CancerCompass message board discussion started by moonbeamsonata on 4/19/2008 http://www.cancercompass.com/message-board/message/all,23201,0.htm Mon, 01 Dec 2008 00:00:00 GMT Mon, 01 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi. Any thoughts from veterans would be much appreciated. I'm 25 and went to my annual pap smear Feb. 5, 2008. I was told the results would be back within 2 weeks and if questionable I would get a call. During my exam, the RN opened my pap testing supplies with her bare hands, I questioned it, and she said that it was okay and it didn't matter. Directly after my exam I had incredible pain and bleeding that has never subsided. Was told that that was normal (but never experience that before myself). Anyway, March 26 (well over 2 weeks) they call me and tell me I have cancer and need to take care of it immediately and have a procedure in the office. But the earliest I can come in is the next Monday. I go in and they then tell me I "do not have cancer, they think" hand me a few pamphlets and ask if I have questions. I question them about the delay in talking to me, they avoid the question. I question them about the pain and bleeding since my exam, they tell me that sometimes the exam will make your period start sooner, I tell them I just had my period the week before the exam, they say "Well that is strange" and walk away.They then tell me to call another office and I do so, and I have the earliest appointment April 29, 2008. I have been in so much pain it is nearly unbearable. I have only had sex with my boyfriend of 2 years maybe 5 times since January (not normal), but sex hurts so much. It burns, and intense pain (more than the now normal pain). I have found that condoms make the burning stop. I tried to have sex with my boyfriend this last Tuesday and it hurt so much more than before. I went to take a warm shower in hopes that that would ease the pain. But while washing, I pea-sized piece of flesh came off of my cervix! It was whiteish in color and sort of hard and sponge at the same time, like a piece of gristle (spelling? like in meat). The pain instantly became magnitized, I nearly didn't make it out of the shower to lie on my bed. I'm sorry for the gross details, but I am really desperate. The "C" word is very scary to me there are a lot of different types of cancers in my family and I am very worried. There is no cervical cancer in my family that I am aware of, so I don't know much about it. But I have been looking online and trying to do some research as well as my mom, but I would like thoughts from people who have been here before. The only real thing that the original Dr's office would say was that it was some type of Squamous cell, I can't remember what it was called and they wouldn't write it down for me. Thanks for your help in advance. moonbeamsonata Sat, 19 Apr 2008 00:00:00 GMT Of course I can't be sure what is going on with your health, but the actions of the personnel in the doctor's office seem like those of people who know they screwed up and don't want to say anything more to you out of fear of a malpractice suit.I'm hoping you get some answers soon.  I'm a huge advocate of being treated respectfully by one's doctor and his/her staff, especially at a time when you are so vulnerable.  Good luck.  SydsMom Sat, 19 Apr 2008 00:00:00 GMT Please, please, please get a new doctor as soon as possible! Do not let that doctor touch your body, ever again! I am so sorry that happened to you. It's your body, and it is your right to have it treated with utmost respect.When you get your new doctor, be sure he or she does the following:1. Shows you the lab report.2. Thoroughly discusses the results with you. You want to know what you have, where it is located, how extensive it is, and if anything else is involved.3. Thoroughly discusses the risks and benefits of all your options.You want your decision to be as informed as possible, and that means getting all the information available to you. It will definitely take away some of the fear factor and get you actively involved with decisions about your body's health. Be sure to also tell the new doctor about your family's history of cancer.I wish your the very, very best. It is scary when something like this happens. herenow Sat, 19 Apr 2008 00:00:00 GMT Your story sounds very much like my own. I went to m doctor many times with bleeding only to be told it was normal for a woman my age, even though I'd tell them a couple years earlier I had had a hysterectomy and they had found cancer. (& said they had got it all) It took months before I finally received the referral to a gyn-oncologist that I'd been asking for all that time. A cone biopsy revealed squamous cell carcinoma. The doctors came and went from my room, all talking about the massive necrotised vaginal tumor that bled easily when touched. I was a piece of meat on a cold slab, no one had an ounce