CancerCompass message board discussion started by sweetbabegirl on 2/24/2008 http://www.cancercompass.com/message-board/message/all,21301,0.htm Sat, 30 Aug 2008 00:00:00 GMT Sat, 30 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Well things did not go well!!We met with the surgeon on Wed. to do the PET scan before the surgery on Thursday. The PET came back bad. Seems his liver lit up like a christmas tree. I was and still am shocked. He (the surgeon), stated he wished he would have been the one to do the original scan. He can't believe that it was clear, and now it's not. He said with the EC cancer, usually it would not spread during chemo and radiation. He truly feels the cancer was already there, but mis-diagnosed. So, instead of wondering about the EC cancer, I am sitting here puzzled and wondering if anyone else has had EC cancer and liver cancer?They sent us home saying there is NO treatment. If thats the case, can anyone tell me a time frame? Is he going to start going down hill quickly? I know that there is only one person that knows when our time comes, but just an approximate time line would assure us that all our *ducks are in a row*.Our children and grand children live 2000 miles away, and if we knew or had any clue how fast this diease is gonna takeover, we'd want to go and spend as much time as we can with them.Thank you for any answers I can get. And as always.....you all are in my prayers. Diana sweetbabegirl Sun, 24 Feb 2008 00:00:00 GMT Hi,  My husband was diagnosed with EC and mets to the liver in Nov. 2004.  He passed away in Nov. 2006.  The chemo and radiation got rid of the tumor in his esophagus, mostly he battled the mets to the liver, which is ultimately what ended his struggle.  Keep fighting and get another opinion, if necessary.  Don't let them tell you to go home and die!!  God Bless and keep you strong. :-) allpoos Mon, 25 Feb 2008 00:00:00 GMT Please don't give up, get your husband to one of the nationally recognized cancer centers, here is their web page:  http://www.nccn.org/members/network.asp My hubby was originally diagnosed in July with stage three, then we went immediately to Moffitt Cancer Center in Tampa, thinking he would get the surgery. They did another PET scan and diagnosed him as Stage 4, with mets to the distant lymph nodes. He also lit up like a Christmas tree, all over his body in his lymph nodes. So, surgery was NOT an option. We were dazed, shocked, desperate, all the things you are feeling. BUT, Moffitt found a local  board certified cancer treatment center, and they ordered 19 weeks of aggressive chemo. He is now totally in remission, no "lights" on the PET scan, and his esophageal tumor is gone. We know that it will eventually return, probably in the liver, but there are so many new treatments available, at that point, radiation, PDA, etc. So, DON'T STOP FIGHTING, get your hubby to one of these centers ASAP and get treatment from a facility that knows what to do. Hope this helps, good luck and stay strong!!!   caregivercher Mon, 25 Feb 2008 00:00:00 GMT Hi:  My name is Lynn and my son, Robbie (aged 34) was diagnosed with Stage IV EC adenocarcinoma also with mets to the liver.  Robbie was told that he would have about 3 weeks without treatment and 3-4 months WITH treatment.  Robbie chose to fight the disease agressively and he had brachytherapy ( a type of radiation) which fully killed the tumour in his esophagus.  He had many mets in the liver (about 62 lesions).  Robbie underwent chemotherapy with Carboplatin, Epirubicin and 5FU.  Carboplatin and Epirubicin were administered in the chemo outpatient unit at the Juravinski Cancer Centre every 3 weeks and the 5 FU was a 24/7 infusion which he carried around in a little pouch.  Robbie went through this treatment for 16 weeks and then went on an oral drug (Capecetabine), which did not help him and then tried Docetaxel which did not help and then did trial drugs, and an hepatic artery embolization and then finally RFA before the cancer in his liver grew too big.  Robbie remained at home but during the 18 months that he lived - he did many things - he camped, fished, went motor boat tubing and lived life to the fullest.  Robbie only took strong pain killers about 10 days before he died.  He was up and about on the morning that he passed away at age 35.Please remember to NEVER GIVE UP HOPE.  The only one who knows when our time to go is God and He is not telling any of us.  My son told me to live one day at a time and I am still doing that.  I would definitely ask for a second opinion rather than just going home to die.  Surely they could give some chemotherapy to allow more time.I will keep you in my prayers.Hugs to you and your loved onesLynn Momlynn Mon, 25 Feb 2008 00:00:00 GMT