CancerCompass message board discussion started by Jackm on 5/28/2005 http://www.cancercompass.com/message-board/message/all,2148,0.htm Sat, 30 Aug 2008 00:00:00 GMT Sat, 30 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My brother has a grade IV brain tumor (glioblastoma multiforme). It was removed Nov. 2003 and he received radiation and chemo but a recent MRI found that it came back. He will get more surgery and chemo wafers or infusion. He is also interested in suppliments and diet. A friend of his suggested glyconutrients. They are "essential sugars" that come from the Aloe Vera plant. Mannatech corp seems to be the main manufacturer of this product. Every time I read something good about them it is usually followed by ordering information. That is all I know about this product so far. Does anyone know anything about glyconutrients? Or can anyone offer any other suggestions for diet and supplements. I promised to help him in this aspect of his fight. Thank you! Jack in Texas Jackm Sat, 28 May 2005 00:00:00 GMT My brother has an inoperable high grade brain tumor and has been stable since 7/03. He took RM-10 by Garden of Life USA and still does. My father-in-law was given a few months, he has colon cancer with inoperable mets to the liver. He has been taking RM-10 and is doing exceptionally well. I'll attach some links for you to research. It is very similar to the Mannatech products but much cheaper. RM-10 is glyco nutrients. Other names are 8 miracle sugars, super carbs, etc. All I know is I have 2 family members doing exceptionally well who are taking RM-10 in addition to treatments prescribed by their doctors. http://www.findarticles.com/p/articles/mi_m0ISW/is_2003_June/ai_102372193 http://www.findarticles.com/p/articles/mi_m0ISW/is_2002_April/ai_84211157 http://www.findarticles.com/p/articles/mi_m0ISW/is_2002_June/ai_86387616#continue http://www.findarticles.com/p/articles/mi_m0ISW/is_2002_August-Sept/ai_90794449#continue http://www.crohns.net/Miva/education/testimonial_rosemenlowe.shtml http://www.crohns.net/Miva/education/articles/RM10clinicaltrials.shtml Howdee Tue, 31 May 2005 00:00:00 GMT Hi,I'm sorry to hear about your brother's brain tumor and father-in-law's colon cancer. I am a minister and throughout my career I am always dealing with illnesses in varying degrees among the church members. It's never an easy thing for families to go through. Glyconutrients do seem to work in a variety of ways. They are non-specific, that is, they work generally in a number of areas. I am a Mannatech associate. My wife and I(who had blood clots on her lungs and I have hep c) have responded extremely well. These products, while they work, are not intended to replace a physcian's care. My website is www.FamilyHealthAlternatives.com and a very good informational site is www.Glycoscience.org I hope that things go well for you and yours. Jim Jimtex Wed, 01 Jun 2005 00:00:00 GMT MY friend, Dave Eastman, was diagnosed with a Glioblastoma Multiforme tumor in April, 2004, and told that surgery, radiation and a very toxic chemotherapy would only extend his life 12 months, maximum. Dave took the glyconutrient complex along with that standard treatment. Three months after diagnosis an MRI showed no trace of cancer. It was the same at six, nine and 12 months. He has been very healthy all the way through, verified by excellent blood work. A doctor commented, "You have a very strong immune system!" Dave just smiled. For months Dave has been doing heavy manual work and loving it! He and his wife, Deborah, are now reaching out to others with the glyconutrients. I will gladly put anyone in touch with them. An excellent resource on this science is the new book, THE HEALING POWER OF 8 SUGARS (ISBN 0-9737317-0-2, a symposium by 18 medical experts. It is a 'must read' for anyone concerned about wellness in general, and cancer in particular. Mannadad Thu, 02 Jun 2005 00:00:00 GMT I have been reading extensively on glyconutrients and cancer because a few of my relatives have various forms of brain caner and I am quite concerned I am at risk. The best resource I have found is a site called Glyconutrients Reference. The web address is http://www.glyconutrientsreference.com. There is a section on medical conditions and a page on cancer and glyconutrients. Check it out, hopefully you will find it useful. Ajaib Sun, 12 Jun 2005 00:00:00 GMT Hi MannaDad, Just saw your message about your friend Dave and how well he is doing. You said you could provide a contact for him. I have a co-worker who has undergone surgery this week for an aggressive type of brain cancer. It could be very beneficial to talk to your friend. Mannahope Wed, 20 Jul 2005 00:00:00 GMT Hi Eugene, My mom was diagnosed with Glioblastoma Multiforme 4 about 2 weeks ago. She is only 60 years old and up until now in