of sympathy for me. I shook uncontrolably in fear and crie and none of them so much as patted my shoulder.Well, all of that aside I lost a kidney from that tumor because it had blocked by bladder. I spent nearly 3 weeks in the hospital in Jan & Feb 07. A team of doctors told my family there was no hope for me. I was dying. And I felt like it. All I did was throw up and pass out. My blood count was 4! I had CT scans that showed cancer in my abdomen, lymph system, breats and bones. I was sent home on hospice. Hospice nurses thought I wouldn't live a month but over a year later they are talking about taking me off hospice because I am doing so well. I guess I am here to tell you not to worry. Cancer is not a death sentance. I di not have radiation or chemotherapy. All I did was strengthen my immune system so it could heal my body. I still have cancer but it is shrinking and I feel 100% better. I got a Greenstar masticating juicer and three to four times a day my husband juices be a nasty concoction that I attribute to much of my strength. 3 peeled carrots/half a granny smith apple/just less than a quarter of a red beet/a small handful of baby spinach, all organic. Along with this I drink two glasses of wheat/barley grass powder in orange or pineapple juice. I take 4 to 9 RM-10 Ultra, a mushroom complex and eat a cup of organic yogurt with flax seed oil mixed into it twice a day. If you would like to talk more I am here to help. Don't be scared sweety, thre are things you can do to get well.Usually I only talk to people who have been given no more hope, but your story resounded with me so I had to talk to you. Take care.Last Hope  lasthope Sat, 19 Apr 2008 00:00:00 GMT Sorry about all the typing errors. I just got a new keyboard. I should have spell-checked that last message. lasthope Sat, 19 Apr 2008 00:00:00 GMT First and foremost get a new doctor, have your test repeated immediatly, consult with and gynecology oncologist if unsure. This type of cancer is easily curable in early stages. I would say they messed up your test, maybe even had it mixed up with someone else. The bleeding is a problem so It needs to be checked. Start afresh and do it now..Time is of the essence. Take care and let us know what happens. mmsOn 4/19/2008 moonbeamsonata wrote:Hi. Any thoughts from veterans would be much appreciated. I'm 25 and went to my annual pap smear Feb. 5, 2008. I was told the results would be back within 2 weeks and if questionable I would get a call. During my exam, the RN opened my pap testing supplies with her bare hands, I questioned it, and she said that it was okay and it didn't matter. Directly after my exam I had incredible pain and bleeding that has never subsided. Was told that that was normal (but never experience that before myself). Anyway, March 26 (well over 2 weeks) they call me and tell me I have cancer and need to take care of it immediately and have a procedure in the office. But the earliest I can come in is the next Monday. I go in and they then tell me I "do not have cancer, they think" hand me a few pamphlets and ask if I have questions. I question them about the delay in talking to me, they avoid the question. I question them about the pain and bleeding since my exam, they tell me that sometimes the exam will make your period start sooner, I tell them I just had my period the week before the exam, they say "Well that is strange" and walk away.They then tell me to call another office and I do so, and I have the earliest appointment April 29, 2008. I have been in so much pain it is nearly unbearable. I have only had sex with my boyfriend of 2 years maybe 5 times since January (not normal), but sex hurts so much. It burns, and intense pain (more than the now normal pain). I have found that condoms make the burning stop. I tried to have sex with my boyfriend this last Tuesday and it hurt so much more than before. I went to take a warm shower in hopes that that would ease the pain. But while washing, I pea-sized piece of flesh came off of my cervix! It was whiteish in color and sort of hard and sponge at the same time, like a piece of gristle (spelling? like in meat). The pain instantly became magnitized, I nearly didn't make it out of the shower to lie on my bed. I'm sorry for the gross details, but I am really desperate. The "C" word is very scary to me there are a lot of different types of cancers in my family and I am very worried. There is no cervical cancer in my family that I am aware of, so I don't know much about it. But I have been looking online and trying to do some research as well as my mom, but I would like thoughts from people who have been here before. The only real thing that the original Dr's office would say was that it was some type of Squamous cell, I can't remember what it was called and they wouldn't write it down for me. Thanks for your help in advance.  mmsurvivor Wed, 23 Apr 2008 00:00:00 GMT