CancerCompass message board discussion started by Amy Lynne on 4/25/2008 http://www.cancercompass.com/message-board/message/all,23408,0.htm Sat, 30 Aug 2008 00:00:00 GMT Sat, 30 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Well, just as soon as I post something positive, I get a call from my sister L  who is the primary care giver of my sister A who has GBM IV.  Her MRI did come out clear as far as a recurrence of the tumor.  However, she is in the hospital for surgery of a complete hysterectomy and bladder restructure.  Sister L, is very much like Jill is right now with caring for her father.  She is exhausted and very emotional.  Sister L knows that when sister A is released that she is in for a long recovery time with sister A.  Sister L has placed her own life on hold to care for our sister A.  I told sister L about this site and about all of the wonderful people who are dealing with the same situation.  I told her I would be giving her the link to this site and to vent her concerns to all of you.  This is our support system and for me, its been a God send.  I'm sure it will be for her. Sister L, you are not alone.  We are all going through the same thing.  I hope you find this site as helpful as I have.Love Amy Amy Lynne Fri, 25 Apr 2008 00:00:00 GMT Amy,I'm so sorry about your sister's setback. I think we forget that other health issues can occur when your dealing w/cancer. I hope the surgery goes OK and she recovers quickly. Does your sister know what's going on? I seen from your other thread that her short term memory and speech is very bad. Sounds like my dad and sometimes he gets angry with me because I think he doesn't know something, but he really does and I just didn't make the right guess. I really feel these boards help me as a caregiver and also just to sort out the feelings that you have watching a loved one suffer through this. I hope your other sister does join in. Again, I'm sorry your sister had to endure another surgery. My thoughts are with you and your family.Jill Jilby Fri, 25 Apr 2008 00:00:00 GMT You Jill, I believe that God works in mysterious ways.  I got on the message board yesterday because it had been a while.  I have been reading this board and trying to find answers and/or companionship with others going through the same thing for a year now.  Your message really touched me.  So, I replied with as many encouraging words that I could find for you as I could feel your hurt and frustration. Unbeknowst to me, I get home last night and my sister, Linda, called and she was in exactly the same frame of mind as you were when you posted your message.  I talked to her for an hour on the phone trying to find words to comfort her as well.Sister, Arlene, is still in the hospital as of yesterday, heavily sedated.  I don't believe she knows whats going on right now really.  This has been difficult for our family as I know it is for yours.I told Linda about you and your message and that she should join because, really, its Linda who is there with sister, Arlene, day-to-day. I did email her this morning with your kinds words.God gives each other to help us through and that is the blessing of this site.My prayers are with you.Amy Amy Lynne Fri, 25 Apr 2008 00:00:00 GMT