelinda- My 33 year old son-in-law was diagnosed with Chondrosarcoma in Jan 2007 and had surgury which replaced his knee and part of his femur. Chemotherapy and radiaton was not recommended so no further treatment was done. A tumur was recently found in his lungs and his doctor from MDAnderson in Houston felt there was nothing further that they could do for him. At this point he is looking into several more progressive/alternative treatments- Cancer Treatment Centers of America in Philadelphia, Dr Burzensky Clinic in Houston, and Dr. Truitt (a Rice University graduate) from Life Force Research Hospital operating in Nuevo Laredo, Mexico.  These are places that have been recommended by family and friends. Please note that the recommendations were from people who had success at these clinics but not from Chondrosarcoma.In a recent email to my daughter these other places have been suggested--Subj: Alternative Cancer Informationwww.cancerdecisions.comwww.beating-cancer-gently.com www.annieappleseedproject.orgwww.cancure.orgwww.healingcancernaturally.com/budwig_protocol.htmlwww.gothealth.info/index.phpwww.naturalcancertreatments.comhttp://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html If your grand-nephew hasn't done any research into alternative cancer treatments, he'll find there's a HUGE body of information on the internet.  I suggest he begin with the first web site above, that of Dr. Ralph Moss, a PhD rather than an MD, whose mission in life is to follow and evaluate both conventional and alternative cancer treatments.  You can order reports from him on specific types of cancer (he has one on chronosarcoma, I checked), and arrange personal consultations with him after purchase of such a report.  Very well balanced, very thorough scientific evaluations from this source, and he also has a newsletter.  The second website is Bill Henderson's.  Bill is the author of the book Cure Your Cancer, Your Guide to the Internet.  I bought the hard copy, but it's also available in a downloadable format.  He also sends out an e-mail newsletter with regular updates at no charge. Bill is an older man whose first wife died of cancer.  His goal in life now is to help others dealing with cancer to avoid the trauma his wife suffered, and to help them get better or well using alternative treatments.Here's another organization I just found which looks as if it would be helpful: http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/  It's for young adults, 15 - 35, who have been diagnosed with cancer. It was started by a young man who discovered he had chronosarcoma while he was in college.Most of the books I have are specific to breast cancer, but I recommend the following which are not:New Cancer Therapies, the Patient's Dilemma by Penelope WilliamsGerman Cancer Therapies by Dr. Morton WalkerI Beat Cancer:  50 People Tell You How They Did It from Awareness PublishingNatural Strategies for Cancer Patients by Russell L. Blaylock, MDand the one must-read that will make your blood boil:Politics in Healing: The Suppression and manipulation of American Medicine by Daniel HaleyI feel so strongly about this book that I have given copies to all my health care providers.  It is about the political suppression of effective cancer cures in this country for the benefit of the pharmaceutical companies.  This is fascinating, horrific reading about greedy people, corporations, and bureaucrats, and certainly important to read if anyone needs convincing that the people ultimately in charge (not the ones they're working with directly--often they're dedicated, caring folks who don't know the score either) do not have ones best interests in mind. The energizing thing about this book is that it will open your eyes and make you more optimistic that there are cures out there that conventional medicine doesn't know about/disregards.   Like you we could not find much helpful information on the internet when we first heard the diagnosis.  We are continuing to look for help. I hope this information can be of some help.   Paula Kaelyn211 Fri, 21 Mar 2008 00:00:00 GMT  This is a rare type of sarcoma and there are some wonderful supportgroups on the web.  Sarcoma should always be treated by a sarcomaspecialist preferably at a sarcoma center. You can find all theinformation you need at the Sarcoma Alliance and you can ask questionson their message board. http://sarcomaalliance.org/ The Adult Bone Cancer Survivors also offers information about the disease:http://abc-survivors.net/  There is some excellent information and resources located at the Liddy Shriver Iniative about this disease also. They include links to a few support groups and more info about the disease:http://liddyshriversarcomainitiative.org/Sarcomas/chondrosar Hope this is helpful to you,Patty RMom to Nathan11.13.87 - 2.11.08    On 3/21/2008 Kaelyn211 wrote: On 2/7/2008 quickdraw wrote:Has anyone here dealt with chondrosarcoma. My sister in law was diagnosed yesterday.  