CancerCompass message board discussion started by ChrissyN on 4/17/2008 http://www.cancercompass.com/message-board/message/all,23163,0.htm Fri, 04 Jul 2008 00:00:00 GMT Fri, 04 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi folks,   Just the quickest and smallest of notes to let you know that I am home at last. Thanks for the love and wishes that were sent my way and told about daily by my beautiful Jeff, who had the added burden of having to travel a 2 1/2 hour round trip every day to visit me.  I had a setback at 7 days when I developed a leak while still in ICU. As you may be able to guess, I am still a long way from recovery, but I should have a week or so to gain some strength before chemo stars. I am home with my J- tube just in case I cannot control  my weight loss and my pic line which has been left in for the chemo infusions. The pain that I am experiencing at present is from the nerve damage from the chest drains that were in-situ for 4 weeks. My poor belly is still recovering form 4+weeks of twice daily heparin shots. I have lost a total weight of around 6.5 kilos and have the "pleasure" of still being on soft foods for the next 2 weeks at least and having it over 6-8 small meals/day. I cannot praise my surgical team any higher and as for the staff at the hospital, they were fantastic, from the cleaners ... who all took and interest in me ... right through to the nurses in ICU. I still don't have the official staging, but sadly, the CTs before surgery didn't pick up that there was lymph node involvement ... 15 of the 30 removed ... but I'll just have to deal with it.     Anyhow, once again thanks for all your blessings and prayers and as I get stronger, I'll keep in touch more.   Hugs   Chrissy www.maryboroughanimalrefuge.com  (admin) www.akcos.org   (admin) http://akcos.proboards60.com/index.cgi ChrissyN Thu, 17 Apr 2008 00:00:00 GMT Chrissy,   I'm so glad to see you're off to a great start on your recovery...I've heard of a lot of people having leaks..and as far as the lymph involvement...Don't let it hamper your recovery...either way...you will get through it...we will all pray with and for you...AngieOn 4/17/2008 ChrissyN wrote:Hi folks, Just the quickest and smallest of notes to let you know that I am home at last. Thanks for the love and wishes that were sent my way and told about daily by my beautiful Jeff, who had the added burden of having to travel a 2 1/2 hour round trip every day to visit me. I had a setback at 7 days when I developed a leak while still in ICU. As you may be able to guess, I am still a long way from recovery, but I should have a week or so to gain some strength before chemo stars. I am home with my J- tube just in case I cannot control  my weight loss and my pic line which has been left in for the chemo infusions. The pain that I am experiencing at present is from the nerve damage from the chest drains that were in-situ for 4 weeks. My poor belly is still recovering form 4+weeks of twice daily heparin shots. I have lost a total weight of around 6.5 kilos and have the "pleasure" of still being on soft foods for the next 2 weeks at least and having it over 6-8 small meals/day. I cannot praise my surgical team any higher and as for the staff at the hospital, they were fantastic, from the cleaners ... who all took and interest in me ... right through to the nurses in ICU.I still don't have the official staging, but sadly, the CTs before surgery didn't pick up that there was lymph node involvement ... 15 of the 30 removed ... but I'll just have to deal with it.  Anyhow, once again thanks for all your blessings and prayers and as I get stronger, I'll keep in touch more. HugsChrissywww.maryboroughanimalrefuge.com  (admin)www.akcos.org   (admin) http://akcos.proboards60.com/index.cgi   angree Fri, 18 Apr 2008 00:00:00 GMT Saw the Onc last week and she decided that I wasn't well enough to start chemo this week as planned, so she has sent me for CTs this week, which were done yesterday and Jeff will collect them for me tomorrow when he goes to town and we will see what the report has to say. She is mainly checking that the 'cysts" they saw in the CT prior to surgery are cysts. Fingers crossed. So, as 15 of the 30 lymph nodes were involved,  I should be starting chemo in 2 weeks. I seem to have managed to stabilise my weight ... well on the whole that is ... Cheers,Chrissy, Australia  ChrissyN Thu, 01 May 2008 00:00:00 GMT