CancerCompass message board discussion started by leeanner9 on 2/26/2008 http://www.cancercompass.com/message-board/message/all,21338,0.htm Thu, 24 Jul 2008 00:00:00 GMT Thu, 24 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My boyfriends mother was recently diagnosed with soft tissue sarcoma.  She has six large tumors and they say she has stage IV.  The doctors have already started her on a high does of chemo to hopefully start killing the cancer cells and shrinking the tumors.  Does anyone have any information on this type of cancer?  Thank you leeanner9 Tue, 26 Feb 2008 00:00:00 GMT  On 2/26/2008 leeanner9 wrote:My boyfriends mother was recently diagnosed with soft tissue sarcoma.  She has six large tumors and they say she has stage IV.  The doctors have already started her on a high does of chemo to hopefully start killing the cancer cells and shrinking the tumors.  Does anyone have any information on this type of cancer?  Thank you hello i had 3 tumors since 2005 and i had a large dose of chemo also..if you or she need a support buddy im here i have been doing this at crowford long for awhile...i had a grade 3 sarcoma on my left shoulder.3 times in 18 months..  --Message edited by CancerCompass staff. 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Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- & eric eric1969 Tue, 25 Mar 2008 00:00:00 GMT  On 2/26/2008 leeanner9 wrote:My boyfriends mother was recently diagnosed with soft tissue sarcoma.  She has six large tumors and they say she has stage IV.  The doctors have already started her on a high does of chemo to hopefully start killing the cancer cells and shrinking the tumors.  Does anyone have any information on this type of cancer?  Thank you I found out in Jan 2002 that I had Sarcoma.  October 2003 they said I would live less than a year.  I have been very agressive with treatments for years.  I have gone for 2nd and 3rd opinions when needed.  I have been very positive throughout the whole process which is very important.  Feel free to ask me any questions you want.  I have been through almost everything good and bad.  Tracey TRACEY038 Sat, 19 Apr 2008 00:00:00 GMT hello, and thank you for your message.  i was wondering what sort of treatments have you had.  my husband has angiosarcoma of the heart and i am hoping they (cleveland clinic) have more than one treatment plan in mind.  joycel Fri, 23 May 2008 00:00:00 GMT i had radiation twice a day for six weeks with my first cancer then two weeks later i had surgery and that was it.  Then a year later I found out it was in my lungs.  I started with Adriamicyne and that worked well but after i had my lifetime doseage and stopped it the cancer came back.  After that I had Ifosfamide and Mesna and I had an allergic reaction to it twice.  Then I had Doxorubicin, Taxotere, DTIC, and Gemzar.  All of them worked well for a while then it stopped working.  So after awhile I tried a procedure called PhotoDynamic Therapy that is amazing (only 4 places in the US do it though) and they were able to get 80% of the cancer but it really should have been followed by some chemo to kill the rest cause after the treatment again the cancer came back.  I have also done Radiation to my chest when I was having major pain and it helpped alot.I am currently on Sutant and it seems to be working well.  The doctors are really excited about the way I have been feeling and lack of symptoms I am having and my lungs sound better than they have in years.  I will find out in a month when I have my scans again.  And the Sutant is great cause it is a pill I just take at home every day 28 days on and 14 days off.I wish both of you luck and let me know if there is anything I can do to help you. TRACEY038 Mon, 26 May 2008 00:00:00 GMT  On 2/26/2008 leeanner9 wrote:My boyfriends mother was recently diagnosed with soft tissue sarcoma.  She has six large tumors and they say she has stage IV.  The doctors have already started her on a high does of chemo to hopefully start killing the cancer cells and shrinking the tumors.  Does anyone have any information on this type of cancer?  Thank you  How is your Boyfriend's Mother?  Did you find outinfo on the Sarcoma? Tracey  TRACEY038 Mon, 26 May 2008 00:00:00 GMT I was diagnosed in 2000 with a neurosacral sarcoma(soft tissue), I was  given no hope...the mass was (of course in my sacrum) was  on top of a nerve sjeath(covering) and also around the base of my spine and as you know nerves do not need to be cut, , so surgery was not an option as it would cause me not to be able not walk....the dr had to call around the country because no one wanted to touch it...finally at UAB Birmingham,  Alabama,  dr took my case only to tell me ......no hope.....they said the only thing that they would try was some really strong radiation....lots of prayer.....I was supposed to be bleeding, was supposed to spread to my lungs and brain....after those 36 treatments and lots of prayer.....its been 8 years......I believe that I am a living miracle........ missnurse Wed, 16 Jul 2008 00:00:00 GMT