There is not much information on the internet and little or no info on nutrition or alternative or complimentary therapies.  She was so shocked at the word cancer, she is not quite sure all that her doctor told her.  She did understand that she will have a short round of chemo and then surgery and that it looks contained to one area of her shoulder.  Any information will be greatly appreciated.  I joined this board back in mid 2007 when my husband was diagnosed with stage IV colorectal cancer and everyone has helped so very much.  Just as he is entering remission, his sister is hit with this news.  Please help if you can.  We are just starting to research this particular cancer and there just doesn't seem to be as much information as other cancers.Please pray for my sister in law (Tammy).Thank youMelindaMelinda- My 33 year old son-in-law was diagnosed with Chondrosarcoma in Jan 2007 and had surgury which replaced his knee and part of his femur. Chemotherapy and radiaton was not recommended so no further treatment was done. A tumur was recently found in his lungs and his doctor from MDAnderson in Houston felt there was nothing further that they could do for him. At this point he is looking into several more progressive/alternative treatments- Cancer Treatment Centers of America in Philadelphia, Dr Burzensky Clinic in Houston, and Dr. Truitt (a Rice University graduate) from Life Force Research Hospital operating in Nuevo Laredo, Mexico.  These are places that have been recommended by family and friends. Please note that the recommendations were from people who had success at these clinics but not from Chondrosarcoma.In a recent email to my daughter these other places have been suggested--Subj: Alternative Cancer Informationwww.cancerdecisions.comwww.beating-cancer-gently.com www.annieappleseedproject.orgwww.cancure.orgwww.healingcancernaturally.com/budwig_protocol.htmlwww.gothealth.info/index.phpwww.naturalcancertreatments.comhttp://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html " target="_blank" rel="nofollow">http://tuberose.com/Root_Canals.html If your grand-nephew hasn't done any research into alternative cancer treatments, he'll find there's a HUGE body of information on the internet.  I suggest he begin with the first web site above, that of Dr. Ralph Moss, a PhD rather than an MD, whose mission in life is to follow and evaluate both conventional and alternative cancer treatments.  You can order reports from him on specific types of cancer (he has one on chronosarcoma, I checked), and arrange personal consultations with him after purchase of such a report.  Very well balanced, very thorough scientific evaluations from this source, and he also has a newsletter.  The second website is Bill Henderson's.  Bill is the author of the book Cure Your Cancer, Your Guide to the Internet.  I bought the hard copy, but it's also available in a downloadable format.  He also sends out an e-mail newsletter with regular updates at no charge. Bill is an older man whose first wife died of cancer.  His goal in life now is to help others dealing with cancer to avoid the trauma his wife suffered, and to help them get better or well using alternative treatments.Here's another organization I just found which looks as if it would be helpful: http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/ " target="_blank" rel="nofollow">http://www.ulmanfund.org/  It's for young adults, 15 - 35, who have been diagnosed with cancer. It was started by a young man who discovered he had chronosarcoma while he was in college.Most of the books I have are specific to breast cancer, but I recommend the following which are not:New Cancer Therapies, the Patient's Dilemma by Penelope WilliamsGerman Cancer Therapies by Dr. Morton WalkerI Beat Cancer:  50 People Tell You How They Did It from Awareness PublishingNatural Strategies for Cancer Patients by Russell L. Blaylock, MDand the one must-read that will make your blood boil:Politics in Healing: The Suppression and manipulation of American Medicine by Daniel HaleyI feel so strongly about this book that I have given copies to all my health care providers.  It is about the political suppression of effective cancer cures in this country for the benefit of the pharmaceutical companies.  This is fascinating, horrific reading about greedy people, corporations, and bureaucrats, and certainly important to read if anyone needs convincing that the people ultimately in charge (not the ones they're working with directly--often they're dedicated, caring folks who don't know the score either) do not have ones best interests in mind. The energizing thing about this book is that it will open your eyes and make you more optimistic that there are cures out there that conventional medicine doesn't know about/disregards.   Like you we could not find much helpful information on the internet when we first heard the diagnosis.  We are continuing to look for help. I hope this information can be of some help.   Paula   Kalimac Tue, 25 Mar 2008 00:00:00 GMT