CancerCompass message board discussion started by Need2hope143 on 1/3/2006 http://www.cancercompass.com/message-board/message/all,3920,0.htm Sun, 06 Jul 2008 00:00:00 GMT Sun, 06 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My husband has colon cancer that went to his liver. He has had surgery to remove part of his colon, he is on chemotherapy to shrink the 2 tumors in his liver so he can have surgery to remove them from his liver. He is so sick with the chemo. He gets it every 2 weeks. Starts on a Wed and ends on a Fri. then he is sick for a least a week. We went to Boston for a consult and it was awful. He was told that he would live 1 year without treatment and 2 years with treatment. There was no cure. Is there anyone out there that has this? How are you doing? How long have you had it? I was hopeful till we went to Boston. His chemo is 5FU, Leucovorin, Oxiplatin. (Folfax 6). He cannot take Avastin yet because he is still slowly healing from his surgery. He takes Reglan and Ativan for his nausea which has helped with the vomiting, but he cannot eat. He continues to loose weight. After the Boston visit, he is thinking of stopping chemo because he is so sick with it. Does anyone who has this type of cancer have anything hopeful to tell me? Need2hope143 Tue, 03 Jan 2006 00:00:00 GMT Hi. My mother (53yrs) was diagnosed with colon cancer in the liver last June. They told her without treatment it would be 1 year. They said with treatment depends for everyone. My mom took 6 rounds of chemo which is twelve treatments she is on what your husband is on plus avastin. Her tumor is inoperable because of location (near inferior vena cava). Her side effects were nausea (no vomiting) and decreased appetite. I did start her on green tea pills, flaxseed, and whey protein shakes in the morning. I am not sure if this is helping or hurting her. I do know that chemo is very very toxic and there is much debate over antioxidents but after much research on ACTUAL medical studies done on animals by reputable medical schools and journals we came to the conclusion to try it. She takes the pills three times a day but stops two days prior to chemo, during chemo and two days after chemo. There was one study that showed 5FU and EGCG (component of green tea) to be benefical. If this is true I do not know. It is a very scary decision to have to make considering there is very little evidence out there. Personally I think this is because they can not make money of of EGCG because it is an herb but that is just me being angry that my mother is ill. My mom did well with treatment but she is very very tired, she pushes herself but still continues on with life. She tries to keep her mind off of things because it is important to keep her spirits up. After 3 months a MRI showed 20% shrinkage and after 6 months it showed another 15% shrinkage which equals 35%. We were very happy she is making some progress. The next step the doc decided on is radiation. She is scheduled to begin next tuesday, and is very very scared. It is horrible to have to watch her go through this. All I know is that right now she lives her life day to day. I see her touch her stomach sometimes as if she is in pain but she has a high pain tolerance and does not want me to worry. Not sure what this is, it usually happens before her next chemo treatment. We also spoke to a dietican at the hospital and she said to cut out red meat, at most have it once a month and make sure it is lean and organic. We changed all of our food to organic and we wash fruits and veggies in apple cider vinegar to kill any bacteria. She also takes a multivitamin. Rainbowlight Women's one a day. They way it was explained to us was that we want to make it as easy as possible to digest the food that she is capable of eating. Organic is soooo expensive and is taking a toll on our pocket but she is doing well with it so it is worth every penny. Who is really to say what is working, I do not know. I think it is important to live the healthiest lifestyle, so ensure that when he does eat to make sure it is healthy. It is hard, my mom hates it because she feels that she has no control but I truly believe in it from the bottom of my heart. It just makes sense too, eating organic and watching what goes in to the body so she feels strong is only common sense but at the same time very difficult to follow. Sorry I know this was long but I am just trying to let you know what is helping her and maybe in some small way it could help you. does anyone know anythign about radiation on the liver mets? I am worried about this for her and still trying to do research on EGCG with radiation. Her oncologist said that were mixed reviews but not enough solid data to say no and he said he has no problem with her taking it. Any advice? Dally321 Thu, 19 Jan 2006 00:00:00 GMT Hi, My name is Rc. how is your husband doing? i to have the same symtom as your husband. if ur reading it pls let me know his condition n how he is diong? now i'm in the 9th cycle of chemo another 3 more to go n i'm having a feeling that the drugs r not working. i'm now looking for nature healing. Back to Nature Sun, 08 Oct 2006 00:00:00 GMT  On 1/3/2006 Need2hope143 wrote:My husband has colon cancer that went to his liver. He has had surgery to remove part of his colon, he is on chemotherapy to shrink the 2 tumors in his liver so he can have surgery to remove them from his liver. He is so sick with the chemo. He gets it every 2 weeks. Starts on a Wed and ends on a Fri. then he is sick for a least a week. We went to Boston for a consult and it was awful. He was told that he would live 1 year without treatment and 2 years with treatment. There was no cure. Is there anyone out there that has this? How are you doing? How long have you had it? I was hopeful till we went to Boston. His chemo is 5FU, Leucovorin, Oxiplatin. (Folfax 6). He cannot take Avastin yet because he is still slowly healing from his surgery. He takes Reglan and Ativan for his nausea which has helped with the vomiting, but he cannot eat. He continues to loose weight. After the Boston visit, he is thinking of stopping chemo because he is so sick with it. Does anyone who has this type of cancer have anything hopeful to tell me?Do you have an update on your husband's health?  