CancerCompass message board discussion started by nervous on 3/11/2008 http://www.cancercompass.com/message-board/message/all,21898,0.htm Thu, 04 Dec 2008 00:00:00 GMT Thu, 04 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My husband was recently diagonsed with pancreatic cancer. We spent several months going thru a battery of test. He has uncontrolled diabetes and all attempts at an ERCP have been unscuccessful due to hardening of the pancreas. His Ca19-9  levels have elevated to 1600. he has lost appx. 40 lbs and a surgical biospy has been deemed impossible due to his deteroated condition and his uncontrollable diabeties. His Dr. finally said in Feb. that it had to be pancreatic cancer there was no other explanation. He stated that it was end stage cancer and suggested Hospicis.My husband has good days and bad days. He sleeps alot and sometimes he seems very disorented. Other days he is more normal and this seems like a bad dream. Is this the norm for pancreatic cancer? He is on digestive enzymes and fyentol patches and Viocidine for break thru pain. He has to be hospitalized routinely for IV's he gets to weak to walk unassisted. He experiences bouts of itching and severe night sweats.How much time when diagnosed with end stage pancreatic cancer.. nervous Tue, 11 Mar 2008 00:00:00 GMT No one but God knows our time, but generally 9-12 months from diagnosis.  Less if he gets no treatment.   Is he getting any treatment?  It seems he could benefit from Gemzar which could buy some time.  God bless your time together. Oncrx Wed, 12 Mar 2008 00:00:00 GMT  On 3/11/2008 nervous wrote:My husband was recently diagonsed with pancreatic cancer.  ...My husband has good days and bad days. He sleeps alot and sometimes he seems very disorented. Other days he is more normal and this seems like a bad dream. Is this the norm for pancreatic cancer? He is on digestive enzymes and fyentol patches and Viocidine for break thru pain. He has to be hospitalized routinely for IV's he gets to weak to walk unassisted. He experiences bouts of itching and severe night sweats.How much time when diagnosed with end stage pancreatic cancer..I'm so sorry to hear of your husband's diagnosis.  My husband was became jaundiced at the end of June 2007 and passed away on Jan. 2, 2008 just six months and 4 days after diagnosis.  Gary had been a diabetic for 30 years but seemed to have very good diabetes control through the months following his Whipple (the tumour was not able to be removed).  After the 4 month mark, he was sleeping alot but would still be able to get out of bed and take short excursions for about an hour.  Then he would really need a long nap.  The pain control medication can add to confusion, as can the build up of amonia in the system.  The liver is unable to clear all the chemicals that the body accumulates at this time.  My husband was on similar pain medication and also needed prozac to help his moods and to stimulate his appetite.  By the 5th and 6th month, he was sleeping almost 20 hours a day and experienced a lot of confusion.  The itching can be caused by jaundice, as the bile builds up in the body as the tumour continues to spread.  The doctor might be able to prescribe something to alleviate the itching. After seeing the specialist, who did not want to put a best before date on my husband, I went on my own for a frank discussion with our GP.  This very kind man said that most pancreatic cancer patients live for six months to a year and he told me it would more likely be six months than longer.  This honesty was very helpful and I began to bring in hospice care into the home.  My husband had an infection in the stent used to open up the bile duct and nurses would come to the home to provide him with a pump to use for intravenous antibiotics.  This allowed Gary to stay home longer rather than needing to return to the hospital for care.There was no other care provided for Gary beside palliative care, as pancreatic cancer doesn't respond well to treatments such as chemo or radiation.  However, it's important that you and your husband check all possibilities with your specialists.  We had hoped that Gary would die at home and prepared ourselves for this.  Just after Christmas, he was unable to keep any liquids down and went into the hospital.  His need for pain medication accelerated so rapidly that I realize it was best for him to be in the hospital as the hospice people could not have handled this.  God bless you and your husband on your journey through this illness.  My prayers will be with you. Spinner Thu, 13 Mar 2008 00:00:00 GMT With my husband it was only 3 months from diagnosis.  Apparently he had  it much longer, but the gastro. dr. treated him for IBS for about 5 months without doing a cat scan.  Hospice was wonderful-they made sure that there was no pain.  Its very hard to sign up for hospice-they make it easy, however when you sign up you are admiting to yourself that it is terminal.  It is still the best thing that we could have done.Bonni bonniltc Thu, 13 Mar 2008 00:00:00 GMT  On 3/13/2008 bonniltc wrote:With my husband it was only 3 months from diagnosis.  Apparently he had  it much longer, but the gastro. dr. treated him for IBS for about 5 months without doing a cat scan.  Hospice was wonderful-they made sure that there was no pain.  Its very hard to sign up for hospice-they make it easy, however when you sign up you are admiting to yourself that it is terminal.  It is still the best thing that we could have done.Bonni Thank you all for sharing... Sometimes it seems so unreal.. I find myself lying awake at night waiting to see if he breaths again..   nervous Thu, 13 Mar 2008 00:00:00 GMT My Mom was diagnosed in July 07 and was given 3-5 months.  She died in Nov. 07, 4 months after being diagnosed.  Hers had metastisized to her bones.  Visit Pancreatic Cancer Action Network at www.pancan.org for some helpful information.  When my Mom got to the point that she was not eating and the pain became unbearable we brought in hospice.  Please know that my thoughts and prayers are with you.  It is a horrible disease. suestl33 Fri, 21 Mar 2008 00:00:00 GMT