CancerCompass message board discussion started by mistyblu97 on 3/13/2008 http://www.cancercompass.com/message-board/message/all,21973,0.htm Sun, 06 Jul 2008 00:00:00 GMT Sun, 06 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hello everyone my name is lily and i have a husband with bile duct cancer since march 9,2008 first diagnosed had his first surgery which was bile duct reconstruction then had gemzar for about 3months but was vomiting and had to go back to hospital found tumor in stomach and they did a whipple surgery in august and said they removed everything they could see including in his lymphnodes that was 14 hour surgery he just turned 40 on jan,5 2008 and his last chemo which was folfox was jan 29 and he had been getting sick again in and out of hospital in pain and put bilalary drains so he now has 2 bags for the bile to drain he is still jaundice and was on strong antiobiotics went to doctor on march 10 and they told him nothing is working and that they were just treating the symptoms and not the problem so they decided to stop chemo and told him about hospice and he said he is not ready for that yet so we are trusting in the lord and church is praying for him and pray that he could stay around longer he eats very little and trys to drink he lost another 8lbs but he is very sleepy but he is holding on very well with the help of the lord i hope this can encourage all of you to say do not give up you all keep fighting i just thought i would share a little of our story any one have any questions feel free to post and i will answer. Lily    mistyblu97 Thu, 13 Mar 2008 00:00:00 GMT I pray for peace and no pain for your husband as he battles this awful disease.  I pray for peace and understanding for you as you struggle to help him through it.  I pray God's will is done in His timing and that you and your husband have enough quality time together to enjoy each other a little longer. JamiefromGA Mon, 17 Mar 2008 00:00:00 GMT God Bless you dear and your precious husband.  Hang in there.  Prayer and praying people can do so much more than we know.  My husband has esophageal cancer which is also a brutal one and has been in and out of the hospital and sick also.  this has been a good week for him and we go to the oncologist surgeon this Wed. to see if his CAT scan came back making him a viable patient for the huge surgery.  I don't look forward to what he will have to go through with the surgery but am behind him all the way if that is the way he wants to do it.  Isn't this cancer the most awful beast?   Praying for you and all the others suffering on this site.  Both the patients and the caregivers. grannie2 Mon, 17 Mar 2008 00:00:00 GMT Dear Lilly.In your case - when you have tried all traditional treatments - I would look at some experimental treatments like as an example immunotherapy. I know it may be a long shot and that at this moment the evidence of the effect of such treatments may not be good - but there are reports that some new treatments actually do work. If you and your husband have the strength to keep fighting you could try to look at immunotherapy using a drug called Gendicine. Good results from this is being reported (and now starting to be documented) in China.My mother in law had surgery for Klatskins tumor in beginning of February. Unfortunately her cancer had spread to lymph nodes. She will now receive chemotherapy. But if this doesn't work - and if she still has strength to keep fighting - I think we will - when all other options are gone - look at immunotherapy and Gendicine. I wish you and your husband all the best.BrKenneth from Denmark KenDK Sat, 22 Mar 2008 00:00:00 GMT Dear Lilly, I am sorry to hear your story. I have had the whipples operation and know how hard it must be for you both. I wish you all the best. From Annettebyron in Australia Annettebyron Mon, 07 Apr 2008 00:00:00 GMT