CancerCompass message board discussion started by rick51 on 4/28/2008 http://www.cancercompass.com/message-board/message/all,23530,0.htm Mon, 01 Dec 2008 00:00:00 GMT Mon, 01 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Two weeks ago my first ct-scan after radiation for tonsil cancer showed my tumor was gone. All excited until today. My ent found a "suspicous mark" underneath my tongue. It bled when he touched it. Said it could just be radiation fallout because sores take a long time to heal after radiation, or it could be much worse. Four weeks of waiting, if it is still there. They'll need to cut out a chunk for biopsy. Four weeks of worry.Just goes to show you that for us we'll always have this fear in our minds every day. Life will never be the same.Live every day to the fullest because you never know when bad news will come.God bless,Rick rick51 Mon, 28 Apr 2008 00:00:00 GMT  Dear Rick: We can pray for you to have good news. It is so hard to suffer so much pain and also worry for the future. I see you help others so I am here to encourage you. Have you added natural supplements to your diet. Of course you will be restricted because of where your cancer is but adding coQ10, Cod liver oil of omega 3's and B vitamins and some fresh vegetable juice to the diet can help boost the immune system.  Also google epicor and read the story on it, works wonders on the immune system to boost it.  All the best and maybe it will be a very big yipee. On 4/28/2008 rick51 wrote:Two weeks ago my first ct-scan after radiation for tonsil cancer showed my tumor was gone. All excited until today. My ent found a "suspicous mark" underneath my tongue. It bled when he touched it. Said it could just be radiation fallout because sores take a long time to heal after radiation, or it could be much worse. Four weeks of waiting, if it is still there. They'll need to cut out a chunk for biopsy. Four weeks of worry.Just goes to show you that for us we'll always have this fear in our minds every day. Life will never be the same.Live every day to the fullest because you never know when bad news will come.God bless,Rick  mmsurvivor Mon, 28 Apr 2008 00:00:00 GMT Thanks. Yes, I am taking Poly-mva, Xango, and an immune building vitamin pack. Plus doing Dahn healing Yoga 2 hrs every day.Everything that can be going in is going in. Now it's up to the good Lord as to what he wants from me.We'll see what happens in 4 weeks. I'm more down about the reality that life will be this way for a long time. Every toe ache may be something to worry about. It's hard to stay positve, but tomorrow is a new sunny day.God bless,Rick rick51 Mon, 28 Apr 2008 00:00:00 GMT sorry to hear you have unsettling news...i will think positive thoughts for you and send good energy your way.  i am sure everyone else on this board is doing the same..be well. ~meesh meesh Tue, 29 Apr 2008 00:00:00 GMT I am praying for you and hope it is indeed a side effect of the radiation. My fiance is only at the very beginning of this long road, and I can imagine how disheartened you must feel, but it "ain't over til the fat lady sings," and I'm not singing! :-)Be well and may God bless you. calyndula Tue, 29 Apr 2008 00:00:00 GMT  On 4/28/2008 rick51 wrote:Two weeks ago my first ct-scan after radiation for tonsil cancer showed my tumor was gone. All excited until today. My ent found a "suspicous mark" underneath my tongue. It bled when he touched it. Said it could just be radiation fallout because sores take a long time to heal after radiation, or it could be much worse. Four weeks of waiting, if it is still there. They'll need to cut out a chunk for biopsy. Four weeks of worry.Just goes to show you that for us we'll always have this fear in our minds every day. Life will never be the same.Live every day to the fullest because you never know when bad news will come.God bless,RickOh Rick--I am so sorry--what a mess---Cancer STINKS!!! It will be a long 4 weeks. Hopefully, with the CT, showing no tumor, it will be just a "skin thing" trying to heal.....We'll keep you in our prayers!!DeniseB DeniseB Tue, 29 Apr 2008 00:00:00 GMT  On 4/28/2008 rick51 wrote:Two weeks ago my first ct-scan after radiation for tonsil cancer showed my tumor was gone. All excited until today. My ent found a "suspicous mark" underneath my tongue. It bled when he touched it. Said it could just be radiation fallout because sores take a long time to heal after radiation, or it could be much worse. Four weeks of waiting, if it is still there. They'll need to cut out a chunk for biopsy. Four weeks of worry.Just goes to show you that for us we'll always have this fear in our minds every day. Life will never be the same.Live every day to the fullest because you never know when bad news will come.God bless,RickRick,I am sorry to hear about your latest checkup.  