CancerCompass message board discussion started by Bob E. on 7/13/2003 http://www.cancercompass.com/message-board/message/all,370,0.htm Fri, 10 Oct 2008 00:00:00 GMT Fri, 10 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My wife has sarcoma cancer. It reportedly began in her fallopian tube, then went to her right ovary and then she had a large tumor removed from her colon. The tumor was diagonised as Mullerian mixed sarcoma. We went to Duke University and have a chemo plan, but I would like to know of other types of treatment and SUCCESSES for this rare type of cancer. Her chemo consistes of ifosfamide and mesna cisplatin which I believe is a standard form of chemo. Bob Bob E. Sun, 13 Jul 2003 00:00:00 GMT You will find a wealth of information on the sarcoma mailing list at ACOR. Here is the link: http://www.acor.org/index.html Open the mailing lists and go to the sarcoma list. You will have to apply to join but it will be well worth it. Good luck, Wendy Wendy M. Tue, 14 Oct 2003 00:00:00 GMT I was told that I had a Retroperatineal Sarcoma and that chemo might slow it down but would not make it go away. I have since had two surgeries that removed 23 and 21 pounds of tumors respectively. I went 11 months without any new sites but on my March o5 cat scan I had five new site, one on each lung and one each on my spine, next to my right kidney and one below my liver. Each was about the size of a lemon. My family got on the internet and found two alternative medicine treatments. I took the first on about four weeks and the secon one for three weeks before my April cat scan. All of the sites had reduced by 20-30%. On my last cat scan on June 22 the two on my lungs were GONE and the other three had reduced by at least 75% and prompted my Doctors to state that "this is nothing short of a Amazing. I am attaching the twoweb sites that have produced such amazing results for me and hope they will be of help to you and your wife! These treatments seem to work the quickest on fast growing soft-sided tumors, but do work on most tumors. Thanks Carl Success Mon, 27 Jun 2005 00:00:00 GMT Hi! I was reading with great interest as to your sarcomas shrinking! May I have the method to which this was done? I am terrified you see, being just newly diagnosed with a sarcoma on my inside left knee. Won't know much more till friday the 1st of July when I hear what the oncologist has to say. Please inform me! My sarcoma was huge, like a grapefruit! Anything you can offer would be greatly appreciated! Thank-you Luckyloo Mon, 27 Jun 2005 00:00:00 GMT I would love to hear about these alternative treatments. Can you please explain more. My husband was just diagnosed with our 3 recurrance of soft tissue sarcoma. maura Layla14 Mon, 15 Aug 2005 00:00:00 GMT I would also like information on the two alternative medicine treatments. Thank you Livestrong Thu, 18 Aug 2005 00:00:00 GMT My mother also was diagnosed with sarcoma. She also has a very large tumor in her stomach but when they opened her up they were unable to remove the tumor because it had attached to the lining of her stomach. She's not on any medication nor is she receiving chemo. I really would like the website addresses so that maybe we could look into some other forms of treatment. Thanks. Need Help Sun, 21 Aug 2005 00:00:00 GMT I am so happy to finally hear of a person whom was told the same exact thing as my mother. I really would appreciate it if you could list the websites you visited or email them to me --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---. I really would appreciate it Need Help Wed, 24 Aug 2005 00:00:00 GMT My husband had a large sarcoma in the thorax and it was inoperable because it was entwined with all the major vessels in the chest cavity. They did 6 rounds of aggressive chemo, doxirobicin and insofamide and the tumor is gone. They plan now to monitor with CT scans every 2 months. Gayle Helen Fri, 26 Aug 2005 00:00:00 GMT I too have sarcoma that has metastecized to my lungs and now is coming through my chest wall. I have had two different regimes of chemo and am now undergoing radiation. Can you please share with me the alternative treatments that you have found? Slaka Thu, 01 Sep 2005 00:00:00 GMT My son has synovial sarcoma. Like so many others I would like to know the sites that helped "Success". Thank you so much. Sveta v Tue, 04 Oct 2005 00:00:00 GMT Hi, My son has synovial sarcoma. Were you able to obtain the two sites with treatments that helped one of the participants in this forum? Could you please share this info with me. Thank you very much. SV Sveta v Tue, 04 Oct 2005 00:00:00 GMT I really would like to know the forms of treatments that you received or the doctors name or number so that maybe my mother could get in contact with him. Maybe she could receive some form of help right now. She is just sitting in the hospital