CancerCompass message board discussion started by DinaZ on 4/14/2008 http://www.cancercompass.com/message-board/message/all,23033,0.htm Thu, 04 Dec 2008 00:00:00 GMT Thu, 04 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi Everyone!My Dad is receiving treatments of Erbitux along with his Oxiplatin and 5 FU.  He is doing great with all of his treatments, but he is starting to get a rash from the Erbitux.  I have heard, 'The worse the rash, the better."  Is this true?  Those of you who have had Erbitux/Centuximab, is it true the worse the rash the better it is?  If this is the case, then he is in good shape because it looks awful! I know that a lot of people do not have access to Centuximab but I know that some of you have written about it before, so maybe you can shed some light on this for me.Thank You! DinaZ Mon, 14 Apr 2008 00:00:00 GMT HiSorry about your Dad, but YES, the rash is a good thing.  It gets very, very ugly and also the feet and hands split.  It is a miserable thing to go through, but the drug is supposedly worth it.  My Mom is on it currently and hopefully, we will see some good results. Beth Njtwinmom Mon, 14 Apr 2008 00:00:00 GMT Ok- I pray and hope that in 6 weeks when we take another CT scan things will have shrunk or disappeared. DinaZ Wed, 16 Apr 2008 00:00:00 GMT Thanks for the good information. Tell me , what typr of cancer does he have? Art Zorba Fri, 18 Apr 2008 00:00:00 GMT Zina, The word is the worst the rash, infected cuticals, both on hands and feet and that adorable rash are signs the drug is working.  I know the worse mine gets it seems my cea count goes down.  When the rash etc. goes away cea goes up.  I've been on Eurbitux for about 3 months.  The other side I get is sores in my mouth like those on face, hands, and anywhere else it want's to be. :)    Not pretty to look at and the other stuff certainly isn't much fun but when it works you hope it sticks around.  :)   i'm glad to hear your dads doing well with the Oxly and Eurbitux.  I was on comptistar and Erbitux oh and of course that 5FU.  My cea keeps going up and down  so switching to put the Oxly, Eurbitux and 5fu  next week  so it is nice to see someone who is having success with that combination.  Thank you for sharing and My thoughts and prayers will be with you and your dad.    Stever1955 Fri, 18 Apr 2008 00:00:00 GMT oops mean Dina ,  yet another side effect of Erbitux. (ok, it's not, but for my sake I'm going to pretend it is. lol  Stever1955 Fri, 18 Apr 2008 00:00:00 GMT Thanks for all of the kind words.  My Dad has Stage IV Colon Cancer.  He is still doing great, he had his 3rd treatment this past Wednesday.  He is on 5FU, Erbitux, Oxiplatin.  The rash is really the only symptom he has, and the Dr. prescribed a cream that has eliminated the itching.  In other words, it isn't pretty to look at, (my Dad jokes and says he is 12 years old again) but I think it will work.  I just wanted to see if anyone else has had success with it...it's always nice to bring a happy story home to my Dad. DinaZ Mon, 21 Apr 2008 00:00:00 GMT  On 4/14/2008 DinaZ wrote:Hi Everyone!My Dad is receiving treatments of Erbitux along with his Oxiplatin and 5 FU.  He is doing great with all of his treatments, but he is starting to get a rash from the Erbitux.  I have heard, 'The worse the rash, the better."  Is this true?  Those of you who have had Erbitux/Centuximab, is it true the worse the rash the better it is?  If this is the case, then he is in good shape because it looks awful! I know that a lot of people do not have access to Centuximab but I know that some of you have written about it before, so maybe you can shed some light on this for me.Thank You!Hi Dina,Sorry to hear about your Dad..I have been taking Erbutix for four months..I have stage 1V colon cancer.I developed the rash after thr first week of Erb...My doctor prescribe Minocycline 100 mg for me and the rash went away after one week..I am still taking this drug and no rash.I hope this help your dad.Good luck.Jim W.   James6 Thu, 24 Apr 2008 00:00:00 GMT HiIhave stage 1V colon cancer, and Have been taking Erb. for four months and developed the rash after the first week. My doctor prescribe Minocycline 100 mg. for me and the rash disappeared after one week.I hope this is helpful. Good luck.Jim W.   James6 Thu, 24 Apr 2008 00:00:00 GMT