CancerCompass message board discussion started by KK345 on 7/14/2008 http://www.cancercompass.com/message-board/message/all,26064,0.htm Sun, 23 Nov 2008 00:00:00 GMT Sun, 23 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I've posted on here a few times, unfortunately on 7/7 my mother lost her battle with this cancer thankfully she died asleep and in her own home. Unfortunately in her case she had doctors that didn't care and treated her as though she is a by the book case which she had proven time and time again that it wasn't the case for her she wasn't going to go when they told her it was over. Sunday night after 13 months of a long hard fight she knew her time was coming and spoke of two men being in the room (who we didn't see) and later that night she slipped into a coma. I only pray that they do more research on this cancer and catch it more in people before they hit stage 4. She was in an experimental treatment called Full Fury which helped her till she went into the hospital for a feeding tube and the hospital made some fatal errors that made these last months extremely difficult for her and led to her giving up hope. I hope everyone who has this disease wins their fight and if the time comes finds comfort in their family in the end. Family and a positive attitude is winning half the battle. I Pray for anyone with the disease and their families and may god bless all of you and what you have gone through. KK345 Mon, 14 Jul 2008 00:00:00 GMT I am so very sorry to hear about your mother.  I lost my Dad 4 months ago to a glioblastoma.  I can relate to your frustration about hospital errors.  It is very scary to have a loved one in the hospital and have mistakes made repeatedly.  You feel so out of control.  Having them home is the best thing and you should be proud of yourself that you were able to keep her home and comfortable.  Remember the good times you had and try not to replay the bad.  Family is the most important thing and I hope you have more family to support you through this time.   Again, I am so very sorry for your loss.  I wish you well. Laura Domsbaby Mon, 14 Jul 2008 00:00:00 GMT I send my heartfelt condolences to you and your family.   I understand the pain and turmoil you are feeling right now.   My 47-year-old sister lost her battle a few years ago.   Now we are facing another sister having the same diagnosis.Cancer of any kind is a devastating thing.   The word itself brings an immediate reaction of fear and dread.   In our world today, it is a common illness that creates a great deal of pain and misery.Try to be comforted by all the hearts and souls that have felt the pain you are feeling today.   They are your soulmates in the days to come when you need care, comfort and support.And then realize that it is your calling to be that soulmate to others when they are suffering in the future.Be willing to tell others what you need while you are mourning.   Say, 'I just need to sit here and be quiet', or 'I just need you to listen'.   People want to do something and they want to do the right thing, so help them to know what it is.   I also found that if I was open to listening to people, I could find understanding and perspective in the most unusual of places.    Mourning is a journey that you want to speed thru as though you can get to the finish line and it will be over.   You already know it doesn't work that way.   Let it be what it is and cry when you need to.    It still sneaks up on me during quiet times.   But, the pain of losing a loved one too soon is a part of me now and it is part of who I am.  In time, you will make peace with this and use your new strength to help others.God Bless you.  On 7/14/2008 Domsbaby wrote:I am so very sorry to hear about your mother.  I lost my Dad 4 months ago to a glioblastoma.  I can relate to your frustration about hospital errors.  It is very scary to have a loved one in the hospital and have mistakes made repeatedly.  You feel so out of control.  Having them home is the best thing and you should be proud of yourself that you were able to keep her home and comfortable.  Remember the good times you had and try not to replay the bad.  Family is the most important thing and I hope you have more family to support you through this time.   Again, I am so very sorry for your loss.  I wish you well. Laura  Dee2249 Tue, 15 Jul 2008 00:00:00 GMT I am so very sorry for the loss of your dear mother.  She is at peace now.  I lost my wonderful husband on February 22, 2008 to stomach cancer and miss him so.  