CancerCompass message board discussion started by KK345 on 2/27/2008 http://www.cancercompass.com/message-board/message/all,21380,0.htm Mon, 13 Oct 2008 00:00:00 GMT Mon, 13 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My mom was diagnosed in July '07 with stage IV at sloan kettering and they remained hopeful that chemo would work. They always acknowledged that it couldn’t be operated on however they could hinder the growth. at this point we are extremely unhappy with the results we are getting from another hospital. She got admitted last week for blood clots in the lungs and leg.   We have people coming in an recommending hospice etc and couldn't understand why so we requested ALL of her medical records and found plenty of information that wasn't presented to us or her by her attending physician . We knew from the beginning that "Seeds" had dispersed in her stomach lining from the beginning. they treated her and the tumors stopped in growth they stayed the same which was expected with the discovery of the additional tumors they started her on the 5- chemo in hopes of stopping that one from spreading. The doctor claims the initial chemo failed although it stopped the spreading and the tumor hasn't grown. Has this happened to anyone else in regards to them saying the chemo has failed even though it has stopped the growth? She's starting to feel as though they have her dead and burried before she's even gone (the doctors).   KK345 Wed, 27 Feb 2008 00:00:00 GMT  On 2/27/2008 KK345 wrote:My mom was diagnosed in July '07 with stage IV at sloan kettering and they remained hopeful that chemo would work. They always acknowledged that it couldn’t be operated on however they could hinder the growth. at this point we are extremely unhappy with the results we are getting from another hospital. She got admitted last week for blood clots in the lungs and leg.   We have people coming in an recommending hospice etc and couldn't understand why so we requested ALL of her medical records and found plenty of information that wasn't presented to us or her by her attending physician . We knew from the beginning that "Seeds" had dispersed in her stomach lining from the beginning. they treated her and the tumors stopped in growth they stayed the same which was expected with the discovery of the additional tumors they started her on the 5- chemo in hopes of stopping that one from spreading. The doctor claims the initial chemo failed although it stopped the spreading and the tumor hasn't grown. Has this happened to anyone else in regards to them saying the chemo has failed even though it has stopped the growth? She's starting to feel as though they have her dead and burried before she's even gone (the doctors).  Hello...This is Leonard form Alamo, California.Before getting into all the questions, lets deal with the first line item.I and I'm assuming others are wondering if you are talking about Bile Duct Cancer and/or a Klatskin Tumor in the Hepatic Ducts.  If so, stage IV is very serious. And if diagnosed in July 2007, she is very lucky to discussing this issue in February 2008. It sounds like her doctors are not telling you and her the full story.  Sometimes doctor's don't have the bed side manners to deal with telling their patient just how serious things are.Stage IV in any cancer is serious and the out come in not pleasant.There are many folks on this message board that can help...but we need the fully story.  Don't make us guess the problem. Yes I know you listed youe message on the bile duct section, but you didn't say say your mom was diagnosed with this specific cancer.I'm sure there are many of us that can input some information that may help, but we need to be sure what the issues are.Take Care...Leonard PS...Sloan Kettering is a very good medical center...Chemo and/or Radiation is not a cure...it may prolong life, but the quality of life may be hampered. Again, diagnosed with Stage IV approximately 7 months ago is strange. My wife was diagnosed with stage IIB Klatskin Tumor in the Hepatic Bile Duct System and given 6 weeks to live...6 weeks, not 6 or 7 months.     Solutions Wed, 27 Feb 2008 00:00:00 GMT She has a Klatskins Tumor that cannot be operated on however seeds had spread from the beginning when she was diagnosed into the lining of the intestine there is a tumor currently developed there as well causing fluid build up in her stomach which they didn't want to drain at moffitt however when she got admitted to the local hospital they drained anyway because it was pressing on her diaphragm making it near impossible for her to breath. Sloan kettering had given her a fairly good prognosis that she wasn't going to die within the next few years.Sloan Kettering was an awesome hospital and i wish we could have kept her there she was very happy with the information they provided her and the willingness of the doctors to do all they could however, we live in Florida for the most part and keeping her in NY was proving to cost thousands of dollars. She did have surgery at Moffitt Cancer Center a few years back and liked the doctors there as well. We had her transferred there however, she isn't happy with the doctor and the information we saw in her records once we got a hold of her medical records thus far there were things in there that were not talked about previously.  KK345 Thu, 28 Feb 2008 00:00:00 GMT She has a Klatskins Tumor that cannot be operated on however seeds had spread from the beginning when she was diagnosed into the lining of the intestine there is a tumor currently developed there as well causing fluid build up in her stomach which they didn't want to drain at moffitt however when she got admitted to the local hospital they drained anyway because it was pressing on her diaphragm making it near impossible for her to breath. Sloan kettering had given her a fairly good prognosis that she wasn't going to die within the next few years.Sloan Kettering was an awesome hospital and i wish we could have kept her there she was very happy with the information they provided her and the willingness of the doctors to do all they could however, we live in Florida for the most part and keeping her in NY was proving to cost thousands of dollars. She did have surgery at Moffitt Cancer Center a few years back and liked the doctors there as well. We had her transferred there however, she isn't happy with the doctor and the information we saw in her records once we got a hold of her medical records thus far there were things in there that were not talked about previously. KK345 Thu, 28 Feb 2008 00:00:00 GMT