CancerCompass message board discussion started by Karen321 on 5/1/2008 http://www.cancercompass.com/message-board/message/all,23639,0.htm Sat, 30 Aug 2008 00:00:00 GMT Sat, 30 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi everyoneMy husband was diagnosed with PTC in December and has since had a total thyroidectomy and just one week ago had his RAI treatment. The mass was 1.5 cm. (That was the largest one) There were several throughout the thyroid. Two of four nodes removed were positive. The endo said after reading the pathology report that there was some slight growth outside of the thyroid and she was going to treat him as higher risk despite his age. (under 45) The surgeon, however, said that she thought it wasn't really outside of the thyroid and that "just because my scalpel happened to find extra tissue doesn't mean I was looking for clear margins." I *wish* I had asked her what the heck that meant but I was trying to digest it all as I had a million questions for her. Anyway, she seemed unconcerned and released my husband back to the endo for his RAI. He had that as I said a week ago and just had his WBS today. The technician told him that she saw uptake in the neck area but nowhere else. I am thinking that's the best news...it worked as far as absorbing the iodine but there doesn't seem to be any cancer in the rest of his body. We will get the exact report from the endo tomorrow. I was just wondering if anyone here knows what their tg level was after surgery but before RAI. My husband's was 13. It seems high but I know it could be leftover tissue, etc. I also know that the test isn't reliable before RAI. I'm just curious if anyone here knows what theirs was and if it's possible to go from a 13 to a 0 after RAI. Thank you so much for all of your posts...I have been reading since my husbands diagnosis and you saved me a lot of sleepless nights by sharing things that you went through and it helped me understand so much. I really appreciate it. Thanks in advance for any information you might have.  Karen Karen321 Thu, 01 May 2008 00:00:00 GMT Anyone? Karen321 Fri, 02 May 2008 00:00:00 GMT Hi.  My endo wanted my tg level to be 0 and I mean 0.  Before my first surgery my level was 9.40.  Before the first RAI my level was 14.70.  Since then, i have had a second surgery for mets to my neck and they have been <1.0.  I have my WBS this thurs so we will see if I am actually free of this disease then.  Hope this helped. Nurserobin Sun, 04 May 2008 00:00:00 GMT Nurserobin, It did help...a lot. It's odd that the tg level rose after surgery but before RAI. I will be thinking of you with your WBS. I will be watching the messages to see how you did. Good good luck to you. Thank you for replying, I appreciate it. :) Karen Karen321 Mon, 05 May 2008 00:00:00 GMT Karen: Well with all results in, I can now say that I am CANCER FREE!!!!  Thanks for your prayers and well wishes.  How is your husband doing?  I will continue to pray for him and everyone else. Robin Nurserobin Tue, 03 Jun 2008 00:00:00 GMT Congratulations Robin!!!That is the best news I have heard all day!!! I wish you continued good health and all the best!  Karen Karen321 Mon, 09 Jun 2008 00:00:00 GMT Oops....forgot to mention. Husband is doing well. He had a very rough go of it during RAI but he is back to normal (well, as normal as he was before his diagnosis) *wink* and he had uptake in the neck only and we will find out his tg at the end of this month. Thank you for asking and congratulations again! Karen Karen321 Mon, 09 Jun 2008 00:00:00 GMT