perfect health. Please send me information in order to get in touch with your friends Dave and Deborah as I would like to get my mother on this nutrional regimen as soon as possible. Thank you so much, Dana B. Hopefully Mon, 15 Aug 2005 00:00:00 GMT Does anyone know if these glyco. can be added to a feeding tube? my brother is in stage IV stomach cancer and cannot swallow anything. Also does it matter from which company these come from? thanks, patty Tupperwarepatty Fri, 21 Oct 2005 00:00:00 GMT Hi, My father is in advanced stage of brain cancer and he is undergoing radioteraphy Can anyone let us know whome to contact particularly to get Glyconutriant treatment for the above case. Please treat the matter urgent Thanks Rajkyel Fri, 28 Oct 2005 00:00:00 GMT Could you please let us know where your friend got the glyconutrient complex, is it a tablet? did he consult any doctor? please help Rajkyel Fri, 28 Oct 2005 00:00:00 GMT Don't know if anyone ever got back with you on the glyconutrients, but they can be ordered through a company called Mannatech. They have a patent on the product Ambrotose. Ambrotose is a powder which can be mixed in juice or tea (any liquid, I just find it tastes better in juice or tea). I have taken it for over a year now and it gave me more energy and stopped my tumors from growing. (I had a pancreatic tumor which metastisized to my liver in 2002.) My doctors can't believe how well I'm doing. It's fundamental nutrition that is no longer present in today's diet. Doctors are skeptical of the product, but I know too many people who take glyconutrients that have healed or improved their health with these products. (Cancer, arthritis, headaches, MS, etc.) Their just nutritional products, not herbs or medicines. I hope this information helps. Kimgee Wed, 28 Dec 2005 00:00:00 GMT My 17 year old nephew has glioblastoma multiforme and we are getting ready to start him on glyconutrients. Would you please tell me what this person took and how much he took. Would they be willing to talk to us? We would appreciate anything you can help us with. Thanks. Claire38 Claire38 Mon, 23 Jan 2006 00:00:00 GMT I do not know if you found the answer to your question but I am also a caner patient and I am on glyconutrients. My nathuropath told me that a I should take in on month what a normal person takes in a year. However I am 53 years old, I take 24 units (measured with the minispoon they provide) a day; 6 units with each meal. If you want to talk to the nathuropath that recommended me this tratment I cand provide you with the phone number, just let me know. My number is --- Message edited by CancerCompass staff: for personal protection, phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. I have no only been taking the glyconutrients, I had surgery and I have switched to an 8o% vegetarian diet. I feels the glyconutrients have positively impacted my post-surgery recovery. I hope this helps. Maldon Gonzalez Tue, 24 Jan 2006 00:00:00 GMT Sorry I made a mistake with my phone number, it is --- Message edited by CancerCompass staff: for personal protection, phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. Maldon Gonzalez Tue, 24 Jan 2006 00:00:00 GMT Please put me in touch with your friend Dave.Thanks.Nancy Claire38 Thu, 26 Jan 2006 00:00:00 GMT Yes, you can put these products in a feeding tube. This is done all the time. Mannatech is the only company that has a patent on their product. A lot of companies claim to have a good product but they don't have all eight essential sugars like Mannatech. If you don't have all eight it won't work. Nancy Claire38 Thu, 26 Jan 2006 00:00:00 GMT Please put me in touch with your friend Dave. Nancy Claire38 Thu, 26 Jan 2006 00:00:00 GMT Dave and Deborah E. are very generous about taking phone calls and answering e-mails about glyconutrients. Their phone number is --- Message edited by CancerCompass staff: for personal protection, phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. Their e-mail address is --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- When you contact the Eastmans make sure you ask them how you can get a copy of The Cancer Video by Dr. Reg McDaniel. It is very helpful in explaining why the glyconutrients are so effective. God bless you, Eugene F. --- Message edited by CancerCompass staff: for personal protection, phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Mannadad Sat, 28 Jan 2006 00:00:00 GMT Yes, you can put the glyconutrients through a feeding tube. Mix the ambrotose with water. I keep in touch with a friend that had Lymphoma cancer and she swears by glyconutrients. If you want info about her and what she did go to http://www.sugarscanheal.com/ and use the contact link to get more info on her and additional glyconutrient info and testimonials. Thedee Tue, 31 Jan 2006 00:00:00 