CancerCompass message board discussion started by indigogirl on 5/12/2008 http://www.cancercompass.com/message-board/message/all,23955,0.htm Tue, 07 Oct 2008 00:00:00 GMT Tue, 07 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My doc has me on 50 mcg once a day of Cytomel a day. I am 5' 5" and around 135. I am having a hard time falling asleep even with sleeping pills and my resting heart rate was 110 last night. It is usually about 60. It makes me feel like I've taken cold medicine. Anywone else? Do we have to take this stuff? I start the LID on June 5 and have the RAI June 15. indigogirl Mon, 12 May 2008 00:00:00 GMT  On 5/12/2008 NOBUTTERFLY wrote:My doc has me on 50 mcg once a day of Cytomel a day. I am 5' 5" and around 135. I am having a hard time falling asleep even with sleeping pills and my resting heart rate was 110 last night. It is usually about 60. It makes me feel like I've taken cold medicine. Anywone else? Do we have to take this stuff? I start the LID on June 5 and have the RAI June 15. cytomel is given to you in preparation for RAI, LID and hypo condition.  It is the easiest medication to take you off of in order to go hypo.  I had it for awhile until they decided to use Thyrogen on me instead of letting me go hypo.  I had zero side effects.  I'd call your dr and ask if it's taken you hyper. That's what it sounds to me. dinparadise Mon, 12 May 2008 00:00:00 GMT  On 5/12/2008 dinparadise wrote: On 5/12/2008 NOBUTTERFLY wrote:My doc has me on 50 mcg once a day of Cytomel a day. I am 5' 5" and around 135. I am having a hard time falling asleep even with sleeping pills and my resting heart rate was 110 last night. It is usually about 60. It makes me feel like I've taken cold medicine. Anywone else? Do we have to take this stuff? I start the LID on June 5 and have the RAI June 15. cytomel is given to you in preparation for RAI, LID and hypo condition.  It is the easiest medication to take you off of in order to go hypo.  I had it for awhile until they decided to use Thyrogen on me instead of letting me go hypo.  I had zero side effects.  I'd call your dr and ask if it's taken you hyper. That's what it sounds to me. thank you I will  indigogirl Mon, 12 May 2008 00:00:00 GMT I can not even tell you how aweful Cytomel made me feel.  I had really really bad panic attacks while taking it.  Some people for some reason have bad reactions to Cytomel.  Call and tell your endo what is going on.  He/she will probably reduce the amount you take.  I was taking after my TT and before my RAI, and after I quit taking it the panic attacks stopped and I felt 100% better.  It can feel like a heart attack.  Your heart will race, and you will feel really weird.  Look up the symtoms of panic attacks and see if it sounds like what you are feeling. I hope this helps.  Skylog skylog Mon, 12 May 2008 00:00:00 GMT  On 5/12/2008 NOBUTTERFLY wrote:My doc has me on 50 mcg once a day of Cytomel a day. I am 5' 5" and around 135. I am having a hard time falling asleep even with sleeping pills and my resting heart rate was 110 last night. It is usually about 60. It makes me feel like I've taken cold medicine. Anywone else? Do we have to take this stuff? I start the LID on June 5 and have the RAI June 15.   I was put on the LID & taken off my meds SIX weeks before my tests.I am on Armour which is both T3 & T4 in combo.  I sleep really good (without drugs) & also feel great - but I had to try several other kinds of drugs pushed on me before I discovered this one!I found a site that was very helpful "Stop the Thyroid Madness" - it answered a lot of questions for me - perhaps it will be helful for you too.Good luck with your tests..... KathyMMM Mon, 12 May 2008 00:00:00 GMT I think I have been having a bad reaction to Cytomel as well.I was taking 25 mcg twice a day and that made me feel like my heart was going to come out of my chest.They dropped me down to 1/2 a 25 mcg in the morning and 1/2 at night.  I feel a little better but with any activity--watch out!  Plus I have lots of other sensations going on so it's just a anxiety attack waiting to happen!I understand why I/we have to take this medicine, but it doesn't make the side effects any easier to deal with.Just do what I have been trying so hard to do.  Just believe in the fact that you are going to be okay.  That's all we can do.  Just belive and hope.Take care of yourself.  lrquake Mon, 12 May 2008 00:00:00 GMT Yes. Something is wrong, or rather something isn't correct with that dosage and your body or that drug and you. I was put on cytomel 2 days after surgery and in the next month have had zero negative reactions. Oddly I'm 15 days off of it now, I get RAI in 4 days, and feel absolutely normal... point here is that it CAN have no ill effects -- so talk with your doc ASAP and have him change it so that what you are prescribed makes you feel better. RedStar RedStar17 Mon, 12 May 2008 00:00:00 GMT  On 5/12/2008 NOBUTTERFLY wrote:My doc has me on 50 mcg once a day of Cytomel a day. I am 5' 5" and around 135. I am having a hard time falling asleep even with sleeping pills and my resting heart rate was 110 last night. It is usually about 60. It makes me feel like I've taken cold medicine. Anywone else? Do we have to take this stuff? I start the LID on June 5 and have the RAI June 15. I have seen recommendations that say to take your cytomel two times a day to prevent what you are describing. It's very fast acting and metabolizes quickly. My daugther is on 25 once a day in morning and they said if the want's to stablize it to take 12 and 12 twice  day. She's ok on 25 in morning.  She is 5.3 and 125 so close to your size. YOu might want to cut in half and take 25 in morning and 25 after lunch.  Ask you doc of cousre but that's a lot to take all at once. My daugther starts her LID on 6/4 and her bloodwork on 6/11 then 6/18 appt to see if she needs retreatment. Sounds like you are on same schedule. denmurpar Tue, 13 May 2008 00:00:00 GMT The dosage is wrong for sure.  My surgeon had me taking 2 (25's) in the morning, but when I went to my first post-surgery appointment with my Endo, she said specifically not to take it like that.  I believe she said that it's effectiveness is first felt within 2.5 hours and then starts tapering off at about 6.  She instructed me to take 2 pills and split them in half and take it 4 times a day.  I haven't had any side effects since. angieml Mon, 09 Jun 2008 00:00:00 GMT