CancerCompass message board discussion started by pantherspaul on 4/10/2008 http://www.cancercompass.com/message-board/message/all,22940,0.htm Fri, 04 Jul 2008 00:00:00 GMT Fri, 04 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ dia nov 21 2007 with gbm4 did the standard radiation and temadar with no problems what so ever. stopped Decatron 4mg 2x a day cold turky what a mistake im now on my 4th round of temador 440mg 5on 23 off with no problems until my last round  my stomach was a little upset but nothing I couldnt handle but would sleep 18 hours a day no energey what so ever doc repalced my decadron with hydrocortison 20 mg 2x a day. well in the moring I will ave completed this round but it has been the toughest very sick and sleeping all day no energy once again. My question is my surgeon said to keep me on a temador regiment for as long as my body will take it is this my body saying hey enough is enough or is it because I stopped the decadron I had no problems before I stopped. Even had to miss work this week. My onc. said at my last appt. that some people stay on steroids for ever and that he was going to run a blood test at my next appt. Sorry to be rambling on but I dont know if it matters but I am taking 1000mg of keppra and 10 mg of high blood pressure and its my understanding that can make you tired. Good news all mris have been greatthanks for your timePaul pantherspaul Thu, 10 Apr 2008 00:00:00 GMT