CancerCompass message board discussion started by 1gdyrgonebad on 3/11/2008 http://www.cancercompass.com/message-board/message/all,21872,0.htm Thu, 04 Dec 2008 00:00:00 GMT Thu, 04 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hello all...I found this site by accident, but it seems to be pretty helpful..I myself was diagnosed with an abnormal pap, detected HPV, with high risk cervical cancer.  I got a little worried, was more worried about my current boyfriend.  I went in to have the colopscony and found that my body was built different so that procedure couldnt be done.  My dr. scheduled me for the LEEP Procedure, on a Wed.  The procedure went well, i was under and when i awoke it was all done...although i did have some severe abdominal pains.  They gave me meds for that.  I went home and was ok..slightly sore still...it is now almost a week later and I am cramping and discharging and omg...that smell....lower back aches and can't lift to heavy of things, don't do as much as i normally would do.  something new too is that i am going through an emotional rollercoaster,  i cant stand it...grrrr  I got some of the answers I was looking for, like how long will this cramping and discharge go on.  I have a follow up drs. appt on march 17th, thats when i will find out if its bad or ehh or nothing to worry about. I read that people feel dirty for having the HPV, it is nothing to feel dirty about....atleast i don't...not overly proud of it, but don't feel dirty.  whats done is done...we move on and fix our mistakes and pray that they don't get worse.  (hopefully, i wont' change my story after i get my results, lol  j/k)   I wish everyone of you ladies out there that had to have this procedure the best of luck.  there are women out there, that in the matter of minutes, have helped me feel better, by knowing i am not alone in the emotional part.  I will keep you updated with my results and will be back if i have some more questions and would be happy to answer anyones questions, with regard to the procedure. take care and good luck :) 1gdyrgonebad Tue, 11 Mar 2008 00:00:00 GMT Hi Hun,  I just found this site myself, and yes, lots of good info.  I have read that 80-90%of the population has some strain of HPV.  If I had a teen-aged or pre teen girl I would DEFINATELY have her get the shots!!         I did a leep many years ago, before they did them with anasthesia...OMG  That TRULY SUCKED!  I'm glad you don't remember anything, thats how it should be!  I know its hard but you *will* feel "normal" again, it just takes time...make sure you give at least that much to yourself...time :)  Please keep us updated.  HugsLori 40 in California1990-1997 HPV, LEEP, 5FUJune 1997 Hysterectomy~Endometrial and Cervical CancerDec 1998 Lumbar surgeryAug 2001 Lumbar surgeryFeb 2008 Vulvar lesions excised,Vaginal biopsies performed.March 2008 VIN3May your Joy be Pure Joy,and all your Pain, Champagne... lorilocks Tue, 11 Mar 2008 00:00:00 GMT First of all, I'm sorry you had that done. Secondly, if the discharge smells and you are in pain, you may have an infection, which unfortunately is one of the risks of LEEP.What I want to ask you is this: Did the doctor show you the actual lab report? I'm a little perplexed as to why the doctor decided to do a LEEP without doing a biopsy, first.I didn't feel dirty after being diagnosed with HPV, but I did feel angry at the world of gynecology for failing women, badly. There should be therapeutic medication by now. It made me determined to be an advocate for women's health to get better treatment for HPV than partial amputation.However, we are in exciting times in that Roche is having success with a vaccine that is clearing up HPV-16 caused dysplasia. There are at least two other drug companies working on therapeutic medication, too.In regards to LEEP, it was the wrong procedure for me. For many women, it is the right procedure. Unfortunately, my wounds take a long time to heal and are vulnerable to infection, and LEEP has the highest risk of infection. As a result, I had nonstop, heavy discharge for two months. It turned into an infection. I was terribly weak the entire time. I could not physically sit comfortably during my work day for three months. Four