CancerCompass message board discussion started by nonnie50 on 7/2/2008 http://www.cancercompass.com/message-board/message/all,25661,0.htm Sun, 23 Nov 2008 00:00:00 GMT Sun, 23 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ On aug 26 2007 I was told I had kidney tumor in both kidneys.And that removal is the only thing I could do .It turn  out I had two diffrent types of cancer. The left was renal 2.2, the right trans 7cen.So on oct 26,2007 I had part of my left kidney removed. I was in the hospital 6days. I hurt all over. DR said i would feel better after my right kidney was removed. So on Jan,16,2008 my right kidney was removed.They said i would lose weight,have engery .But they could not say if they got all the cancer.I have not felt any better, i feel worst. No matter what i DO NO ENGERY. They have sent me to endocerlogist about my adreal glands. the set on top of your kidney now mine are just floating not working right.I have headach  , I do not sleep at night i am in meopause. My life has changed more they any thought it would. I can barely put in a days work. If any one has these problems  and no a way of getting back your feet let me know.also if i could go back i would not have had surgery.   nonnie50 Wed, 02 Jul 2008 00:00:00 GMT  On 7/2/2008 nonnie50 wrote:On aug 26 2007 I was told I had kidney tumor in both kidneys.And that removal is the only thing I could do .It turn  out I had two diffrent types of cancer. The left was renal 2.2, the right trans 7cen.So on oct 26,2007 I had part of my left kidney removed. I was in the hospital 6days. I hurt all over. DR said i would feel better after my right kidney was removed. So on Jan,16,2008 my right kidney was removed.They said i would lose weight,have engery .But they could not say if they got all the cancer.I have not felt any better, i feel worst. No matter what i DO NO ENGERY. They have sent me to endocerlogist about my adreal glands. the set on top of your kidney now mine are just floating not working right.I have headach  , I do not sleep at night i am in meopause. My life has changed more they any thought it would. I can barely put in a days work. If any one has these problems  and no a way of getting back your feet let me know.also if i could go back i would not have had surgery.    ewiro Thu, 03 Jul 2008 00:00:00 GMT Nonnie, I'm sorry for what you are going through right now.  But it is a life lesson all the same.  You're journey to enlightenment includes this arduous path, but I bet you have the inner strength to make it through!I might make a recommendation for you to read a book called "There's No Place Like Hope; A Guide to Beating Cancer in Mind-Sized Bites" by Vickie Girard.  I've read, and re-read this book many times and still find bits of wisdom each new pass.Donald A. Wilhelm, authorThis Time's a Charm; Lessons of a Four-Time Cancer Survivor ThisTimesaCharm Thu, 03 Jul 2008 00:00:00 GMT  On 7/2/2008 nonnie50 wrote:On aug 26 2007 I was told I had kidney tumor in both kidneys.And that removal is the only thing I could do .It turn  out I had two diffrent types of cancer. The left was renal 2.2, the right trans 7cen.So on oct 26,2007 I had part of my left kidney removed. I was in the hospital 6days. I hurt all over. DR said i would feel better after my right kidney was removed. So on Jan,16,2008 my right kidney was removed.They said i would lose weight,have engery .But they could not say if they got all the cancer.I have not felt any better, i feel worst. No matter what i DO NO ENGERY. They have sent me to endocerlogist about my adreal glands. the set on top of your kidney now mine are just floating not working right.I have headach  , I do not sleep at night i am in meopause. My life has changed more they any thought it would. I can barely put in a days work. If any one has these problems  and no a way of getting back your feet let me know.also if i could go back i would not have had surgery.  I too had been diagnosed with Bilateral RCC in Oct.2005. A week later went in to have more than 1/2 of my left kidney removed. Tumor was close to 5 cent. They also had to remove a rib as tumor was sitting on that. In doing so, my lung collapsed and I got a slight case of pneumonia. Was in ICU for 2 days. Went home after 5 days.6 weeks later went in to have my right kidney completely removed. There was no saving it as the tumor was too big and on the renal vein.That was done laprapscopily. Drs said it would be easier. BALONEY ! I never felt worse in my life. I was so sick and weak. On top of this, the whole change in kidney function or lack of sent me into early menopause. Couldn't sleep, side effects from the meds were horrible made me even more nauseous. My complexion was grey and sickly. I was very very sick.I too have no energy whatsoever. But after 4 months I went back to work. I work full time, had too. That too was awful, no one at work can understand what I was feeling emotionally and physically. They thought since I'm at work that everything must be ok. How wrong they were. I never felt so isolated in my life. I looked for support groups, anyone who could help me feel not so alone with this type of cancer. There is nothing in Massachusetts, only if I want to travel to Boston area. Of course my Dr's loved me since I was such anomaly, my urologist even took a slide show of both my operations for view at Brigham and Womens Hospital in Boston,. nice huh? I found out through one of his nurses. My outlook was bleak to say the least. You know radiation and chemo are useless against KC. Surgery is the only option or clinical trials. I have no doctors advising me on nutrition, even though I've asked for help. The only dr's I see are my urologist for my cancer screenings, a kidney specialist, who is awesome at UMASS, and my primary care. I'm still playing the merry-go-round of medications to see what will work best for my kidney to keep it working and off of dialysis for as long as I can. It's a struggle. As you know bilateral only happens to less than 2 percent of those diagnosed, and supposedly it happens mostly to men, obviously cancer knows no bounds. I was in great health, don't smoke, eat good, exercise regularly, underweight for my size. don't even drink soda, so go figure? No history of any type of kidney problems in my family either. I have 6 brothers and 2 sisters. Thank God they are all in good health.I still feel sick pretty each morning I get up. Have to watch EVERY thing I eat. Can't eat too much protein-must stay under 50 grams a day,  have to watch potassium, salt intake, sugar and now have high blood pressure due to limited kidney function. Now cholesterol has spiked up greatly due to meds.I can't explain why I'm still here, only that God must have other plans for me, or a lesson I need to learn before I move on.  But I'm extremely grateful for each and every day I'm blessed to be here with my family. Without their prayers and support I don't know where I would be.Keep a positive thought and be grateful, no matter how sick you feel. Love life, embrace it, laugh, even though it may be the hardest thing to do ! Afterall what is the alternative? ewiro Thu, 03 Jul 2008 00:00:00 GMT