CancerCompass message board discussion started by Witts on 2/11/2008 http://www.cancercompass.com/message-board/message/all,20850,0.htm Sat, 19 Jul 2008 00:00:00 GMT Sat, 19 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hello Everyone Out There~~~My 77 year old husband has this RARE leukemia~~~T-cell large granular lymphocytic leukemia. It was diagnosed two years ago, but probably had been "smoldering" undetected for awhile. In fact, after looking at a lab report from a hospital for something else 10 years ago, his lymphocytes were HIGH, and neutrophils LOW then, but not to the EXTREME  that they are now....Lymphocytes are 80 which is much higher than the normal 10-45 range; absolute neutrophils have been staying at .6, not the normal range of 1.6-9.3. We DEFINITELY CHOOSE THE ALTERNATIVE, NATURAL METHOD of fighting this condition! A naturopath recommended high doses of vit.C, plus D, E, calcium, tumeric, artiminisin, maitake mushroom,& MSM. He also inquired about the ORIGINAL  Essiac tea, and has been taking 4oz of that 3 times a day.  He has functioned well for 2 years, after having a severe bout of pneumonia, which prompted tests that then finally proved the RARE form of leukemia.In November, he was FINE...but came down with a bad cold after visiting some friends. That is gone, but he is very fatigued and lying down much of the time....TRYING to regain his energy.  Have seen a few ideas on this site and shall do some MORE RESEARCH.All we can say is: NO CHEMO!!! It will only KILL the good factors he has left. And we are going to KEEP TRYING! Shall watch for more info on this site....Thanks everyone...."The Old Fogey" and Newt Witts Mon, 11 Feb 2008 00:00:00 GMT Thank you for this post. You have mentioned a few supplements that I am not familiar with and I will do some research on them and perhaps add them to my own arsenal. I too chose to use only alternative medicine for my non Hodgkin's and have experienced great results. Did your naturopath recommend the high dose Vitamin C as an intravenous treatment or just orally? I did the Intravenous once a week for a few months along with 10grams daily orally but now do the intravenous only every six weeks or so as maintenance. I still take 10grams(10,000mg) orally daily and if I begin with the sniffles or have any other sign that I might be coming down with something then I boost my intake to tolerance which for me personally can be between 30,000 to 40,000mg daily. It only takes a day or so and voila! all symptoms disappear. Isn't it such a relief and comfort to know from our own experience that cancer can be controlled and even cured using these gentle natural substances. I only wish more people would have faith and give it a try. Best regards On 2/11/2008 Witts wrote:Hello Everyone Out There~~~My 77 year old husband has this RARE leukemia~~~T-cell large granular lymphocytic leukemia. It was diagnosed two years ago, but probably had been "smoldering" undetected for awhile. In fact, after looking at a lab report from a hospital for something else 10 years ago, his lymphocytes were HIGH, and neutrophils LOW then, but not to the EXTREME  that they are now....Lymphocytes are 80 which is much higher than the normal 10-45 range; absolute neutrophils have been staying at .6, not the normal range of 1.6-9.3. We DEFINITELY CHOOSE THE ALTERNATIVE, NATURAL METHOD of fighting this condition! A naturopath recommended high doses of vit.C, plus D, E, calcium, tumeric, artiminisin, maitake mushroom,& MSM. He also inquired about the ORIGINAL  Essiac tea, and has been taking 4oz of that 3 times a day.  He has functioned well for 2 years, after having a severe bout of pneumonia, which prompted tests that then finally proved the RARE form of leukemia.In November, he was FINE...but came down with a bad cold after visiting some friends. That is gone, but he is very fatigued and lying down much of the time....TRYING to regain his energy.  Have seen a few ideas on this site and shall do some MORE RESEARCH.All we can say is: NO CHEMO!!! It will only KILL the good factors he has left. And we are going to KEEP TRYING! Shall watch for more info on this site....Thanks everyone...."The Old Fogey" and Newt Shemay Mon, 11 Feb 2008 00:00:00 GMT Hi, I take olive leaf extract with c and coQ10, it is the thing to use. look up my other messages and learn more. God bless, Longbow longbow Sat, 23 Feb 2008 00:00:00 GMT Hello, Thank you for posting this information.  My mother, who is 70, was diagnosed a few months ago too.  Her blood has been monitored for 10 years due to this problem but they recently gave it a name because she had many infections & mouth sores this year & her neutrophils were going even lower .3?. Her doctor recently tried Methotrexate (sp?) with a steroid protesone (pardon my spelling ) that didnt do anything.  There were also some use of Neuprogen in between.  Right now her neutorphil count is going up but her lymphocites are too high & her red blood cells are now too low.  So, she was referred to Stanford Cancer Center here in California.  They recommend trying another immune suppressing treatment - Cyclosporine but it seems they dont really know if it will work - only 5-10 cases of this T-cell LGL have been treated successfully in the last 5 years there.Anyway, this post was a breath of fresh air but wondering how do you go about finding a good naturopath? casherrie Tue, 13 May 2008 00:00:00 GMT