CancerCompass message board discussion started by JaneMGUSuk on 2/28/2008 http://www.cancercompass.com/message-board/message/all,21447,0.htm Tue, 07 Oct 2008 00:00:00 GMT Tue, 07 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi everyone,Today I got the results of my bloods and bone marrow biopsy. Letsjust say the news was not good.My IGG is 4480 (44.8 UK)My bone marrow is 25% plasma cells and a small amount of myelomacells have been seen in the marrowMy Electrophoresis light chain M component is 25g/lMy albumin is 34MY B2 microglobulin has not been measured but is being done today, Idont know when I will get the results.basically my haemo has scheduled an MRI scan for Tueday 4th March andis having a video conference with another specialist cancer unit inour area on Thursday morning 6th March and I have to go back to theclinic at 4.10 British time on Thursday to find out if Chemotreatment needs to be started. My Haemo is 80% sure that I needtreatment and said that if its not smoldering myeloma then its fullblown Multiple Myeloma, but until she has had the video conferenceand discussed my case with the oter specialists, she can't give me a100% diagnosis. She has said that I definately no longer have MGUSand that I have progressed. A full skeletal survey is being doneafter the MRI as soon as my aemo can get an appointment for me at thex-ray department.I will keep up my healthy eating and my supplements and keeppositive, life dont stop because you get a bit of bad news, and I amsure as he*! I am not going to be miserable. I dont yet think itssunk in yet though as I feel numb, but oh well never mind.Love to you all and I will update you all again on thursdayBest wishesLove Jane x JaneMGUSuk Thu, 28 Feb 2008 00:00:00 GMT Hi Jane!  Sorry to hear your news, but it was probably what you expected, wasn't it?  Your positive attitude is admirable, for being angry, depressed or upset will not help at all!  The skeletal survey - I've had half a dozen - is not painful, unless you have problems with your spine - then it is hard to lie flat on the table for the x-ray, but it can be done slowly.  You are lucky to have such a large multidisciplinary team working for you, for it gives you the top minds looking at you scans and blood work before decisions are made!  Hang in there Jane -- there is a long journey ahead with many 'novel' drugs now being added to the usual group of medications which have been used in the past giving patients a much longer life probablility.  We'll be here for you -- best wishes always, Cath poppy/cath Fri, 29 Feb 2008 00:00:00 GMT How long did you have MGUS before you got these lab results?  The reason I am asking is because I was diagnosed with MGUS in Dec. 2007 and I am 60 years old and also have myasthenia gravis.  I would like to wish you the best in your journey and keep up your spirits no matter what.Sharon T  SharonT Fri, 29 Feb 2008 00:00:00 GMT Dear Jane: We can only pray for something good to come for you and you get the treatment you need. It is devasting when one is told.  Look at all the natural things you can to help yourslef. Take care MMSOn 2/28/2008 JaneMGUSuk wrote:Hi everyone,Today I got the results of my bloods and bone marrow biopsy. Letsjust say the news was not good.My IGG is 4480 (44.8 UK)My bone marrow is 25% plasma cells and a small amount of myelomacells have been seen in the marrowMy Electrophoresis light chain M component is 25g/lMy albumin is 34MY B2 microglobulin has not been measured but is being done today, Idont know when I will get the results.basically my haemo has scheduled an MRI scan for Tueday 4th March andis having a video conference with another specialist cancer unit inour area on Thursday morning 6th March and I have to go back to theclinic at 4.10 British time on Thursday to find out if Chemotreatment needs to be started. My Haemo is 80% sure that I needtreatment and said that if its not smoldering myeloma then its fullblown Multiple Myeloma, but until she has had the video conferenceand discussed my case with the oter specialists, she can't give me a100% diagnosis. She has said that I definately no longer have MGUSand that I have progressed. A full skeletal survey is being doneafter the MRI as soon as my aemo can get an appointment for me at thex-ray department.I will keep up my healthy eating and my supplements and keeppositive, life dont stop because you get a bit of bad news, and I amsure as he*! I am not going to be miserable. I dont yet think itssunk in yet though as I feel numb, but oh well never mind.Love to you all and I will update you all again on thursdayBest wishesLove Jane x  mmsurvivor Sat, 01 Mar 2008 00:00:00 GMT