CancerCompass message board discussion started by trulyblue on 4/12/2008 http://www.cancercompass.com/message-board/message/all,22995,0.htm Sat, 30 Aug 2008 00:00:00 GMT Sat, 30 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I have been diagnosed with mild vaginal and vulvar dysplasia which is multifocal.  I also have lichen sclerosis.  Even though my dysplasia is mild, because of the multiple locations, the gyn/onc is treating me with Effudex.  OMG!!!  Talk about painful!  I only did 3 treatments, and the pain was almost unbearable.  I returned to the gyn/onc for a checkup and I explained that I had not done a treatment in 10 days.  I apparently had a lot of escoriation and ulcers both vaginally and vulvar.  I am not to begin treatments again for other 2 weeks.  The doctor prescribed lidocaine for the pain/itching, as well as suggested I use Desitine for protection.  My question is:  Is this much pain common?  Will it get better with continued treatments, or is this pain I will have to live with until my 12th treatment in early June?  I appreciate your input. trulyblue Sat, 12 Apr 2008 00:00:00 GMT How are you doing?  Did you continue treatment or try something else? Carol123 Thu, 15 May 2008 00:00:00 GMT  On 4/12/2008 trulyblue wrote:I have been diagnosed with mild vaginal and vulvar dysplasia which is multifocal.  I also have lichen sclerosis.  Even though my dysplasia is mild, because of the multiple locations, the gyn/onc is treating me with Effudex.  OMG!!!  Talk about painful!  I only did 3 treatments, and the pain was almost unbearable.  I returned to the gyn/onc for a checkup and I explained that I had not done a treatment in 10 days.  I apparently had a lot of escoriation and ulcers both vaginally and vulvar.  I am not to begin treatments again for other 2 weeks.  The doctor prescribed lidocaine for the pain/itching, as well as suggested I use Desitine for protection.  My question is:  Is this much pain common?  Will it get better with continued treatments, or is this pain I will have to live with until my 12th treatment in early June?  I appreciate your input.Hi, Carol!  Sorry it took so long to respond.  I did continue the Effudex treatments.  The doctor lessened the amount of Effudex in half and also lenthened the time within application, so it is not as bad.  However, I am spotting vaginally now and perhaps in my vulva.  I have very deep pain occasionally in my vulva.  I'm not sure what that is about.  Treatments are at bedtime, and the next day, I feel completely exhausted with abdominal and vulvar pain.  I'm not sure why that occurs.  I just know it does.  I have three more treatments.  Then I wait six weeks.  I go back July 14th to see if it worked.  I'm just very glad right now I am on summer break so I can rest.  I feel very tired.  However, apparently after 50 one falls apart, because I am now being checked for diabetes.  I was healthy a couple of years ago.  It is very frustrating to have all of this at once. Thank you for your inquiry.  I will post further as time goes by.  I have another treatment tonight.  Take care .... trulyblue Thu, 29 May 2008 00:00:00 GMT I hope this cream does the trick.  Does the cream clear up the LS as well? I went to the dr on 5.27 and no VIN so my next appt is in 6 months, yippee!!!  So at least a 6 month reprive.  One day at a time, one step at a time.Take care.  Carol    Carol123 Fri, 30 May 2008 00:00:00 GMT I am so glad that you have the 6-month reprieve!  I'll be waiting to hear about your next visit.   I use a steriod cream for the LS in between treatments, as well as lidocaine for pain and itching from the Effudex treatments, in between treatments.  I also use a diaper cream to protect areas from burning.  OUCH!!!!  I have 2 treatments left.  My next appointment is July 14th to see if it worked.  I'm keeping my fingers crossed. Take Care,Donna trulyblue Fri, 30 May 2008 00:00:00 GMT