CancerCompass message board discussion started by Mediator on 2/27/2008 http://www.cancercompass.com/message-board/message/all,21383,0.htm Thu, 20 Nov 2008 00:00:00 GMT Thu, 20 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hello Friends:Time to start another one.  Who has had the ear ringing?  Is this from residual damage to the temporal lobe or ear canal?  What did any of you do?  Does it go away?  My husband was up all night going crazy.Thanks, Kara Mediator Wed, 27 Feb 2008 00:00:00 GMT I've got ringing and high frequency hearing loss. My docs say it's from the Chemo. I think Cisplatin, but it might have been theErbitux? They told me it was a 50/50 shot that things would go back tonormal. Toward the end of treatment I was almost deaf as a post :) If I wasn't looking right at whoever was talking to me, all I heard was blah-blah-blah.The good news is that the hearing loss got better. I waseven fitted for hearing aids that I ended up not getting. The bad newsis the ringing is still there. Sometimes it's bad, other times I don'tnotice it. It's just one more thing he'll get used to. Mine seems tocome and go depending on how much fluid build up I have. Looking at thebig picture, I think it will become a non-issue. I wish him luck. ThreePutt Wed, 27 Feb 2008 00:00:00 GMT Hi Kara Have had this tinntinitus before chemo but it can be caused by the chemo.  I have heard -- and you shoulld check with the doc before trying anything -- that lipoflavinoids MAY give temporary or permanent aid.  Might be worth checking into. Good luck   gj Gregj Wed, 27 Feb 2008 00:00:00 GMT Thanks again for the responses.He did have some ear wax build up too.  Ear wax removal liquid seemed to provide some relief.  I just think it is worse at night from laying down.Kara   Mediator Wed, 27 Feb 2008 00:00:00 GMT I have exactly the same as ThreePutt. It IS from the cisplatin-a published side effect. I was told it's permanent-and it has not abated at all for me. ENT told me permanent because it's nerve damage that cannot repair itself. I get use to the ringing, but sometimes when I'm quiet & contemplative, I focus on it and it nearly drives me batty. I have to have people looking at me while talking, or cannot make out all the words. Lots of phone conversations are hard. When I watch a movie or TV-seldom--if they whisper, I cannot make it out at all. Lots of DVD's seem muffled, talking not clear. I'm always asking my husband: WHAT did they just say?   We miss alot this way! :)  Gayle gayleann Wed, 27 Feb 2008 00:00:00 GMT I've got it too, I had Cisplatin for my chemo and the oncologist told me it might happen. I'd like to know if anyone has had success with the lipoflavinoid route or not. micromisterphone Wed, 27 Feb 2008 00:00:00 GMT