CancerCompass message board discussion started by kelliemimi on 4/3/2008 http://www.cancercompass.com/message-board/message/all,22673,0.htm Wed, 08 Oct 2008 00:00:00 GMT Wed, 08 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/  Hi to everyone,I had uterine cancer in 1996 and was given a complete hysterectomy and they said it was contained, all 18 lymph nodes were good, but they decided to give me 6 weeks of radiation for any renegade cells. All was well until 2004 when I got deathly sick and was misdiagnosed with Colon Cancer that metastasized  to my liver and pelvis. Dr. Doom told me I would die on the OR table. Well he wasn't GOD and I am still here! After taking 17 months of very harsh chemotherapy treatments and losing all my teeth, I didn't lose my hair, just destroyed my teeth. I am in the process now of having them all pulled and new teeth put in soon. They decided to remove the tumor on my liver and pelvis in 2006.My surgeon told my family I don't have colon cancer and never did have it!! What I have is Endometrial Cancer!  Wow, they were all stunned as well as my oncologist, which I can not blame him, as he took over my Dr's practice when she retired to CO. Then they started treating me with Tamoxifen tablets and I thought everything was going well, the pain in my side was gone and I never felt better except for my right leg. I got off all my pain medication, Now after 15 months since they cut out most of my liver and ablated what they could in my pelvis, it has returned. It is a slow growing cancer that evidently has no cure. They can cut it out of my liver again, but it has attached itself to my main artery going down my right leg. My rt leg has been swelling for a year. All the doctors thought I had blood clots and I didn't. I even went to a Vascular Dr and he didn't see the problem after running expensive scans and sonograms. Meanwhile the tumor on my pelvis has done something to my rt kidney and my surgeon tells me my rt kidney is toast. He is the one that told me I didn't have colon cancer and he is the one that told me the tumor is wrapped around my rt artery going down my rt leg. He can't get it off, it is attached to it and to cut it, will lose my leg and them it would start growing upwards. There just doesn't seem to be any way of stopping the growth or to kill it. I thought radiation could do it in but am told a person can get a certain amt of radiation in their lifetime and I have exceeded mine. I had never heard that before. Now I have started a clinical trial of Perifosine tablets 2x day 50 mg each. I go to Texas Oncology at Presbyterian Hospital of Dallas and they are agents of Mary Crowley Research Center of Baylor Hospital in Dallas TX.. They seem to think this may help. I have been on them 6 days now and have diarrhea and nausea pretty bad. Have any of you had these similar problems? Can anyone tell me if the Perifosine is working for them, I can't find any statistics on it. I would love to hear from anyone that can give me information and If I can help anyone, just ask me.Thanks for listening.Shelia  kelliemimi Thu, 03 Apr 2008 00:00:00 GMT