My father was just diagnosed with tumors in his colon and spots on his liver.  He goes in for a PET scan tomorrow so we can find out if it has spread.  He will definitely need surgery on his colon and liver and also chemo.  He's 68 years old so it will be pretty tough on him physically, even though he is really in pretty good shape (lean and excercises every day and eats healthy). HilaryChill Tue, 25 Sep 2007 00:00:00 GMT Your husband does not have to die. You might want to check out messages on the Alternative board.   SNETREM Tue, 23 Oct 2007 00:00:00 GMT 2 years ago I was diagnosed with stage 4 colon cancer and have now had two surgeries, colon and a year later liver.The one thing that I would recommend is a Power Port in the chest, my first port was placed in my upper arm and would never  heal.  My chest port has made receiving chemo treatments much easier.  Good luck.  Bobbie2 Wed, 12 Mar 2008 00:00:00 GMT go to http://www.wave3.com, click on health there is an a very interesting story there that you might be interested in.  It is a true story,  Cathy James is my sister.  Believe me, there is hope.  Bettyjane812 Sat, 29 Mar 2008 00:00:00 GMT how is your husband?  please let us know how the chemo worked out. caroljane Mon, 07 Apr 2008 00:00:00 GMT  On 1/3/2006 Need2hope143 wrote:My husband has colon cancer that went to his liver. He has had surgery to remove part of his colon, he is on chemotherapy to shrink the 2 tumors in his liver so he can have surgery to remove them from his liver. He is so sick with the chemo. He gets it every 2 weeks. Starts on a Wed and ends on a Fri. then he is sick for a least a week. We went to Boston for a consult and it was awful. He was told that he would live 1 year without treatment and 2 years with treatment. There was no cure. Is there anyone out there that has this? How are you doing? How long have you had it? I was hopeful till we went to Boston. His chemo is 5FU, Leucovorin, Oxiplatin. (Folfax 6). He cannot take Avastin yet because he is still slowly healing from his surgery. He takes Reglan and Ativan for his nausea which has helped with the vomiting, but he cannot eat. He continues to loose weight. After the Boston visit, he is thinking of stopping chemo because he is so sick with it. Does anyone who has this type of cancer have anything hopeful to tell me?Hi, my partner was diagnosed with colon cancer this time last year, he left me for about 3 months and then came back to tell me.....he told me he couldnt deal with this without me, my heart was so saddened, I felt so helpless and wanted to be there for him every minute of every day...... he had a full colostomy last August and was told he also had cancer of the liver.......a week after he left hospital he left me again and will not talk to me, no contact except odd messages on msn. I love him so much, I want to be there for him, just to hold him, reassure him that I am going nowhere.....no matter what I want to support and love him so much, I know he has been in hospital for his liver but have no idea what was performed, what the prognosis is......I am sure he has a very short time......why after a 16 year relationship does he not want me close? Maybe he feels he has lost his dignity, maybe he doesnt feel of any worth, maybe he doesnt want me to see him die, is there hope that he will survive this......someone needs to help me with honesty of this condition, Im now on antidepresants, I just cant bare this any longer, my doctor wont give me any information, my work colleagues and family are so concerned for me, I dont want sympathy I just want my man back in my life to share whatever time we have left together, to make the most of the time we have, but how much time do we have.......someone please tell me, please be candid, I cant bare the thought of receiving a call telling me he has passed away I love him so much, please someone in this world must be able to help us sweetsuccess Thu, 10 Apr 2008 00:00:00 GMT Please find him and dont allow him to turn you away. stay with him know matter how bad he treats you in the beginning he needs you and you need him.   GOD is still in the healing business.  Im in the hospital typing this email.  my mom , in the last 24hrs, was just diagnosed with colon cancer (large tumor on Cecum) and a ct scan showed a spot or spots on her liver.  please pray for us.  God still heals and i know it. she was never one to go to the doctor for anything.  she had been complaining of being very tired and didnt have an appetite to eat much.  i convinced my sisters to drag her to a doctor.  Her blood count returned very low number and a low blood pressure.  they want to remove the tumor on thursday of this week and take a biopsy of the liver.  keep in mind she isnt current experiencing any pain.  she is 68 yrs old and never had any type of surgery in the past.please say the following statement multiple time in a day even when you dont feel it is true.   "Gods healing power is working in me today and i feel better and better each day".  please try it, it can't hurt.Jesus loves you.  GODstillheals Tue, 22 Apr 2008 00:00:00 GMT Although it's up to each individual what they should do, after my experience with all of the treatments, I would forget about them, get my affairs in order and then go about enjoying my life to the best of my ability. In truth the treatments just make it longer and harder. What's the difference, 2 years of hell or 6 months to 1 year of enjoying one another and the life that's left. Go on a great trip, write all the love letters you can, take pictures with everyone that comes to visit, journal everyday, cry like a baby, spend every moment with the ones you love, plan your funeral arrangements, get some counselling, join a local cancer group to make life-long friends, have a big party, eat out every chance you get and eat everything you want, ask Jesus to come into your life, forgive anyone that may have offended you, ask for forgiveness too, reach out to your family and friends so that they can reach back to you, refuse to lose faith in God, just do everything you can do and want to do and you'll never regret one moment. Actually we should do all that stuff whether we're dying or not. ENJOY all the life you can! Bless you. withhope Tue, 22 Apr 2008 00:00:00 GMT