CancerCompass message board discussion started by YaYaTara on 5/11/2008 http://www.cancercompass.com/message-board/message/all,23931,0.htm Sun, 06 Jul 2008 00:00:00 GMT Sun, 06 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ There are a few of us on the board (Nurserobin, nickyskye, Leemg +myself) who are looking for others with Tall Cell Papillary thyroid cancer.  If anyone has advice, knowledge, experience or questions--please share.  I begin my Thryogen tomorrow and WBS on Friday.  Anxious (scared) to find out  my results because of the particular cell being aggressive and sometimes resistant to treatment.  Good luck to everyone out there struggling with any disease.  I can't tell you how much information and comfort I have received from this message board.  Tara YaYaTara Sun, 11 May 2008 00:00:00 GMT Hi Tara, Alot of what I have read on the internet explains the prognosis of tall cell cancer is dependent on age of patient at diagnosis and removal. I wish I knew more. I am going to the endo tomorrow and will find out about the rai treatment for me. The surgeon did tell me that she was unable to get all the cancer out, because of how much was wrapped around my esophogas and trachea. So she is hoping that the rai will kill the rest of it. Anyone know anything about this ?Good Luck to you.   georgetwo Sun, 18 May 2008 00:00:00 GMT  On 5/18/2008 georgetwo wrote:Hi Tara, Alot of what I have read on the internet explains the prognosis of tall cell cancer is dependent on age of patient at diagnosis and removal. I wish I knew more. I am going to the endo tomorrow and will find out about the rai treatment for me. The surgeon did tell me that she was unable to get all the cancer out, because of how much was wrapped around my esophogas and trachea. So she is hoping that the rai will kill the rest of it. Anyone know anything about this ?Good Luck to you.  Actually, I had residual cancer tissue left as well.  My RAI was 150 and I had to have it a second time.  (I have Tall Cell).  Last M+T, I had Thyrogen; W- RAI tracer; Friday- WBS.  My WBS was fine!!  Let me know what your doctor says!  Tara   YaYaTara Mon, 19 May 2008 00:00:00 GMT  On 5/18/2008 georgetwo wrote:Hi Tara, Alot of what I have read on the internet explains the prognosis of tall cell cancer is dependent on age of patient at diagnosis and removal. I wish I knew more. I am going to the endo tomorrow and will find out about the rai treatment for me. The surgeon did tell me that she was unable to get all the cancer out, because of how much was wrapped around my esophogas and trachea. So she is hoping that the rai will kill the rest of it. Anyone know anything about this ?Good Luck to you.  What did you find out from the doctor?  What is your RAI dosage recommendation and schedule?  Did they tell you Tall Cell?   YaYaTara Wed, 21 May 2008 00:00:00 GMT The Date for me is June 27th and the name is RAI - 131. He said they have left a large qty in there after surgery and he needs to give me a higher dosage.  He said I can't use thyrogen, because of the amount of cancer left to kill. Today was a rough day, Just changed to Cytomel, not sure it is agreeing with my coumadin, and other meds. How are you doing? georgetwo Wed, 21 May 2008 00:00:00 GMT Tara, Did you get sick or have any problems with the RAI or did you feel like just any other day?  Oh, and my pathology report indicated papillary, multifocal cancer. Not Tall Cell.    georgetwo Wed, 21 May 2008 00:00:00 GMT  On 5/21/2008 georgetwo wrote:Tara, Did you get sick or have any problems with the RAI or did you feel like just any other day?  Oh, and my pathology report indicated papillary, multifocal cancer. Not Tall Cell.   george2 - I did get pretty sick with the 150 RAI.  I was very nauseated and out-of-it like it was all a dream.  I was alone in an apartment for the weekend and I don't think I will ever do that again.  I vomited all night and all day and I couldn't tell if it was afternoon or night or what day it was.  It might have been the combination of being hypo, low calcium, the 150 RAI---but I didn't expect to be sick at all.  My sister kept contact with me by phone and even got some anti-nausea suppositories from the doctor for me. It's great that you don't have Tall Cell. I'll be thinking of you---let me know how you do.  I think everyone is different.  I don't know of anyone else who got sick like I do.  I don't usually get nauseated easily at all, so it was unexpected for me.  I laid in bed and thought of all the little kids that have to deal with chemo and nausea and was glad it was me and not one of them going through it.  I always make myself aware that others have it much worse who are young or elderly---and that I CAN do it!  Tara   YaYaTara Thu, 22 May 2008 00:00:00 GMT