CancerCompass message board discussion started by Terryjoe on 5/15/2008 http://www.cancercompass.com/message-board/message/all,24036,0.htm Thu, 21 Aug 2008 00:00:00 GMT Thu, 21 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hey everyone! Havent posted in a while so I thought I would give an update for those I have talked with since I started. Just received my 4th dose of Avastin today and I go in a week from tomorrow for a brain and CAT scan. I have been having some head aches since I started on the Avastin once so severe I couldnt keep my right eye open all the way. Other times, not even close to that bad but still ached. So, my oncologist suggested we get both scans done at the same time since I havent had a brain scan done since the summer of 06 when I spent 2 1/2 months in the hospital with 3 surgeries and even Parentinitus. Feeling great otherwise, except for being tired a few days after the Avastin. Everyone in the medical field I talk to about the Avastin tell me it works really great on a lot of people. Whenever I go up to the hospital (Swedish in Seattle) I overhear patients around me getting Avastin also. Sure is a lot different then the side effects I had while on the Sutent. Oh well, the Sutent worked for 12 cycles before it stopped helping. This site has helped me get to this point. Helping me feel better when I feel down and answer questions I have. It has allowed me to share my experiences with those of you who have asked. Keep posting, it may not seem much by it is amazing how much better you feel when you can share experiences and information we learn. Thanks for being there!Terry Terryjoe Thu, 15 May 2008 00:00:00 GMT  On 5/15/2008 Terryjoe wrote:Hey everyone! Havent posted in a while so I thought I would give an update for those I have talked with since I started. Just received my 4th dose of Avastin today and I go in a week from tomorrow for a brain and CAT scan. I have been having some head aches since I started on the Avastin once so severe I couldnt keep my right eye open all the way. Other times, not even close to that bad but still ached. So, my oncologist suggested we get both scans done at the same time since I havent had a brain scan done since the summer of 06 when I spent 2 1/2 months in the hospital with 3 surgeries and even Parentinitus. Feeling great otherwise, except for being tired a few days after the Avastin. Everyone in the medical field I talk to about the Avastin tell me it works really great on a lot of people. Whenever I go up to the hospital (Swedish in Seattle) I overhear patients around me getting Avastin also. Sure is a lot different then the side effects I had while on the Sutent. Oh well, the Sutent worked for 12 cycles before it stopped helping. This site has helped me get to this point. Helping me feel better when I feel down and answer questions I have. It has allowed me to share my experiences with those of you who have asked. Keep posting, it may not seem much by it is amazing how much better you feel when you can share experiences and information we learn. Thanks for being there!Terry Hi Terry,Good to hear about your avastin treatment. I hope it works for you. My oncologist has mentioned the drug as an option for me. I have been on Nexavar, Torisel, and now Sutent. I just had a Cat Scan yesterday, so I should know in a week or so if the Sutent is having any effect. It is a time full of anxiety. I totally agree this site is great. It is good to hear about other people's experiences, and to share your own.Keep posting. I'm interested in hearing how your treatment is going. The best of luck to you!Richard2 Richard2 Thu, 15 May 2008 00:00:00 GMT Good luck, Terry.  I hope you have good news!!! christina18 Sat, 17 May 2008 00:00:00 GMT Hi, My father has been diagnosed with Transitional cell carcinoma of kidney 6 months back but did not receive any treatment till now bcoz Dr. who dianosed and removed his right kidney suggested he will be ok without treatment but few weeks back Dr while doing cystoscopy found more tumors in bladder and Prostate and said that its invasive urothelial tumor.So we went to a different Oncologist and he asked us to get him CT and PET scan to see how much its spread.So we are waiting to get an appointmnet for it.The surgical Oncologist said that if its not spread then he can do radical cystectomy or else if its spread he said nothing can be done.Iam very worried and scared.Please help us.I know that with more information regarding drugs and the treatment thats working for different people I can go ask my Doctor too.Please suggest us..Please..Please..I love my dad and want to do everything to prolong his life.I live in MN but my dad is in India.Please let us know if we have better chances here in US..so that I can get him here..PLease...waiting for the reply. Ragha Sun, 01 Jun 2008 00:00:00 GMT