Keep wonderful memories of your mother in your heart and may God grant you peace.Diane, Mike's wife Anniedips Tue, 15 Jul 2008 00:00:00 GMT  On 7/14/2008 KK345 wrote:I've posted on here a few times, unfortunately on 7/7 my mother lost her battle with this cancer thankfully she died asleep and in her own home. Unfortunately in her case she had doctors that didn't care and treated her as though she is a by the book case which she had proven time and time again that it wasn't the case for her she wasn't going to go when they told her it was over. Sunday night after 13 months of a long hard fight she knew her time was coming and spoke of two men being in the room (who we didn't see) and later that night she slipped into a coma. I only pray that they do more research on this cancer and catch it more in people before they hit stage 4. She was in an experimental treatment called Full Fury which helped her till she went into the hospital for a feeding tube and the hospital made some fatal errors that made these last months extremely difficult for her and led to her giving up hope. I hope everyone who has this disease wins their fight and if the time comes finds comfort in their family in the end. Family and a positive attitude is winning half the battle. I Pray for anyone with the disease and their families and may god bless all of you and what you have gone through.I am deeply and truly sorry that you lost your mother on this terrible disease. Being the wife of a bc-patient, I know almost all the awful stages you and your family went thru. The only thing I do not know yet is when your loved one dies.I wish you and your family strength to cope with the difficult time to come. May you have many beautiful memories of your mother and let them win over the grieve.All my love, Iris. Flower1 Tue, 15 Jul 2008 00:00:00 GMT I am so sorry that you lost your mother.  I lost my husband to bile duct cancer (cholangiocarcinoma) on May 7, 2008.  I know what you are going through. Even though I knew he would die from the disease no one can prepare you for the impact the death has on you. There is such a huge void now. I have found talking to people helps me.  So, if you feel like talking please know that if I can help I am here.Irene, Bob's wife. Annshal Thu, 17 Jul 2008 00:00:00 GMT Thank you guys for your encouraging words. Right now is just extremely difficult with all the emotions, I'm only 23 and wasn't ready for her to go I have a 7 month old son who won't ever remember how much his grandma loved him so it just kind of sucks right now. KK345 Thu, 17 Jul 2008 00:00:00 GMT  On 7/14/2008 KK345 wrote:I've posted on here a few times, unfortunately on 7/7 my mother lost her battle with this cancer thankfully she died asleep and in her own home. Unfortunately in her case she had doctors that didn't care and treated her as though she is a by the book case which she had proven time and time again that it wasn't the case for her she wasn't going to go when they told her it was over. Sunday night after 13 months of a long hard fight she knew her time was coming and spoke of two men being in the room (who we didn't see) and later that night she slipped into a coma. I only pray that they do more research on this cancer and catch it more in people before they hit stage 4. She was in an experimental treatment called Full Fury which helped her till she went into the hospital for a feeding tube and the hospital made some fatal errors that made these last months extremely difficult for her and led to her giving up hope. I hope everyone who has this disease wins their fight and if the time comes finds comfort in their family in the end. Family and a positive attitude is winning half the battle. I Pray for anyone with the disease and their families and may god bless all of you and what you have gone through. I am so sorry for your loss.  My dad died in April after being diagnosed for a short 2 months.  I have FINALLY found a website (somebody told me about it through this website) that is devoted to bile duct cancer.  It is www.cholangiocarcinoma.org  I wish it would have been so full of information back when we were looking for answers as it is now.  I do not know if you will find it consoling or not.  ginae Fri, 18 Jul 2008 00:00:00 GMT I am so sorry to hear about your mother. I lost my mother to bile duct cancer on Jan.31, 2007. I like you lost the love of my life. My mother was diagnoised on her birthday July 9,2007. I took her to what I thought was the best doctors doing chemo every Wed. for 4 hours. I contacted a doctor in Pa. Jerome Canady. He thought he could help my mother however one of the doctors who had placed her billinary bags in caused a cyst. It was a 3 week stay away from home,but he promised me we would make it home where she wanted to be. We came home and within 2 weeks she left us. I told her I would be ok, as she went and did a lot for me to keep her. I don't believe I will ever be alright though. I wish I had met with Dr. Canaday before it was too late, but hopefully by posting this others will have the chance that everyone deserves.  I truly pray that with this form of cancer they will come up with a way to diagnoised quicker so others may have what my mother and others didn't..a chance.     kelli_lynn Fri, 08 Aug 2008 00:00:00 GMT