CancerCompass message board discussion started by Mike6131 on 5/11/2008 http://www.cancercompass.com/message-board/message/all,23936,0.htm Thu, 24 Jul 2008 00:00:00 GMT Thu, 24 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Okay, I am trying to find information about sarcomatoid carcinoma in the pancreatic area.My dad had the "Whipple procedure" done, but now they are saying he has this extremely rare combination of the sarcomatoid being in this area. We are in Chicago and even they are saying they've only seen three if these in recent history. He is scared as to what might happen next. Anyone else had this combo?  Thank you -  Mike Mike6131 Sun, 11 May 2008 00:00:00 GMT My sister had a gastrointestinal sarcoma.  There are apparently lots of different types of them, some malignant and some benign.  If they use sarcoma to describe it, I believe it means it is malignant.  She did not have PC, but had a tripple by pass after having a heart attack six months before they found the tumor.  They think the stress of the heart attack may have set off the tumor growth and that perhaps the condition had been there for years, dormant.  I can't think of anything more stressful than having gone through Whipple surgery.My sister had surgery to remove the tumor.  It was extensive surgery.   Reason I am posting, they now have a treatment for stromal tumors. My sister was given oral chemotherapy, GLEEVEC, which she didn't tolerate well.  Then they tried SUTENT and she did well on it.  Even if your Father can't have additional surgery, maybe they can give him one of these drugs which suppresses tumor growth.  I'm very sorry for your Dad's troubles.        AliveInOldeTown Mon, 12 May 2008 00:00:00 GMT Thank you so much for the information! All the best to you. I will keep you in my thoughts and prayers ...  Mike Mike6131 Mon, 12 May 2008 00:00:00 GMT