You have been such a help to so many people on this board including me.You have great doctors and  one of the best cancer treatment centers.  On the positive side, if there can be any such thing during times like this, with the type of excellent care that you received...doesn't it seem more likely that it is just a radiation reaction?  Stay positive, you know that each of us have different reactions to the radiation this might just be a late side effect. D.   D1211 Tue, 29 Apr 2008 00:00:00 GMT Rick I'm just beginning you've made it a long way. You'll have a tough few weeks till you know but my support group here in upstate new york and central conn. will be praying for you too.wm youngwm Tue, 29 Apr 2008 00:00:00 GMT Rick:Cancer sucks.  This is my latest phrase for all postings.  Why?  Because it infiltrates every aspect of our lives whether we want it to or not.  On the other hand, we can chose to live our lives without it clogging our view, as I believe you do.  I'll be praying for the good news I believe will come.Chin up, breath the air, hug the wife and live.  My best to you,Kara Mediator Tue, 29 Apr 2008 00:00:00 GMT Thanks everyone. I'm feeling better today mentally. Yesterday's news really stunk. But, trying to see the postive side. I just don't know how this could be anything more than a radiation sore. It is right where the radiation hit hard every day. I don't see how a small cancer could have survived at that spot when a big ole tumor was eliminated.I'm just going w/ it being nothing until they tell me otherwise. p.s. Somone needs to produce CANCER SUCKS tee shirts. Rick rick51 Tue, 29 Apr 2008 00:00:00 GMT Rick, Our thoughts are with - sending positive vibes your way. Charles has had a couple good scares in the past year - two to be specific, and one of those involved his tounge, too. It turned out to be nothing. Why do you have to wait so long to get your test back? Julie21 Tue, 29 Apr 2008 00:00:00 GMT Hey Rick,I feel so confidant that what your doc saw has to be something from the radiation.  I am in total agreement with you; there is no way that cancer could survive the roasting.I am also curious as to why it would take 4 weeks to get results??I am definately sending some good vibes your way!! *hugs* g8orgal79 Tue, 29 Apr 2008 00:00:00 GMT Dearest Kind Rick,You have been such a positive lit candle for me during this time.  I am at 2 years since dx w/left tonsil SCC, left desection, 2out of 11 cancerious.  I have to be me and say I am saddened by the news and know that it is something else.   I would ask for the results ASAP, as I know they are ready that day or next at the most. I've worked in radiology, that is the only reason why I state that.  You have been a great positive mentor and I have looked forward to getting on the board and reading you notes for uplift.  I don't like this at all, sick to my stomach over this and crying for all of us.  I just want it to be over.  Sorry for stating this, but it hurts, really bad and hate for me to have allowed this moment to taken case.I was scheduled for a PET SCAN this Monday, then got a call stating that my insurance is not approving it but can do a CT Scan since the past test have been negative.  I don't feel right doing this CT as it could be somewhere else.  I'm having a bad issue with the blisters and yeast for the past 2-3 days, soreness and pain.  It hurts to drink water.  I just hate it, sorry!I know you will be fine and this will work out, wish I had enough strength to apply and accept more myself.Warm Blessings to you and your family and look forward to hearing the good news when you get it!!Patricia  pcn17 Tue, 29 Apr 2008 00:00:00 GMT Hi all,You guys are the best! Why don't you all come to Las Vegas and let's throw a party!!I guess I wasn't clear on the 4 weeks part for waiting for results. My ent dr. said he does not want to do a biopsy for 4 weeks to give the sore time to heal, if in fact it is a radiation sore. He does not want to cut on my now because it may be nothing. Even the biopsy requires knocking me out and cutting a pretty good chunk under my tongue. So, his logic is to