months later, the wound finally healed, but I still hadn't been able to have intercourse because the area was so raw. In short, LEEP destroyed the quality of my life. I already told my doctor if the dysplasia comes back, I insist on laser. I recently had the HPV DNA test done because I want to know which strain(s) I have. That would open or close the door to being Roche's guinea pig, right there. herenow Tue, 11 Mar 2008 00:00:00 GMT I am having a hysterectomy next Friday and I was just wondering what are those surgeries you have had since your hysterectomy. I have severe displaysia and HPV so my DR seems to think this is going to help all my problems and I am very hopefully it will, that is why I was wondering about your recent surgeries. Thanks for any help! I am very nervous as I have had c-sections with both of my children and will have to be cut again.Thanks again!   blondegirl Tue, 11 Mar 2008 00:00:00 GMT wow before anesthsia....ouch....thank you very much for your reply. :) ...I am hopeful things will come out good...but won't know til then. 1gdyrgonebad Tue, 11 Mar 2008 00:00:00 GMT  On 3/11/2008 blondegirl wrote:I am having a hysterectomy next Friday and I was just wondering what are those surgeries you have had since your hysterectomy. I have severe displaysia and HPV so my DR seems to think this is going to help all my problems and I am very hopefully it will, that is why I was wondering about your recent surgeries. Thanks for any help! I am very nervous as I have had c-sections with both of my children and will have to be cut again.Thanks again!  Hiya Sweety,    I am just one lucky gal...not to worry.  I had no evidence of disease (NED)  No cancer at all for 11 years.  It was just recently that I have had any problems whatsoever.  The 2 surgeries after my hysterectomy were on on back.     Just recently I found a sore spot on my inner vulval lips, I went in and ended up having 3 lesions removed by excision.  I will be doing chemo again, and possibly another surgery.  It is VIN 3    You should be helped by having the hysterectomy, but you still need to be monitored as often as your Doc says.  This is something you need to keep an eye on  I'll be sending healing thoughts your way this Friday.Hugs,Lori 40 in California1990-1997 HPV, LEEP, 5FUJune 1997 Hysterectomy~Endometrial and Cervical CancerDec 1998 Lumbar surgeryAug 2001 Lumbar surgeryFeb 2008 Vulvar lesions excised,Vaginal biopsies performed.March 2008 VIN3May your Joy be Pure Joy,and all your Pain, Champagne...  lorilocks Tue, 11 Mar 2008 00:00:00 GMT Thank you so much my surgery is next Friday (the 21st) and I am pretty nervous, but I know that it will be for the best! Thank you for telling me your story! I am of course worried that I will still have problems but hopefully not! Thanks so much for your thoughts. I will you in mine as well! blondegirl Thu, 13 Mar 2008 00:00:00 GMT  On 3/13/2008 blondegirl wrote:Thank you so much my surgery is next Friday (the 21st) and I am pretty nervous, but I know that it will be for the best! Thank you for telling me your story! I am of course worried that I will still have problems but hopefully not! Thanks so much for your thoughts. I will you in mine as well!You are more than welcome.  Don't worry about what might happen, be in control of it!  Just go to each and every re check, stay on top of itand you will be fine! :)Bright Blessings,Lori 40 in California1990-1997 HPV, LEEP, 5FUJune 1997 Hysterectomy~Endometrial and Cervical CancerDec 1998 Lumbar surgeryAug 2001 Lumbar surgeryFeb 2008 Vulvar lesions excised,Vaginal biopsies performed.March 2008 VIN3May your Joy be Pure Joy,and all your Pain, Champagne... lorilocks Fri, 14 Mar 2008 00:00:00 GMT I also had LEEP 10 days ago and the surgery part went well but I have also been on a emotional roller coaster since the operation!! I have cried for days!! How long did yours last?? baileysmom Mon, 28 Apr 2008 00:00:00 GMT hey there, i am not quite sure how long it actually took to stop being a little crazy...lol but i believe i was ok by my drs appt, which was 6 days later...Just try hot relaxing tea and some you time.....things will get better....i hope this helps you... 1gdyrgonebad Mon, 28 Apr 2008 00:00:00 GMT