GMT This is Jack In Texas who started this tread originally. I am sorry to report my brother passed away in November 2005 - about 1 year after he was diagnosed. I just wanted to report back because this thread I started seems like it is becoming a launching point for people in the Mannatech/Glyconutrients business. I cannot recommend them however. My brother did use them but it didn't make a difference in his case. He was a true believer and was introduced to them by someone in the church community. I'm not sure why but it seems this product has a religious tie. Not that there is anything wrong with that. I wish you all success in your efforts to fight this horrible malady. Many do get well, especially with the help of good doctors such as the ones at MD Anderson in Houston where my brother had surgery (twice) to remove the aggressive tumor. But he just wasn't one of the lucky ones. So don't give up. My brother never did and I am so proud of him for that. Good luck to you all, Jack Jackm Thu, 16 Feb 2006 00:00:00 GMT Claire38- Interested to see if your nephew did start using glyconutrients along with tradionial medicine and how he is coming. I have been recently diagnosed with brain cancer and approached about the use of micronutrients. Thanks Freckles Mon, 27 Mar 2006 00:00:00 GMT So far you are the only success story I have read about reading glyconutrients and brain cancer. Can you provide an update and more details. Thanks. I am considering using them if my 2 mont MRI does not show tumor growth reduction. Freckles Mon, 27 Mar 2006 00:00:00 GMT Please give me the contact info for Dave & Deborah E. I have a friend dying of cancer who requires some strong encouragement to use ambrotose. He used it early on and stopped for some reason. Thanks & may God bless you! Clif G.--- Message edited by CancerCompass staff: for personal protection, phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- please call if you can. Eagleone Mon, 15 May 2006 00:00:00 GMT Hello Nancy H., I am very sorry to hear about your nephew, but I am very pleased that he will be getting the glyconutrients. Now, let me gently say that your question reveals your (understandable) 'drug' thinking. All pharmaceutical drugs are toxic (poisonous) and must be taken in a very controlled way. Otherwise, the harm exceeds their benefit, which all too frequently happens -- too often disastrously. But the glyconutrients are foods found i n nature. All of us functions because there are glycoproteins (glyconutrients on protein stems) protruding off the surfaces of every one of our trillions of cells. (Inside each cell glyconutrients are also at work.) This makes glyc obiology as old as life itself. All functions depend on cell-to-cell communication that is fa cilitated by various combinations of glyconutrie nts on cell surfaces, especially the immune system. But this all tends to break down when their is a deficiency of glyconutrients (It has been determined that there are at least eight.) We get an abundance of glucose, and those not intolerant of dairy products get galactose, but the remaining six are rare or absent. This i s a huge problem and seems to be the basis of all chronic diseases. Now, coming back to your question of how much a particular person needs, the answer is simply lots, especially when there is a disease condition. Dr. H. Reg McDaniel M.D. has pioneered in the science o f glycobiology for 20 years. He has developed a protocol for people with intensive needs, but he would freely acknowledge that it is only a guideline. When it come s to foods, you simply have to consume enough to meet the body's needs -- and that calls for trial-and-error. Fortunately, like all food s, the glyconutrients are safe at just about a ny quantity. I hope this is helpful. For your encouragement there is an excllent recovery reported at this web site <http:// www.coonrapidsherald.com/2004/April/ 29Holton.html>. Sincerely, MannaDad Mannadad Wed, 17 May 2006 00:00:00 GMT Dear Jack, Over the past couple of years I have lost some family and friends due to cancer. THis led me to research alternative therapies. I too came accross glyconutrients. Unfortunately they decided to only pursue traditional cancer treatments and did not fare well. I have heard some remarkable stories of recovery from various types of cancers by others using glyconutrients combined with traditional treatments. I found this web site glyconutrients and cancer This website called disease education is very informative on various types of cancer and other disease conditions. This site uses educational videos on alternative therapies including glyconutrients that are very easy to understand and demonstrates how these alternative therapies promote health. This site lists scientific validation in simple termanology and shows you exactly how