CancerCompass message board discussion started by Me-Denise on 4/11/2008 http://www.cancercompass.com/message-board/message/all,22975,0.htm Tue, 07 Oct 2008 00:00:00 GMT Tue, 07 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I have been put on a very low dose of Temador(200mg) because of my low bloodcounts. I was wondering if anyone else has experience with this lower dose and how it worked for you? So far I've been doing very well, working full time as a kindergarten teacher, 3 clean MRI's. I'll be starting my 2nd round of the 200mg's tomorrow. I was only at 250mg before. I go at the end of this month for another MRI. I'm praying for continued good results.Blessings to all, Denise  Me-Denise Fri, 11 Apr 2008 00:00:00 GMT  On 4/11/2008 Me-Denise wrote:I have been put on a very low dose of Temador(200mg) because of my low bloodcounts. I was wondering if anyone else has experience with this lower dose and how it worked for you? So far I've been doing very well, working full time as a kindergarten teacher, 3 clean MRI's. I'll be starting my 2nd round of the 200mg's tomorrow. I was only at 250mg before. I go at the end of this month for another MRI. I'm praying for continued good results.Blessings to all, Denise HI DeniseMy mother was dx 12/28/07 with AA III  she was on chemo temodar 250 mg for about a month and half along with radiation.  She has her MRI in about a week and half.  From what I have read on these message boards the dose of chemo seems to have quite a range.  I'll be thinking of you thoughts and prayers are with you .  faith11 Sat, 12 Apr 2008 00:00:00 GMT Denise,I, too, take 200 mgs. of Temador (5/23 cycle) and have done so for about a year. I have finished 16 rounds and the first ones were so hard on my blood counts that the dosage kept getting lowered. My wbc and platelets still drop after each round of treatment, but rebound to an acceptable level. And my MRI's continue to be stable. I saw my Drs. this week and they are pushing for me to continue thru the full 24 rounds of Temador, then will consider a maintance dosage after that.I pray the best for you...blessing to all!Kathy kathye Sat, 12 Apr 2008 00:00:00 GMT I wish I was on a low dose like that!  I take 370...ugh.   Keep the Faith everyone. Sunflower13 Sun, 13 Apr 2008 00:00:00 GMT My husband is also on a lower dose.  Right now he's at 300mg.  During radiation he was on 160mg.  The first dose of the 5/23 cycle they upped it to 400mg.  He had a bad reaction starting about day 5-6; got an itchy rash all over his body, was extremely weak, etc. It was pretty bad.  The onc. isn't certain it was the Temodar since he had been on it before although the timing certainly worked out that way.  He was also taking Keppra and a cholesterol med at the time.  He stopped both of these, he hadn't ever  had a seizure and they aren't real worried about cholesterol right now so that made stopping these easy.We were going to switch to Avastin/CPT-11, the onc. didn't want to 'challenge his body like that again', but his MRI results after that first round of Temodar were so good the onc. wanted to stick with it, but said we'd adjust the dose and find a level that worked. The next round he did 150mg, then 250mg, now he's on his second round of 300mg.  Not sure if this is where we're staying for the duration or whether they'll bump it up again (of course my husband cringes at the the thought of a higher does).His blood counts have remained good throughout thought.  It's still a bit of a mystery where that reaction came from.  The good news is that it's still working, the MRI's continue to be good. **husband dx 8/07, GBM, surgery, IMRT radiation/Temodar, currently on 5/23 Temodar, MRI's good.   nancya Tue, 15 Apr 2008 00:00:00 GMT