CancerCompass message board discussion started by Wilsherr on 2/17/2008 http://www.cancercompass.com/message-board/message/all,21044,0.htm Fri, 05 Dec 2008 00:00:00 GMT Fri, 05 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Is there anyone out there who is caring for someone who has been through at least 19 rounds of Sutent?If so, please tell me of your experiences.Thank You Wilsherr Sun, 17 Feb 2008 00:00:00 GMT  On 2/17/2008 Wilsherr wrote:Is there anyone out there who is caring for someone who has been through at least 19 rounds of Sutent?If so, please tell me of your experiences.Thank YouMy husband is beginning his 15th round of sutent this week. I just wondered if you are finding sutent effective after 19 cycles. My husband's doctors advise that it is rare to go beyond 18 cycles with effective results.  After 14 cycles my husband is still active, puttering in the garden and traveling. Thank you.Sharencec Sharencec Tue, 19 Feb 2008 00:00:00 GMT Hi:I have just started my 31st course of sutent.Obviously it has worked for me.I take 37,5 mg.and the 3 tumors I have are all considerably smaller than when I started. The most dangerous one in the lung cannot be seen right now. I and the Drs. don't know how long this can go on. Meanwhile I have a decent quality of life, raise alot of money for cancer research and will not let this insidious disease beat me.If you want or need more information letme know. Good Luck!!!!!! Toddlap Thu, 21 Feb 2008 00:00:00 GMT  On 2/21/2008 Toddlap wrote:Hi:I have just started my 31st course of sutent.Obviously it has worked for me.I take 37,5 mg.and the 3 tumors I have are all considerably smaller than when I started. The most dangerous one in the lung cannot be seen right now. I and the Drs. don't know how long this can go on. Meanwhile I have a decent quality of life, raise alot of money for cancer research and will not let this insidious disease beat me.If you want or need more information letme know. Good Luck!!!!!! I have a bottle of 50 mg sutent in my pantry but opted for cancer treatment in the bahamas instead, At the imunnetherapy cancer clinic in freeport grand bahama island, I did 8 weeks there will have ct in march and go back for 2 more weeks treatment on april 11, If I am not doing any better when I come home I will start the sutent, What side effects do you suffer from? I really am confused about taking it, maybe you have some answers Thank you so muchCarol bobtail Thu, 21 Feb 2008 00:00:00 GMT Hi:All I can tell you is the experiences i have had ,how I reacted and what has happened since I have made some critical decisions.I took 50 mg for about 4 courses and with agreement with my Drs. and Nurses, it was determined that I would have great difficulty tolerating 50 mg, so my dosage was changed to 37'5 about 2.5 yearsago. So first, I'm still doing well on a lower dosage. Second,the side effects can be rough especially inthe late stages of the course. Fatigue, diaherrea, sore mouth feetand thyroid problem that had to be corrected and was. While I wouldn't be honest with you if I said there wasn't discomfort,I have not spent one day in bed and am able bto function although with more diffificulty towards the end of the course.I know little about immuology and thus can't respond to that. But 3and a half years on sutent, lower dosage===at least i am  here to tell you how I feel. Let me know how and what you are doing.. Toddlap Thu, 21 Feb 2008 00:00:00 GMT Hi Sutent survivors,It is great to read about you going on your 19th or 30+ th cycles with Sutent. My mom has RCC with mets to the bones all over. She is currently taking 50mg Sutent and is now on her 3rd week of her 1st cycle. The 3rd week blood test results show a sudden plunge in blood platelets from 250 to 83, this is very worrying. And platelets are still dropping. Did you experience this? Do you know if she shd get off Sutent or continue at a lower dosage?Thank you.  chryld Wed, 27 Feb 2008 00:00:00 GMT