these types of nutrients help people with cancer. Hope this helps http://www.diseaseeducation.com/diseases/Cancer.php Robertk Fri, 26 May 2006 00:00:00 GMT I also have someone that is recovering from lung cancer and i want to approach her about glyconutrients to strengthen her immune system, but first would like to give her some contacts of people that have used glyconutrients in conjuction with traditional medical therapy, can you help. Fellow mannatech assoc. Helping Heart Fri, 02 Jun 2006 00:00:00 GMT Hi Tina, Please contact me at the following and I would be happy to supply the information and various people that your friend needs to speak with. We can exchange email address's and this way we can contact eahc other a lot easier. Cellular Health Plan Glyconutrients and Cancer Robertk Sat, 03 Jun 2006 00:00:00 GMT hi jack, how are you i willing to help you with understanding glyconutrients via tel: or email me at: --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- micos from melbourne Melbourne Wed, 21 Jun 2006 00:00:00 GMT It sounds like you are receiving many e-mails. I hope you do not mind responding to one more. My son has been in this battle since last August. Would you tell me what doseage you took of ambrotose and what your protocol was and is. Anything that can help us win this battle would be grately appreciated. Thank you, b.a.a. Baainsearch Fri, 07 Jul 2006 00:00:00 GMT Clair38, could you please let me know if you did start your nephew on Glyconutrients back in January. I am ready to start my husband who also has a GBM IV and who is failing quickly so I would like to know if you had any success and at what dosage you administered it? Thank you Sheila711. Sheila711 Tue, 22 Aug 2006 00:00:00 GMT Yes, I had a client that was brain dead and they put them in his feeding tube. It worked great, you just have to make sure there is enough fluid so it doesnt get clogged.We had to send a tape on Dr. Reg Mcdaniels on Adult stem cell before the Dr. would allow it, but all Dr.s are different. Maybe yours wont care. Mannatech is the only company that can legal sell them. They have the patent in 20 Countries for having all 8 essential nutrients together in one product. Here is the number to a nurse that works for this company. She can help you. Cherl Shine- 1 800 371 2194 Thanks Gayla..... Mannagirl Thu, 26 Oct 2006 00:00:00 GMT Hello, How is your friend Dave? My dad has just been diagnosed with GBM as well, he is only 54. Could you tell me what brand of glyconutrients that he takes and what was the other standard treatments? Thank you Lorig Sun, 12 Nov 2006 00:00:00 GMT Hello, My father who is 54 years old has just been diagnosed with GBM, I am going to purchase glyconutrients for him. I have done extensive research on these and I believe this and a number of other supplements will help him. You mentioned that you could provide info.to contact Dave Eastman? Could you maybe give me an email address? Regards, Lori Lorig Thu, 16 Nov 2006 00:00:00 GMT Hi Maldon, My dad is 54 and he was just diagnosed with GBM? Can I have the name of the naturopathic doctor who recommened the glyconutrients to you? I have done research on these and am puchasing some for my dad, among other supplements as well. But I need a 'doctor' to explain to my father the benefits and I can't seem to find one that recommends glyconutrients? Thank you Lorig Thu, 16 Nov 2006 00:00:00 GMT Hi again...how can we obtain contact info for the Eastmans if it is blocked on this site? Lori Lorig Thu, 16 Nov 2006 00:00:00 GMT Hello Jack, How is your brother? Did you try the glyconutrients. My father has just been diagnosed with GBM and I also just ordered him some. Did you use any other supplements? Lori Lorig Sat, 18 Nov 2006 00:00:00 GMT Hello Lori, I am sorry to hear about your father. My brother passed away one year ago. His battle lasted about a year as well. He did try the glyconutrients but they had no affect on his cancer I am sorry to say. I just want you to know this so you continue to pursue all avenues to help your father beat this. Good luck to you! Jack Jackm Tue, 21 Nov 2006 00:00:00 GMT HI Jack, I am sorry to hear about your brother. My dad is not doing well suddenly, he has alot of swelling right now and I am not sure if the doctors will keep giving him steroids. This has got to be one of the worst ways to die, I am so scared he will slip into a coma or have a stroke. God bless you! Lori Lorig Tue, 21 Nov 2006 00:00:00 GMT My husband (34 now) was diagnosed with GBM 3years ago. He was done wonderful until 3 weeks ago. We had an MRI and it showed growth on the other side. WOW he declined within 2 days it was unbelievable. I only heard about glyconutrients a month ago and could not afford them at the time. Once we got the news I used the money we were saving for Christmas to buy it for