CancerCompass message board discussion started by jaycounty on 6/29/2008 http://www.cancercompass.com/message-board/message/all,25536,0.htm Sun, 23 Nov 2008 00:00:00 GMT Sun, 23 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ my cancer has stoped responding to rai. been fighting for three years now. i was supose to have the treatment dose of rai on tuesday. they called on friday and canceled said to come in on monday for options. sure wish i had some idea what those options could be? any one know? jaycounty Sun, 29 Jun 2008 00:00:00 GMT be careful if 5fu is an option...some people have a gentic deficiancy that dosen't allow the body to excrtete the chemo...look for my message on 5fu.... search 5fu on this siteOn 6/29/2008 jaycounty wrote:my cancer has stoped responding to rai. been fighting for three years now. i was supose to have the treatment dose of rai on tuesday. they called on friday and canceled said to come in on monday for options. sure wish i had some idea what those options could be? any one know?  colleen c Sun, 29 Jun 2008 00:00:00 GMT Hi, I couldn't quite tell by your message if you have had a thereputic dose of RAI and what were they if you did. Lizzie lizzie6 Sun, 29 Jun 2008 00:00:00 GMT Whats your TG now?  and Where are the tumors located?  Are they talking clinical trials?  where r you getting treatments?  Danny2008 Sun, 29 Jun 2008 00:00:00 GMT Where are you located?  My surgeon told me that if mine metastisized to contact him before doing anything.  There are new techniques out there that are noninvasive and very successful.  He didn't go into great detail, but I am sure it would depend on where it has spread and to what degree.  I can always put you in touch with him, but he's down in Florida.  If not, ask your oncologist and surgeon for your alternatives before making decisions. dinparadise Mon, 30 Jun 2008 00:00:00 GMT possibly alcohol ablation. you can read about it on mayo clinic's website, dr. ian hay. mvs1976 Mon, 30 Jun 2008 00:00:00 GMT  On 6/29/2008 jaycounty wrote:my cancer has stoped responding to rai. been fighting for three years now. i was supose to have the treatment dose of rai on tuesday. they called on friday and canceled said to come in on monday for options. sure wish i had some idea what those options could be? any one know?What type of thyroid cancer were you diagnosed with?  Do you have a variant of papillary (or whatever you have)?   I have 'tall cell' which can be resistant to RAI.  I had 150 dose of RAI.  I may have to repeat.  What is your situation?   YaYaTara Fri, 04 Jul 2008 00:00:00 GMT I am currentlhy in a similar situation and am going to ask doctor about PEI, which supposedly has had some success in treating mestastes of pap carcinoma in lymph nodes. PEI is injecting ethanol into affected area.  Sharpshiv Sun, 27 Jul 2008 00:00:00 GMT