CancerCompass message board discussion started by Marga St John on 6/16/2008 http://www.cancercompass.com/message-board/message/all,25075,0.htm Sun, 23 Nov 2008 00:00:00 GMT Sun, 23 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ As a result of Vaso-Vagus Syndrome and a professional dancing career, I have Peripheral Neuropathy of the feet. I have no pain except when and after walking. My feet are swollen on the soles and sometimes over the instep; they are also numb and have low grade 'lightning' itching and tingling. I have tried the new kinoki Japanese foot pads, but they have had no effect. Neurotin does not reduce the swelling; nor does the antidepressant Paxil or tranquilizer Ativan. I eat pretty healthy but need to cut down on sugar - however I am not diabetic. My shoe size has increased from an 81/2 narrow to 91/2 medium. This PN condition started in 1986 and doesn't seem to be improving. Any similar conditions out there? Just wish I could control the swelling - the numbness and low grade pain I can live with. Thanks in advance for any response. Marga St John Mon, 16 Jun 2008 00:00:00 GMT  On 6/16/2008 Marga St John wrote:As a result of Vaso-Vagus Syndrome and a professional dancing career, I have Peripheral Neuropathy of the feet. I have no pain except when and after walking. My feet are swollen on the soles and sometimes over the instep; they are also numb and have low grade 'lightning' itching and tingling. I have tried the new kinoki Japanese foot pads, but they have had no effect. Neurotin does not reduce the swelling; nor does the antidepressant Paxil or tranquilizer Ativan. I eat pretty healthy but need to cut down on sugar - however I am not diabetic. My shoe size has increased from an 81/2 narrow to 91/2 medium. This PN condition started in 1986 and doesn't seem to be improving. Any similar conditions out there? Just wish I could control the swelling - the numbness and low grade pain I can live with. Thanks in advance for any response.You may want to take your question to www.neuropathy.org.  They have a message board/bulletin board that is devoted to peripheral neuropathy.Good Luck!  caregiver08 Thu, 19 Jun 2008 00:00:00 GMT I have peripheral neuropathy, I just found out last week, they said I have had it for 10 years, the way you described it is exactly the way I feel, it started for me with sharp pain in my toes 10 years ago, then numbness later on, now its tingling in my hands, they have no idea how or why I have it, my right foot is swollen and a lot worse than my left, I also have shoes two sizes bigger, would like to know how fast will it progress.  woody147 Sun, 13 Jul 2008 00:00:00 GMT Hi Marga -- I have PN due to taking Thalidomide for Multiple Myeloma.  Since I stopped the Thalid I have used Lyrica which eliminated all symptoms while I was taking it.  When I could no longer get the Lyrica I was put on Gabapenten 300mg.  While this is not as effective as Lyrica, it does work and the  PN is quite manageable.  Good Luck, Cath poppy/cath Tue, 15 Jul 2008 00:00:00 GMT