CancerCompass message board discussion started by lrquake on 5/17/2008 http://www.cancercompass.com/message-board/message/all,24121,0.htm Tue, 07 Oct 2008 00:00:00 GMT Tue, 07 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Has anyone else felt like their tongue was swollen/too large for your mouth--sort of along the sides--toward the back?  It doesn't have the appearance of being swollen--according to doctors but it sure feels strange....Any ideas?  lrquake Sat, 17 May 2008 00:00:00 GMT I new enough here that I don't know what stage you are in treatment. If this is post-RAI, I would say after what I've experienced with swelling anything is possible! If it is not related to RAI, I would wonder...maybe some uncommon side effect from whatever thyroid replacement you're on? Sounds uncomfortable and wish you a quick solution! They accidently cut the nerve to my tongue during my wisdom teeth removal 20 years ago...tongue issues are weird! I hope you figure it out! jenneric2000 Mon, 19 May 2008 00:00:00 GMT The strange thing is that I have been feeling this since before I even really knew what the problem was.Some days are better than others but I just wondered if anyone else had had this because I was thinking it might be a symptom of hypothyroidism.I started having trouble swallowing and breathing so I went to several doctors over the course of several months...you know how it is getting in to see a specialist....Anyway they decided to take out my right thryoid lobe because I had a sizeable lump there and it was compressing things in my neck.  About a week before surgery my left side went crazy and I developed a lump there.  They decided to go ahead and take out the whole thing.I had a TT in March 08 and was diagnosed with Papillary Carcinoma with an Oxyphyllic Variant.  It ended up that I had several nodules on the right side and I think three on the left side.  The largest was 5 cm--or 2 1/2 inches.  I was started on synthroid right after surgery and then switched to cytomel in preparation for RAI.  I started the LID yesterday and will go in for tracer and WBS on 6/3 and then receive radiation on 6/4.  Follow-up scans on 6/6 and 6/11. Thanks for replying....Take care of yourself. lrquake Tue, 20 May 2008 00:00:00 GMT