she has been there for three weeks. Need Help Tue, 04 Oct 2005 00:00:00 GMT Hi, I have a spindlecell sarcoma that started in my rt. hand in 2003. I had my hand and fore arm amputated to stop it but a year later it had metastisized to my lungs. I have had no chemo and have been monitored by my doctor , who tells me that heavy doses of chemo will give me a 20%chance of tumor shrinkage. Well my problem right now is that I have a 7x8 cm tumor growing under my rt arm. It is very painful and I rather try alternative medicine first to shrink it. Please send me the web sites that helped you. I have tried a lot of stuff and am willing to try anything. I am a newlywed and only 30 yrs old. I really would love to see some shrinkage in this huge tumor. Thanks a lot. Gina Sarcoma Sucks Mon, 17 Oct 2005 00:00:00 GMT Please give me the 2 websites. My friend has sarcoma. His leg was amputated in April. It has spread to the lungs. Thanks, India India Mon, 21 Nov 2005 00:00:00 GMT Sorry I have not got back with you, I have been out of town. but here are the websites http://www.cancerprotocol.com/copperprotocol.html thewolfeclinic.com. Good luck Carl Hhigroup Tue, 13 Dec 2005 00:00:00 GMT Luckily enough, my mom is being treated for sarcoma (malignant fibrous histiocytoma) at the University of Michigan Sarcoma Clinic, which is mentioned in the first cancerprotocol.com page. I am excited and hopeful that we can bring up this information to her current oncologist there, with hopes that he's heard of the treatment. Imatarb Sun, 08 Jan 2006 00:00:00 GMT I could not find your 2 attached sites referencing treatment that helped you. Could you please forward them to me? I hope you are still well and wish you a healthy recovery. Laddie Sat, 11 Mar 2006 00:00:00 GMT My name is Cheryl, and I have recurrent soft- tissue sarcoma that metastisized to my lung and now to my ribs in the back and also spine. I would be greatly appreciative if anyone who has those sites would e-mail them the --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Cheryl Rncherylwo Fri, 14 Apr 2006 00:00:00 GMT Carl, I did not scroll down far enough to see that you wrote down the websites, sorry, but thankyo. Cheryl Rncherylwo Fri, 14 Apr 2006 00:00:00 GMT Hi, My name is Adrian and my mother was diagnosed with leiomyosarcoma 3 years ago and was unable to had the tumors rmoved by surgery. Now she is recieving chemo. I read your article and was wondering what was the drug that you took that gave you such good results. Adriaa Wed, 19 Apr 2006 00:00:00 GMT Dear Bob, how is your wife doing? I too, am diagnoised with mullerian mixed sarcoma. They said I had cancer of the fallopian tube, but now they are calling it the mixed sarcoma. I had two treatments with Ifex, cisplatin, and adriamycin. This treatment was hard on my blood counts, and is taking a long time for my platlets to recover. I also had five treatments for ovarian cancer (this is what they initially treated me for). We are now thinking of going to the Cancer Treatment center of America in Zion, Il. Anita48 Tue, 06 Jun 2006 00:00:00 GMT Thats GREAT news because my father who is 44 has a sarcoma all through his chest and lungs. It has grown to almost 15cm in diameter. He is now in the royal adelaide hospital being treated with ifosfamide. His last chemo did not work but it paused its growth for a month, then it came back again. His cancer is also inoperable. I am happy to hear that your husbands chemo has worked for someone, i am praying my dads cancer will do the same. Dicky Lovely Tue, 06 Mar 2007 00:00:00 GMT  Hello - my friend was just diagnosed with a very aggressive type sarcoma.  What alternative treatments worked for you? what are the websites you mention? many thanks  -- Haya On 6/27/2005 Success wrote:I was told that I had a Retroperatineal Sarcoma and that chemo might slow it down but would not make it go away. I have since had two surgeries that removed 23 and 21 pounds of tumors respectively. I went 11 months without any new sites but on my March o5 cat scan I had five new site, one on each lung and one each on my spine, next to my right kidney and one below my liver. Each was about the size of a lemon. My family got on the internet and found two alternative medicine treatments. I took the first on about four weeks and the secon one for three weeks before my April cat scan. All of the sites had reduced by 20-30%. On my last cat scan on June 22 the two on my lungs were GONE and the other three had reduced by at least 75% and prompted my Doctors to state that "this is nothing short of a Amazing. I am attaching the twoweb sites that have produced such amazing results for me and hope they will be of help to you and your wife! These treatments seem to work the quickest on fast growing soft-sided tumors, but do work on most tumors. Thanks Carl  yafashelanu Tue, 04 Mar 2008 00:00:00 GMT