CancerCompass message board discussion started by Sandy from Vaca on 2/17/2008 http://www.cancercompass.com/message-board/message/all,21032,0.htm Wed, 08 Oct 2008 00:00:00 GMT Wed, 08 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Ok, it started out back in 1996, where I had been getting very tired, etc.   Legs would swell, feet & a little bit in the stomach.I was diagnosed having Hep C, with Cirrhosis.  At that time, I was told there were no treatments, no cures, to live every day to it's fullest.Here I am Feb. 2008.  I am worse, yes, alot worse.  I retain fluids like crazy..............right now I am 40 pounds of extra fluids.  Have severe abdominal pain, wheezing, flu type symptoms always.  So it is so much worse.  I have gone through every procedure & test possible for something like this.  I was told that I'd be placed on the liver transplant list, but may die waiting.  I have outlived the 2 years they said that I had left, that is for sure.  But, I'm so much worse.  I can't do every day things like others do.  Don't even want to get up out of bed, let alone make it.  Shopping for food, yuk, I don't even want to eat.So, now every 6 months I have an endoscopy done.  Once a month blood tests, for cancer, platelets, liver functions, etc.  And now I have bleeding from the esophageaus, rectum.  So then that means periodically I have to have platelets & transfusions to build it back up.  Sometimes I start getting depressed over all of this..........as it keeps getting worse & I feel worse.  Now, I found a pretty good doctor, but it is just starting all of this over again.  CTScans, bloodwork, endoscopy, colonoscopy, changing meds., they say that more than likely I would end up with liver cancer, as the psorhosis is so bad.  Anyone out there in a similar situation?  I just don't know how much more my body can go through.Thanks so much for reading my scarey letter.  Hope noone has to go through this awful illness of Hep C/Cirrhosis.God Bless,  Sandy Woodruff Sandy from Vaca Sun, 17 Feb 2008 00:00:00 GMT