wait a spell and let's see if it goes away on its own. I'm all in favor of that except as we all know, the wait is always the worst part.But, we all have to get used to it. The rest of our lives will be spent this way. Every toe ache may be something to check out and I hate that thought.Thank God my taste in Coors Light has come back!!God bless all of you. This board is the best.Rick  rick51 Tue, 29 Apr 2008 00:00:00 GMT Rick, I'm sorry you had to have something else to worry about. I'm crossing my fingers, lighting a candle and praying that your ent's hunch is correct and your cancer is indeed gone. You've been such a positive, encouraging presence around here, we need some of that good karma to come back your way.Glad to hear you can taste your Coors again. My newest blessing is that I can taste the cheaper mainstream beers better than the more expensive microbrews I used to favor. Matter of fact, I just got home from the Twins vs White Sox game where I had 3 Budweisers, and they tasted GREAT! I also found out I can taste peanuts again. We're all pulling for you.Best wishes,Mike.   micromisterphone Tue, 29 Apr 2008 00:00:00 GMT Thanks Mike.I'm planning a trip to So. Cal. from Vegas to go to a Dodger game. Can't wait to hear Vin Scully and devour Dodger dogs and beer.So, are you in Chicago or Minn?Rick rick51 Wed, 30 Apr 2008 00:00:00 GMT Rick,You have been such a positive voice here.  And you have helped so many people with your kind thoughts and words.  Don't you dare give up!  We need you here!  Especially those of us that are just starting down this road.  So, think good thoughts!  The mind is SO powerful!  Take good care, I know you're going to be just fine!  Babzilla Wed, 30 Apr 2008 00:00:00 GMT Yes Rick but we need to add below, BUT we are strong.  Put in the positvie note!!On 4/29/2008 rick51 wrote:Thanks everyone. I'm feeling better today mentally. Yesterday's news really stunk. But, trying to see the postive side. I just don't know how this could be anything more than a radiation sore. It is right where the radiation hit hard every day. I don't see how a small cancer could have survived at that spot when a big ole tumor was eliminated.I'm just going w/ it being nothing until they tell me otherwise. p.s. Somone needs to produce CANCER SUCKS tee shirts. Rick  mmsurvivor Wed, 30 Apr 2008 00:00:00 GMT Hi Rick, I'm sorry to hear you have to worry. I haven't been on this board too long, but I always see you and some others always giving advice and support. So we will all be here for you. My husband has tonsillar cancer (2 more radiations left) but last year his cousin had the exact same cancer. After his radiation and chemo treatments were finished, his CT scan showed something. After the surgery (they took out 79 lymph nodes in his neck and all were negative) they said it was scar tissue that showed in the scan. All this chemo and rad just destroys everything. Stay upbeat because you still have a clear scan to be happy about. Carol capp519 Wed, 30 Apr 2008 00:00:00 GMT Rick, I'm east of the Twin Cities in western Wisconsin. We call them "Dome Dogs" (because they play in the Metrodome). So I had a dog, a bag of peanuts and some beer. Just like old times.My friend and coworker just had a buddy move out to New England, so when he visits, they are going to Fenway Park, which for a baseball fan is like going to Lambeau Fiels in Green Bay. Wonder what they call their dogs. Fenway dogs? Green Monster dogs?Mike micromisterphone Wed, 30 Apr 2008 00:00:00 GMT I actually started investigating a Cancer Sucks tshirt the other night.  A whole line of funnier cancer t shirts- Why not?  Nothing got me thru this process better than laughing with my hubby.Here's a good one - during an all day chemo session, while he was getting his fluids, we laughed so hard he started peeing himself!  We jumped up and tried to get to the toilet but he ended up with half his bladder on the floor next to the toilet vs in it!  We were still laughing when they had to call housekeeping with a mop....LOL and hard! Kara   Mediator Wed, 30 Apr 2008 00:00:00 GMT  i  was thinking the same thing, that radiation would have killed everything in that areai am sure it is just some risidual sore that needs to healit is hard not to worry but after you get the good news you will worry less the next time something happens.i am thinking positive thoughts for youtake care and rejoice the worst is over over over !!!!  SherG Thu, 01 May 2008 00:00:00 GMT