him. It was been 2 weeks and I haven't seen any positive change on him. If anything he is getting worse. He can no longer eat without choking and he is regressing to his childhood. I will continue to give him the glyco nutrients, because I just have a wonderful gut feeling about it. He tells me daily that he is going to beat this and right now that is all I need to hear. Continue to keep me update on everyones progress. Positive thoughts can be the strongest medicine. Jessica Cancersucks Sat, 25 Nov 2006 00:00:00 GMT My father has just gotten the results back from his MRI and his tumour has grown back in the same area. He has alot of swelling and can barely walk. The doctor has told my mom that he has about a month to live. I have not had a chance to give him the glycos. yet. I think maybe it might be too late. My father is hurting so bad, he just wanted more time to have some quality of life back. He was hoping that the chemo. and radiation would work, but it has only made it worse. I am devastated and cannot beleive how fast he has deterioted. My father has a will to live but he is so weak right now I am not sure he will be able to fight. Sice my dad's new tumour is inoperable I am looking into Gamma Knife radiosurgery has anyone gone through this?? Lorig Sat, 25 Nov 2006 00:00:00 GMT God bless you too and your Dad and good luck! They tried Gladiel chemo wafers on my brothers last surgery without success. Don't know anything about the gamma knife. This is a very aggressive kind of cancer as you know. We were all wishing we let him skip the last chemo and radiation treatments because they ended up not working anymore and they really dragged him down too. So you do what you can and tell him you love him about 100 times a day. Jack Jackm Wed, 29 Nov 2006 00:00:00 GMT Jessica,   As with chemo it can take 3 to see improvement with glyconutrients.  A good resource site for Ambrotose is: http://www.nutritionalreview.com/Mannatech-Ambrotose.php A good place to read up on glyconutrients is: http://www.myglyconutrientstore.com/Glyconutrient-Info.php  Hope this helps.  Clark   Zctglassman83 Tue, 02 Jan 2007 00:00:00 GMT I have been taking glyconutrients for a year now from the same company you were referred to. There are so many people getting amazing results from the products you should truly look more into it. The study of glyconutrients called glycobiology has won 4 nobel prizes in the medical field and is predicted by MIT to be among the top 10 technologies that will change the world.There is alot of validation for these products out there. Here are some sites to help you. For validation and info go to sweetvibranthealth.com and for testimonials go to glycostory.com/aaron.Feel free to email me at --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- . I would love to help in your quest.God Bless!!.  Glycoaaron Fri, 26 Jan 2007 00:00:00 GMT So how is it working for YOU? You mentioned that you have been taking them for a year and then immediately start giving us a bunch of information about the awards and how many others are getting results. What kind of cancer were you diagnosed with and how have the glycos helped? How do you know it was the glycos?Good luck to you and God bless.  Jackm Fri, 26 Jan 2007 00:00:00 GMT I have studied up on glyconutrients. They claim there have been scientific studies done on them but I have searched many many databases for any journal articles whatsoever on glyconutrients or ambratose but found nothing other than a passing mention. As a healthcare professional I have access to many journal databases. This makes me wonder whether or not studies have been done, how thorough the studies were, or what the results of the studies were. If this was scientifically proven to be helpful you would think that the manufacturers would try to publish their studies in well-read medical journals.  The fact that the manufacturers claim that glyconutrients can help with every disease from a to z also makes me question them. My mom has taken glyconutrients (which is why I have studied them) and I question whether or not they have done anything for her except to make her wallet lighter. I know that when faced with a loved one's mortality people will do anything to fight off death. I want to fight off my mom's death more than I have ever wanted anything but I think that using glyconutrients is not hte most effective way to do that.  laurahahe Thu, 16 Aug 2007 00:00:00 GMT Please could I have your relation contact as I have someone with Glioma and wants to try GlyconutrientsThanksKat katkat Sun, 14 Oct 2007 00:00:00 GMT On 10/14/2007 katkat wrote:Please could I have your relation contact as I have someone with Glioma and wants to try GlyconutrientsThanksKat You are welcome to contact me at euglofox@xcelco.on.ca Mannadad Tue, 16 Oct 2007 00:00:00 GMT