CancerCompass message board discussion started by hubby on 2/28/2008 http://www.cancercompass.com/message-board/message/all,21443,0.htm Thu, 24 Jul 2008 00:00:00 GMT Thu, 24 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi everyone, My wife has had a leiomyosarcoma spread to her lungs, small nodules to both lungs.  our doctor at M.D. Anderson wants to wait for 6 weeks to test again and see how fast the cancer is growing than treat her with chemo.  The tumor that was removed 2 years ago was suppose to be High-grade 10cm by 13cm.  Is there anyone going thru something simular??gee hubby Thu, 28 Feb 2008 00:00:00 GMT Hi,I am a leiomyosarcoma patient myself. I don't have any mets to the lungs, but I was wondering of you were aware of the leiomyosarcoma listerve. It's a rare cancer, so it can be helpful to have a more specific list. Just in case you're interested, the link to subscribe is:http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?SUBED1=l-m-sarc lovedogs Thu, 28 Feb 2008 00:00:00 GMT  On 2/28/2008 hubby wrote:Hi everyone, My wife has had a leiomyosarcoma spread to her lungs, small nodules to both lungs.  our doctor at M.D. Anderson wants to wait for 6 weeks to test again and see how fast the cancer is growing than treat her with chemo.  The tumor that was removed 2 years ago was suppose to be High-grade 10cm by 13cm.  Is there anyone going thru something simular??geeI have had ULMS spread to the lungs and have had 2 surgeries, and 2 RFA's (Radio Frequency Ablation's).  I still have more now, but are too small to surgically remove or to use RFA.  For me, I would always opt for the surgical option, as it is the best and really only way to get rid of the tumors.  However, I am very aggressive in my treatment.  But, I am still here...nearly 15 years.  I would want to know how big the tumors are, where they are located, and how they are going to take them out.  My second surgery, it was minimally invasive and done through my side.   In my experience, it has been me that has pushed early on to have the tumors removed as opposed to watching them.   Of course, it depends on the person's health, etc.  It is so hard to know what to do.  I am my own manager and it is so daunting and scary.  With such a rare and complicated disease, I rely on my own instincts and the care and guidance of my doctors'.  Good luck. warrior1 Sat, 26 Apr 2008 00:00:00 GMT Hi I have just been told I have leiomyosarcoma in both lungs and in the skin on my head. Orginally I had it three and half years ago in my uterus. My treatment in Swansea has been terrible as no one seemed to know what to do with me. I have just visit the Royal Masden in london and feel much happier. I am going to have 2 lots of chemo followed by a scan to see if chemo is working on the cancer. Hope every thing goes well for your wifeRegardsAnne anneb23 Tue, 08 Jul 2008 00:00:00 GMT