CancerCompass message board discussion started by dolls17 on 4/30/2008 http://www.cancercompass.com/message-board/message/all,23585,0.htm Thu, 24 Jul 2008 00:00:00 GMT Thu, 24 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi. Although I've gotten reassurance from my Endo about this, it still scares me. In May '07 I had 2 surgeries for papillary microfocal cancer, and ablation/ body scan/ TSH withdrawal in August '07. A thyroglobulin test in Nov showed no activity. Just last week, I had my first set of Thyrogen shots for my annual re-check(with plenty of side effects, I might add).Anyway, I was not required to do the LID again or any other tests--just the shots alone. I'm noticing that everyone else seems to get at least an ultrasound or body scan along with the shots. My Endo says that because my thyroid is totally gone, it's a waste of $ to do anything more. If my thyroglobulin test shows activity after the shots, then he'll do the scan,etc. He's very adament about it, and insists that less than 1% of cancer is missed by doing Thyrogen alone. With the way my year has been, I'd probably fall into that 1%!  I know there's a great debate about the accuracy of Thyrogen. I guess realistically I'm looking for one more person to confirm what my Endo says, so that I don't worry to death for the next year. Thanks for any comments.  dolls17 Wed, 30 Apr 2008 00:00:00 GMT Sorry, I meant to say multifocal papillary cancer, not microfocal. My brain isn't back to normal yet. dolls17 Wed, 30 Apr 2008 00:00:00 GMT I had the thyrogen shots in February with no LID. I had the shots on Monday and Tuesday, blood work on all days, and a scan on Friday. The scan showed I still had residual thyroid tissue so I had to have a second round of RAI (this came from my oncologist). In 6 mos. I will go through it again; once they show no signs of residual thyroid tissue, they will go based on the thyroglobulin levels... I don't anticipate any other scans after the next one. jmcd630 Wed, 30 Apr 2008 00:00:00 GMT My doctors said I had a 1% chance of mine being malignant.  It WAS malignant and an uncommon aggressive cell.  I almost didn't have the surgery, but I thought "my luck, I'll be in the 1%.  Don't take any chances (my opinion).   YaYaTara Sun, 11 May 2008 00:00:00 GMT